NeuroTalk Support Groups - health canada approves tysabri

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- - health canada approves tysabri (https://www.neurotalk.org/multiple-sclerosis/2704-health-canada-approves-tysabri.html)

You could start a Tysabri Check In thread here. You could do it once a month or ask for a sticky.

BT1 had a Navatrone Check in, that was quite good.

Dayle,

Quote:

Originally Posted by dayle (Post 20387)

HArry, somehow you managed to quote someone else and attributed it to me?:confused: I think you were maybe trying to address wanabe's post?

Hmmm...I took the quote from a message that looks like Wanabe originated but was signed with your name!!

Quote:

Anyhow, I know they have restarted infusions At St Mikes, because a friend had one last week. Fortunately the drug , because it is an IV infusion is covered as a medical procedure and is covered under OHIP. My neuro told me it is for relapsing froms only-rrms and relapsing progressive and spms who have relapses.

Do you know if the current infusions at St. Mikes are being done under the trial umbrella or if they are part of the new approval by Health Canada?

Although the drug has always been used for RRMS or SPMS patients who experience relapses, there appears to be some who are trying to get their neuros to use it on them who have a more advanced level of the disease. From what I have read so far, Tysabri does not do much if anything for advanced MS.

Harry

It has not yet "proven" to be successful on non-relapsing MS, but that seems fairly typical for any new disease modifying drug. The trials target the biggest (and coincidentally most variable) population of MS'ers initially.

As I recall, it's mechanisms are said to be most suited to relapsing MS anyway (reducing attacks is it's 'claim to fame'), but . . . it might end up being like many of our drugs whereby once they have it on the market, it's really up to the individual Neuro to decide if they are going to rx it on a patient by patient basis.

I've definitely heard of several non-qualifying people who intend to FIGHT for it, even to the point of switching Neuros because they feel that is their right! There is still much to consider with the use of this drug, including prior use of immunosuppressants, etc., I'd rather see people trusting their 'usual' Neuro to help make this decision.

People will ultimately find a way to do what they feel is right for them though.

Cherie