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-   -   WooHoo.....update on me (https://www.neurotalk.org/multiple-sclerosis/30576-woohoo-update.html)

AfterMyNap 10-28-2007 08:41 AM

Quote:

Originally Posted by dagm131 (Post 161893)
just wanted you too know that my dad has only one kidney, and he didn't find out till he was in his 60's. And he found out by accident due to another problem that since has been corrected and he is 70 now,it has never caused any kind of problems, he is still one of the strongest men i have ever known if not the strongest deb

Oh my gosh! Do they know why some people are born with only one? That's so bizaare!

Glad he's doing so well! I have an old codger on my hands who, at 85, can outlast me at everything but debate.;)

Snoopy 10-28-2007 11:04 AM

Quote:

Originally Posted by dagm131 (Post 161893)
just wanted you too know that my dad has only one kidney, and he didn't find out till he was in his 60's. And he found out by accident due to another problem that since has been corrected and he is 70 now,it has never caused any kind of problems, he is still one of the strongest men i have ever known if not the strongest deb

Holy Cow Deb....seriously, how in the heck could that go undiscovered for all those years. I guess unless there was a reason for x-rays, cat scan, ect you would never really know but it just boogles the mind. I'm glad he's still doing good.


Okay people I am done with Cymbalta. This is my second time of using Cymbalta. I have had 6 days of headaches, nausea, dizziness and 2 days of diarreah and of course the reason I went back on it....pain, which i still have.....I'm DONE. I will deal with the pain I have and hope it goes away on it's own.....I HATE THIS DISEASE :Soapbox:

I'm done....:p

tovaxin_lab_rat 10-28-2007 12:20 PM

Good move, LA! I would do the same thing as you! ;)

AfterMyNap 10-28-2007 12:45 PM

Quote:

Originally Posted by Snoopy (Post 161963)
Holy Cow Deb....seriously, how in the heck could that go undiscovered for all those years. I guess unless there was a reason for x-rays, cat scan, ect you would never really know but it just boogles the mind. I'm glad he's still doing good.


Okay people I am done with Cymbalta. This is my second time of using Cymbalta. I have had 6 days of headaches, nausea, dizziness and 2 days of diarreah and of course the reason I went back on it....pain, which i still have.....I'm DONE. I will deal with the pain I have and hope it goes away on it's own.....I HATE THIS DISEASE :Soapbox:

I'm done....:p

Are you sure you're not depressed, honey?











*running fast for cover!*:Grin-Nod:

SallyC 10-28-2007 01:03 PM

Oh boy, I'm glad I didn't try Cymbalta...thanks for the tip, Snoops.;)

I KNOW you're NOT depressed, but you may want to try Prozac, anyway, because it does help with anxiety and pain as well as depression.

hiding behind AMA..:eek:

Snoopy 10-28-2007 02:00 PM

Quote:

Originally Posted by AfterMyNap (Post 161995)
Are you sure you're not depressed, honey?











*running fast for cover!*:Grin-Nod:



AMN...."run".....yeah right :p

No honey, I'm not depressed but can I offer you a hug :hug: or :Poke:


Sally, Prozac makes me a zombie I will never, ever use it again.

Geez, I can't believe I'm saying this......Cheryl, your the only sane one here....

AfterMyNap 10-28-2007 02:19 PM

Quote:

Originally Posted by Snoopy (Post 162019)
......Cheryl, your the only sane one here....

OH MY GOSH! SHE SUFFERS FROM :eek:DIMENTIA!!!!!:eek:

tovaxin_lab_rat 10-28-2007 03:10 PM

Quote:

Originally Posted by AfterMyNap (Post 162026)
OH MY GOSH! SHE SUFFERS FROM :eek:DIMENTIA!!!!!:eek:

:mf_swordfight: Them's fightin' words....:p

Snoopy 10-28-2007 04:36 PM

Quote:

Originally Posted by AfterMyNap (Post 162026)
OH MY GOSH! SHE SUFFERS FROM :eek:DIMENTIA!!!!!:eek:


Do not. The voices in my head tell me so.

dagm131 10-28-2007 05:07 PM

your all so funny
 
glad i found this site you are all such apleasure! snoops i say good for you . you know hoa these medicines make you feel andeven though you keep trying you will know what is best for you maybe you could try some different kinds of vitamins which i know nothing about but some people swear by them wish i could help more. by the way it is a mazing that my dad only has 1 kidney but then again if you never go to the doc how would you know bye all and hope everyone has a painfree day,week years deb:grouphug::grouphug:

lady_express_44 02-06-2008 12:30 PM

Snoopy, I think I may have been getting these same pelvic spasms . . . so I wanted to ask about the sensation.

Does it feel like a spasm, occurring in the internal cervical area? (I had cervical cancer, then tried to deliver a child naturally . . . so that's why I can relate to it as the spasm source area.)

Is it intermittent, lasting seconds to minutes, then nothing for days or weeks . . . or more constant?

Do you happen to have trouble with your bowels from the spinal lesions (although that is not where the feeling generates from)?

Thanks,

Cherie

Snoopy 02-06-2008 07:40 PM

Cherie,

My neuro thinks I am dealing with spasms but if I am having spasms I don't feel them.

The pain and sensations I have: pressure - like you would feel with a UTI and the feeling that my insides are going to fall out - probably similar to women who have dealt with a fallen bladder. I also feel the pain at the clitoris. None of this affects intimacy nor do I have pain during intimacy.

This is fairly constant with a week or less a month where I feel normal again. The GYN told me everything is where it's supposed to be. She did a little experiment - she wanted to know if the pain I felt was noticeable when she touched certain areas - the uterus and bladder. Both caused the same pain I experience.

As far as my bowels - that's a hard one. I have had bowel problems since I was an infant. I had 2 to 3 feet of intestines removed by the time I was 2 years old (no nerves in that section). Since I was about 12 (?) I have had a problem with needing to go but not being able to pass "it". This was not related to constipation but to muscle spasms. To this day I still run into this problem but I have found Klonopin relaxes the muscles and allows me to go.

I don't know if any of this makes sense or helps but if you want any more information just let me know.

Quote:

Originally Posted by lady_express_44 (Post 208449)
Snoopy, I think I may have been getting these same pelvic spasms . . . so I wanted to ask about the sensation.

Does it feel like a spasm, occurring in the internal cervical area? (I had cervical cancer, then tried to deliver a child naturally . . . so that's why I can relate to it as the spasm source area.)

Is it intermittent, lasting seconds to minutes, then nothing for days or weeks . . . or more constant?

Do you happen to have trouble with your bowels from the spinal lesions (although that is not where the feeling generates from)?

Thanks,

Cherie


NurseNancy 02-06-2008 07:53 PM

hi snoop,

just catching your thread.
sorry the cymbalta didn't work.
have you tried lyrica or neurontin?

pain is so annoying.
i hate mine but it's mostly muscular.

at least your drs are making sure you're in one piece and ok.

Cat_In_The_Hat_ 02-07-2008 02:40 AM

Hope you find the right med for those pains.

Hate it when one doc says yep it's MS and then another says NO it's ......

Geeze what are we paying U for? As you can see I hate neuros. Been there done that.

Let us know what you finally find that helps.

Snoopy 02-07-2008 06:47 AM

Judy, no I haven't tried Neurontin. I have been on Baclofen, Lyrica, and Cymbalta. My neuro has termed me as med sensitive since I seem to have a problem with the side affects of the meds. So far those few meds have not made a difference in the pain/sensation. His next choice is to try pain meds - narcotics. I don't want to use them.

Thank you Cat in the Hat and welcome to NeuroTalk :)

The only thing that sort of helps - Klonopin but I hate taking it as much as I have been.

Right now I have done away with all the meds except Klonopin - I really, really like that stuff :eek: :p

lady_express_44 02-07-2008 09:05 AM

Quote:

Originally Posted by Snoopy (Post 209009)
Cherie,

My neuro thinks I am dealing with spasms but if I am having spasms I don't feel them.

The pain and sensations I have: pressure - like you would feel with a UTI and the feeling that my insides are going to fall out - probably similar to women who have dealt with a fallen bladder. I also feel the pain at the clitoris. None of this affects intimacy nor do I have pain during intimacy.

This is fairly constant with a week or less a month where I feel normal again. The GYN told me everything is where it's supposed to be. She did a little experiment - she wanted to know if the pain I felt was noticeable when she touched certain areas - the uterus and bladder. Both caused the same pain I experience.

As far as my bowels - that's a hard one. I have had bowel problems since I was an infant. I had 2 to 3 feet of intestines removed by the time I was 2 years old (no nerves in that section). Since I was about 12 (?) I have had a problem with needing to go but not being able to pass "it". This was not related to constipation but to muscle spasms. To this day I still run into this problem but I have found Klonopin relaxes the muscles and allows me to go.

I don't know if any of this makes sense or helps but if you want any more information just let me know.

Thanks, Snoopy.


That's not the sensation I have been getting, and mine is not constant either (thankfully). For me, it feels similar to a contraction, but directly in the cervical area.

The reason I asked about bowels is that I noticed (this time) that there was a timing connection with the contractions and a BM. I'm not sure if that was true in the past, but I'll be watching for that in the future. I too have bowel problems, due to Ulcerative Colitis and MS . . . so it shouldn't be too hard to make the connection if there is one.

Thanks,

Cherie

Jodylee 02-07-2008 09:41 AM

Hi Snoopy!

I am just now reading this thread. I am a little slow on the uptake this week:).

I'm glad (?) it's MS and not something worse/else. That's sounds insane:eek:, but true.

I really hope you can get some relief. Pain sucks no matter what causes it.;)

My thoughts are with you:hug::hug:

momXseven 02-07-2008 09:46 AM

Sounds like over all it was a good appt., glad you know why your having the pain. It's scary when you just don't know. I hope the Cymbalta helps you. :hug:
My prayers are with your sister also in he search for answers.

DM 02-07-2008 10:52 AM

Just chiming in to say I'm thinking of ya, Leann.

http://dl7.glitter-graphics.net/pub/...tovisvqxbo.gif


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