[gislat]

Hi all,

I have seen from the posts that getting a diagnosis can be frustrating. I have suffered from burning dysesthesias that come and go for years. At one point, I was diagnosed with possible MS and started on copaxone but there were no brain of spinal cord lesions on MRI. The LP was negative too. I moved to big city in 2003 and saw a well known MS expert who of course felt the MS was a misdiagnosis (given the negative scans and history). The burning comes and goes but has been worse recently. My neurologist feels I may have some type of small fiber peripheral neuropathy. I then went to a neuromuscular expert who of course told me a true PN was unlikely (argh!). Right now I am just trying to control the symptoms with neurontin and paxil. I am in limbo.

Thanks for listening!