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-   -   Crumbling (https://www.neurotalk.org/multiple-sclerosis/37112-crumbling.html)

tkrik 01-24-2008 08:40 AM

Fatigue can be so debilitating. I hope you find something that will work for you.

Learn to pace yourself was the best advice I received. My brother was in neurological research for many, many years including MS. He was the one that talked to me about pacing myself as when I do have energy I go like a bat out he!!. There's no stopping me. I am slowly learning to pace myself but it is hard, especially when I feeling good.

Good luck with everything. You are not alone in what you are going through and we are here for you.

Fin - That is me to a T! lol.

D_HOLLAND 01-24-2008 08:55 AM

Prayers are with you. This MonSter can be so cruel!! Hang in there, it will get better.

MooseasaurusRex 01-24-2008 11:42 AM

One big, warm, tight, hug, handshake and howdy, moose-size official type welcome to the site.



Task Force Moose Protocol:

Retreat: Pull away and push back some of what is wearing you down. Multi tasking is over-rated. Allow yourself some leeway or concessions without slipping into a pity party. Accept that some things you can't change. Find those and let them go. Just excess baggage in this juorney through life. Who needs it?

Regroup: You weren't specific but that's OK. There are always positive options in getting help. ---Sometimes you can get so low you can't see it and just want the pain to go away. Trust me. I have been there.--- Coming here is a great first step in getting help. Make small changes you can live with and a plan you can enforce.

Reload (My favorite part). Putting the plan into action and watching the results. Making lists and keeping a journal has helped me a lot. If for nothing else, to get the emotions out.

None of these steps are to be rushed.
I hit rock bottom 6 Oct 05. Two years after diagnosis, I had become a worthless drunk. Turned to self medicating as it were. DUI, MANY broken bones, some didn't heal right. Three months in 2 different hospitals.
Lost almost everything.

I share this so you know I'm not blowing smoke. And never forget...

You are not alone.
You are one of us.
And we are here to help.:):D:hug:

kicker 01-24-2008 11:57 AM

[QUOTE=MooseasaurusRex;195424

Retreat
Regroup
Reload





WELCOME!!!



MOOSE, YOU MADE ME FEEL BETTER AFTER A BAD START TO THIS DAY. THANKS.

sugarboo 01-24-2008 12:07 PM

So many have given you such good advice, I just wanted to say Hi and hope you feel better soon. Being newly dx'ed, I'm sure the stress level is pretty high too....hang out here more, and I think you'll get more relaxed...

None of us are as smart as all of us!!

:grouphug:

Annelee 01-24-2008 12:21 PM

Friend,

One piece of advice that may not make you very happy, but try to avoid the roller coaster of refined sugars.

I have learned that my system is so sensitive to sugar now. I used to just start grabbing for sweets and salty foods. Try to keep your blood sugar steady. If you get a hunger rush eat almonds, fruit and raw veggies.

I am doing so much better when I avoid processed foods, even sugary salsd dressings.

Please let us know how you are doing. We do all care. :grouphug:

We may all be in the same boat, but we don't have to sink the ship!:Sinking:

Jodylee 01-24-2008 12:35 PM

Hi! You've gotten a lot of sound advice from many. I just want to let you know you are not alone. :hug::hug::hug:

lady_express_44 01-24-2008 12:53 PM

The first year after dx is a very emotional time, and the grieving/adjustment process alone can be exhausting. After you you have 'some' sense of acceptance, the fatigue may let up.

Not everyone has fatigue as a symptom, or at least not a major one, in the long run.

In the meantime, you need to pace yourself. For some of us, that means doing more one hr or one day, then taking it easier another. For some it means that ALL they can accomplish in a day is working.

I learned to manage my pace, and it worked for 14 yrs. When the MS became a full-time job, ie. I couldn't even squeeze in 6 hrs of work, even though I worked from home on flex-time, I knew I had to leave the workforce.

The more stress you are under too, the more fatigue will be a problem.

Cherie

Friend2U 01-24-2008 07:10 PM

What great advice from you all. Kebsa, you said "just remember this is not something you can power through if you try hard enough"... this SO hit home for me. Talk about a reality check. This "barrel on through it" mentality is exactly what I have been doing for the last few years. When I look back on it, now I see how it has just gotten worse and worse. I guess, I have some major readjustments to do, right now.

I am just so wrung out right now that I can stay on. But EVERYONE I feel I've found new friends who really understand. I humbly thank you all. Wish I felt like chatting with each of you. I'll say a prayer for you and will welcome the same. I feel guilty even making this thread "all about me". That's just not who I am... I send you all my blessings. I'll check back another time. Thank you.

Friend2U 01-25-2008 08:42 PM

Retreat
 
Hello EVERYONE! I want to get to know all of you and maybe I can be a good friend like you are all being to me. It will take time... I'm kinda slow... I want to learn about each of you.

for now... MooseRex, What sound advice. THANK YOU for explaining your background. I like what you had to say. And I like the way you said it! ... love taking things one step at a time.... doesn't seem as overwhelming. I am now working on "retreat". Left work at quitting time today! :) This use to hardly never happen. I'm trying... I'm planning a relaxing weekend and some think time.

No, I'm not too good with my own details. But given time... maybe will let my guard down....

Thanks for your "official like welcome" and the hugs... Have a good weekend!


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