Just a little informal poll. My brain is clear (with the exception of a large calcification on my pons) and I am waiting on approval from insurance to do a C-spine MRI.

My symptoms range from tingling, shock feelings, burning of the extremities at night. Pins and needles feeling of my feet when I first get out of bed. Cramps, twitches and poor balance and coordination. I have a hyper reflex on the right knee, and most of my issues are on the right side, with the exception of the tingling/crawling feeling. That is my whole back and scalp. I also have extreme fatigue and muscle fatigue with tremors upon doing anything other than relaxing. Walking, cleaning, writing, holding the baby, etc is very hard for me.

I am sure there are more things I am forgetting, but those are the biggie.

DX: as of now is "Possible MS" based on neuro exam and history. Testing is all coming up withing the month.

I actually have one very large lesion, old not highlighted, in my frontal lobe that my neuro feels could have happened between birth and a few years ago...it could be the cause of my constant migraines...otherwise I have NO lesions...only apparent damage...

I presented with Transverse Myelitis so I have leg issues...I cannot walk further than 1/2 block before my legs start to tingle and buzz, walk a little further and they start to feel like jello and not like my legs. So I stop and look at things a lot so I can do the shopping...takes me forever but I can get it done. I refuse to use the disabled motor cart...I will when I can no longer walk.

My legs constantly vibrate, mostly my left leg, and I have random rotating numb spots. I have sharp, excruciating pain in my mid-back, bra-strap area, that requires a lidocane patch and a 1/2 darvocet or sleep to go away. I have sunburn like skin pain on the backs of both arms, my upper back and neck area...air hurts. I get occasional pin pricks of pain on my arms and hands. I have tingling/pins&needles on the left side of my face, my forehead and the top of my head. I feels like goosebumps without the actual goosebumps...pretty constantly throughout the day. The face stuff is really annoying, feels like a breeze sometimes has passed over my head.

I had optic neuritis last October and lost vision briefly in my left eye. Ever since then I have eye pain in both eyes randomly and sometimes for days at a time. They are more dry then they used to be and get super duper red after a short nap.

I am clumsy and bump into walls from time to time and get dizzy spells now and again. I keep forgetting simple things and have trouble concentrating on occasion.

I have two.

Both on my spine. One is at C4 (around the neck area) and the other is at T12 (somewhere near the middle of my back if I've read the diagrams of the spine correctly)

I get numbness in my extremeties randomly. It moves around, but stays mostly in the thigh area, but it's wandered all over my body at times.

I dont have any MRI evidence of this one, but I've had one episode of optic neuritis, MRI didnt show any obvious inflammation, but my eye doctor and neuro both said I must have a lesion on the optic nerve somewhere.

My ON started in August of 2006, in the left eye. It's pretty much resolved itself, but starting last summer I began to get weird little ON-like symptoms in my right eye too. The eye doctor said that I probably had some optic neuritis in that eye too. I didnt get an MRI for that one.

When I did get my brain MRI in August of 2006, they did see a few little "spots", but at the time, they said they were not indicitive of MS, so I dont know for sure if those little spots are actual lesions.

Have you been checked for Devic's Disease?

My symptoms have been very similar to yours (started with TM), but I have bowel and bladder issues too. I haven't had ON though.

I gained a lot of lost ground with the use of LDN.

Cherie

i have 6 brain lesions, can't remember the locations. duh, did i say i have memory problems?

i have 2 c-spine lesions.

my feet are numb and i have a lot of neuropathic pain.
my left leg is really weak and i have a bad gait problem.
i can't sit, stand or walk for very long.

my spinal lesions give me bladder problems. but that's controlled with meds.

all in all i'm in pretty good shape. limited but going like the energizer bunny.

Brain
Cervical Spine
Thoracic Spine

Once they saw I was a staggering lesion farm they stopped looking!

Problems? Yes! Don`t know what is from what, and I can`t change it, so what!

Cherie,

I failed Mayo's NMO blood test, but since there is a 30% chance of failure on the test and still having Devic's...there is no way to tell for sure until I have another spinal attack. My neuro does not want to wait and see what new thing will attack. Since my tests lean towards MS, he is treating me for that. The moment my symptoms take a dive towards Devic's we will switch my treatments...never thought I'd be hoping for MS but I prefer a longer life span over Devic's predicted short one.

-rosie

Yeah, Rosie . . . I hear you loud and clear.

Cherie

I have one lesion in the pons. I have a lot of sensory problems in legs, eg: pins and needles, numbness, cold feelings, so hot it actually feels freezing, a lot of weird feelings that are hard to explain. A lot of memory loss, difficulty with critical thinking, hard time expressing myself, completely hearing something completely different than was said, same with reading. when i was dx I couldn't move my legs and feet at all unless I was sitting or standing. I will never understand that one! Since i have just the one lesion I am still dx as probable.

Oh, how could I forget, fatigue!

I have "at least 9" large brain lesions and one spinal lesion. I can't remember the locations atm. I think I have brain freeze from all this cold weather.

Lets see - a lot of sensory issues like tingling and numbness, the itching is driving me crazy right now (feels like my bones itch and of course the more I scratch the more it itches), icy hot feeling down the back of my legs sometimes, spasms and twitches, major fatigue, dealing with ON atm, weakness, etc.

Probably the weirdest symptom I have and it's due to the location of one of my lesions but I'm just not awake enough yet to remember, is the temperature of my hands. For years my hands had always been cold. After my initial exacerbation they stayed hot, and I mean so hot it's painful to my DH when I touch him and is very uncomfortable for me! I ran it by neuro who said it's due to the lesion and my body is rerouting the blood supply. Apparently the crossed wires are telling my body there's not enough blood flow to my hands so it keeps sending more there, making my hands hot. Strangeness!