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Old 01-23-2008, 03:31 AM #11
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I sometimes get a really deep ache around my back at waist level( like my waist is being squeezed real tight) but then goes right through me and seems to go down the front of my legs -kind of feels like the ache forms the distribution of lap rug if that makes sense- it is really intense, to the point that i just don't know what to do with myself! it seems to last several hours then gradually eases off. I have often wondered if this is the MS hug-i have had back from pinched nerves before and it feels different to that
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Old 01-23-2008, 08:34 AM #12
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Hi Cheryl I'm sorry you haven't been feeling well. I hope you get some relief soon.

I have spinal lesions which I think causes me the hug and like Cindy said, If I sit straight up in a chair I tend to be able to get a good breath.


Feel better soon
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Old 01-23-2008, 09:18 AM #13
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FG - I get that sweet MS hug a lot. It is the only hug I don't appreciate. I have found that putting my arms over my head helps with my breathing as I can take deep breaths.

I have permanent damage on my right rib cage - no reflexes what so ever as well as no feeling to touch.

I am so sorry you are having such a rough time. I really feel for you and hope you start feeling better soon. You have been suffering far too long and I hope things get resolved soon. *saying a quick pray that FG gets better soon*
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Old 01-23-2008, 09:36 AM #14
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I had the MS Hug once for about 3 weeks. I could not breathe. My chest felt so heavy and my back was killing me when I would try to breathe. I explained to my PCP that it felt like a truck was sitting on my chest. Hurt like h---. PCP sent me to a Cardiologist. Of course they could not find anything. Also had a chest Xray done. Found nothing, nada, zilch. That is when I knew it was the MS Hug. Far from the hug I am used to Take care.

Maria
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Old 01-23-2008, 09:56 AM #15
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Hi Cheryl! Only one real adventure with it myself,er so far.

Hard to get a deep breath, felt like my lower ribcage muscles were pulling me to the right. Odd feelings from the top of the hip muscles to the rib cage.

I drugged myself, Baclofen, it helped but took a while. I follow the rx much more closely now, 1 pill 3x a day. Haven`t had it come back and it`s been 3 or 4 months.

Just my opinion, if you have any doubts get it checked out by your doc.
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Old 01-23-2008, 10:11 AM #16
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[QUOTE=Av8rgirl;193344]As some of you already know, I have been sick since Thanksgiving. I even thought it might have been pneumonia. I've done a little research about the MS Hug and am thinking that maybe I am suffering from this new wonderful symptom - s



o let's discuss it.

I am feeling bruised from my armpits to my waist all the way around. My chest feels like someone is sitting on it and my rib cage just plain hurts.

I am not coughing from this crapola I have had with my sinuses so I don't think this is causing whatever is happening with my mid section.

I am short of breath, but the doc says there is no wheezing or crackling when he listens to my breathing and my chest x-ray was completely clear.


Hi FG: Never heard the expression MS Hug. But boy do I know what
you are talking about. I have had this for about 6 years. It has been getting
worse as time goes on. I can't even wear my bra, I feel like I am suffocation.

I have COPD and thought it was that. But when I would explain it to
the Doc he said it had nothing to do with the COPD. Yes some of it might, not
what I was explaining. Now I am going to ask my neuro about that and I know he is going to say that is not so. He is a Doc who does not believe that MS causes that much pain if any. I no, I no, you are going to say change Drs. Where I live there are not to many to choose from. The doc. I had before him was great, but he went and became an Admin. in the hospital.

That is why I take Ultram (Tramadol ) for the pain. My Rheu. Dr. takes
care of the pain meds for me because of the Fribro and Arth. Maybe some of
the pain is caused by the Fribro. Did you ever get checked for that?

Take care. This ms has our bodies really messed up. You don't know
what to blame for your problems.

I don't know what else to think?

Jappy
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Old 01-23-2008, 10:36 AM #17
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So sorry, Cheryl!!!!
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Old 01-23-2008, 12:14 PM #18
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Quote:
Originally Posted by Av8rgirl View Post
I hurt just sitting still. And when I am laying down in bed....oh man my back just goes into one big spazz. So, is that what this is like? Does it go away?

I thought it was just part of this "whatever it is I've had since TG" I've got. Maybe not. New symptom? Great....
Some extra Klonopin may help, Cheryl. Give your neuro a call, sweetie.
I'm sorry this is biting you. How about a better kind of hug?
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Old 01-23-2008, 01:16 PM #19
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Thanks everyone.

I know when anyone with MS has an infection, our symptoms go whacky and I am certainly having my share of whackiness right now. But this is just not fun. I couldn't sleep last night I hurt so bad. Took as many pain meds and muscle relaxers as I could, but just could not get comfortable.

I see my massage therapist today so hopefully that will help. She's good!

I don't have COPD, no heart problems, and other than this dang sinus crapola, it's gotta be this dang MonSter. Geez....

Thanks for the "real" hugs everyone. At least I know I am not going crazy. Looking back, I think I've had this before, just couldn't put a name on it. In my line of work, I get back muscle spasms all the time (I know I am not supposed to be doing any work, but dang it, I do!). So now I know...it's this thing called the MSHug and not other stuff.

Hey RW...makes perfect sense to me - lifejacketitis! LOL!

Joyce - my mom has COPD...but she was a 3-pack a day smoker and right now lives in the casinos. She's doing it to herself. There are a lot of docs who think that there is no pain with MS! Kick 'em!
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Old 01-23-2008, 02:39 PM #20
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Hello Cheryl,
I've had some of what you've explained over the years. When I've described it to the Neurologists, all they've said is "hmmmm...Yes", whatever that means. Nobody ever prescribed anything for it, so I don't know what to tell you. All I can say is it DID eventually resolve itself on it's own (I did find sleeping elevated on a a few pillows helped me breathe a tad better). I wish you well.

All the best,
Chris
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