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Old 11-14-2007, 12:55 PM #1
flaunt62 flaunt62 is offline
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Join Date: Nov 2007
Posts: 3
15 yr Member
flaunt62 flaunt62 is offline
New Member
 
Join Date: Nov 2007
Posts: 3
15 yr Member
Default I need advice ...

Sorry ... this is going to be a little long. There's some background you have to know before you can advise me. So ...

I was diagnosed with MS in 1999 and went on SS Disability in February 2005. Since my diagnosis I have taken Betaseron, Avonex, and Rebif. When I started Rebif 4 months ago, I discovered that it was actually making me worse! After my injection, I was "paralyzed" for a while ... basically my muscles would all stiffen and I couldn't move, even with muscle relaxers. My Neuro and I had discussed Tysarbi and she was excited about it, telling me that she thought I was a good candidate for it and that she thought it would help me. I mentioned Copaxone, but she didn't think it would work for me. So ...

I went to my appointment with her Monday and she told me that she did NOT think Tysarbi would be good for me ... that it was potentially dangerous and she wants me to take Copaxone!

I didn't say anything at the time (which is NOT like me), but now I'm really confused! Are any of you on Tysarbi, and if so, has it helped you? I should mention that my Neuro is not a MS Specialist.

Right now, I'm not taking anything. I have 3 months worth of Rebif that I won't take because of the side effects, and I don't want to fill the prescription for Copaxone because I don't think it will help. I really want to try Tysarbi, (I'm not worried about the dangers), but I will probably have to change doctors and I'm reluctant to do that. I've been with this Neuro for 5+ years and we have a good relationship. It's just that this appointment was so different. It's the first time I've ever felt so distant from her...that she didn't seem to be concentrating on ME!

Any advice?
Bonnie
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