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Old 01-25-2008, 01:59 PM #1
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Crazy I just need to vent, bear with me.

OK I have had odd things going on with me all my life (I'm 34) the past 10 years I knew something was not right. 9 years ago DX with fibro. The past 4 years I have thought it was MS, thats when the numbness started and things got worst (memory, speech, etc.). Anyway all this wasn't hard to deal with over the years but than Dec 27th I guess my body said No More, I was out shopping and my left hand when numb, no biggie it has done that before. Well it stayed numb a long time this time (before was never even an 1/2 hour) and I got very tired and even had to leave to store. By the time I got my food in the van I had to sit there and catch my breath. I drove over to have lunch with DH, I only got worst at time when on. I was now having presser in my chest also and just talking left me winded and light headed so off we went to the ER. Well lots of test later and no answers I leave and go home to rest.

The next day my legs go numb, well I'm NOT running back to the ER this time, lets wait and see what happens. So the next day while having dinner the numbness have moved up higher and I'm now numb from my thighs down (and still having the other issues) so we go back to the ER. Bt the time I get seen I'm numb from my lower ribs and down, again lots of test and no answers and told to see a neuro and off to home I go.

Well the numbness lasted 2 1/2 days, so over the next week it moved from all my legs to just the mid area to just my left hip to just my belly to gone than back to my left leg to gone. Than I get this burning pain in my left hip (I still have this now also).

A few days later a blood vessel in my eye breaks and off to the ER because my eye hurt to move it and had some vision loss, while waiting to be seen I get a migraine. Dr looks at me and said I was fine, didn't care about the pain of moving the eye or the sudden vision loss. Gave me meds for the migraine and sent me home.

I see the neuro and he runs more test including an LP. The LP was awful, he didn't numb me and had to stick me 6 times, he kept hit a nerve a few times. He pushed on my spine a lot and even had me move some once with the needle in my back. After a whole 10 minutes of laying there after the LP they send me home, 3 days later I get the awful spinal headache, off the ER the neuro said. I got the caffeine IV to fix it. But I must have picked up a bug while I was at the ER because I got very sick the next morning and was back in the ER the next afternoon.

Just as I get back on my feet I get a cold from my 3 year old, well this it's just a cold. There's an awful bug going around that is like the flu and a stomach bug all in one (the stomach part seams to only be a 2 day thing).
I go by the neuro for the results of the LP and after all the test come back tells me it's just anxiety! My MRI's were clear, blood work - OK, LP, well HE said it was OK.

Now here I sit not over this bug yet and still having the burning pain in my hip thinking about how crappy the past 29 days have been. I have been to the ER more the past month than I have been in my life.
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Old 01-25-2008, 02:36 PM #2
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Awww Julie I'm so sorry to hear what a difficult time you are having. I wish there was something I could say or do to make it better. Just know that you will be in my prayers.

Susan
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Old 01-25-2008, 02:45 PM #3
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Quote:
Originally Posted by suzyqz_2007 View Post
Awww Julie I'm so sorry to hear what a difficult time you are having. I wish there was something I could say or do to make it better. Just know that you will be in my prayers.

Susan
Thank you Susan.
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Old 01-25-2008, 05:45 PM #4
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I hope things will turn upwards for you....

bless your heart.
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Old 01-25-2008, 06:08 PM #5
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Quote:
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I hope things will turn upwards for you....

bless your heart.
Thank you Bird.
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Old 01-25-2008, 06:38 PM #6
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Hello Julie,
I'm SO sorry you're having a rough go of it right now, but I just wanted to let you know that we all have and that you have the MOST BEAUTIFUL CHILDREN!!!! Enjoy them, they are God's blessing. I hope you feel better lickety split!

All the best,
Chris
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Old 01-25-2008, 07:46 PM #7
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(((Julie)))

So sorry to hear you have been going through all of this!! I hope things start to look up for you!!
And your kids are darling! Love your avatar!!
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Old 01-25-2008, 08:21 PM #8
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((((((Momxseven))))))) You poor thing. That's enough stress, already. I hope it gets better for you, soon..
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Old 01-25-2008, 09:04 PM #9
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Hey MomXseven, so sorry to hear all you've been through. How rotten to feel rotten and then have doctors act rotten toward you. The good ole anxiety diagnosis. It's soooo easy for them.

Hang in there. Wait for the tide to turn. Try any and all ways to feel better--enlist other people's help so you can get some rest, do what you need to do for yourself.

I can't believe you were told anxiety about the eye symptoms, and although anxiety CAN cause numbness, what you had doesn't sound like that!

Just HANG IN THERE.

Nancy T.
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Old 01-25-2008, 09:41 PM #10
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Thank you all so much.
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Hi, I'm Julie and mommy to 7 little kids (ages 4 to 11).
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DX with Fibromyalgia, 1998
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DX with Food Allergies, wheat, sesame, fresh pineapple


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