advertisement
Reply
 
Thread Tools Display Modes
Old 01-26-2008, 05:45 PM #1
kicker's Avatar
kicker kicker is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
kicker kicker is offline
Grand Magnate
kicker's Avatar
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
Default Roll-Call-PPMS and SPMS

DXed PPMS 2003 after a year (2002) of being called RR so could at least ttry DMDs. Nothing helped of course. Tried Novantrone - made me throw up and didn't help. On the list to be tested to be in clinical trial for Fingolimod.
Maybe it'll help, maybe not. (slowing progression)

Anyone try Rituxin?? That interests me.
__________________
Kicker
PPMS, DXed 2002 Queen of Maryland
Wise Elder no matter what my count is.
kicker is offline   Reply With QuoteReply With Quote

advertisement
Old 01-26-2008, 05:53 PM #2
CayoKay's Avatar
CayoKay CayoKay is offline
Fabulous Belizean Member
 
Join Date: Jan 2008
Location: Belize
Posts: 2,508
15 yr Member
CayoKay CayoKay is offline
Fabulous Belizean Member
CayoKay's Avatar
 
Join Date: Jan 2008
Location: Belize
Posts: 2,508
15 yr Member
Default

SPMS, checking in.

dx ON - Feb 1988

dx RRMS - July 1993

dx SPMS - December - 2002

not on any DMDs at this time.

used Copaxone for 3 years, and Betaseron for 2.

quit Beta due to liver problems, quit Cop due to moving to jungle.

so, howya doin' Kicka Mom?
__________________
And the trouble is... if you don't risk anything, you risk even more. - Erica Jong
CayoKay is offline   Reply With QuoteReply With Quote
Old 01-26-2008, 06:05 PM #3
Ivy2's Avatar
Ivy2 Ivy2 is offline
Member
 
Join Date: Sep 2006
Location: here on earth
Posts: 190
15 yr Member
Ivy2 Ivy2 is offline
Member
Ivy2's Avatar
 
Join Date: Sep 2006
Location: here on earth
Posts: 190
15 yr Member
Default

SPMS
DX 1987
Betaseron - 3 mos.
Avonex -10 yrs.
Novantrone - 3 infusions
No DMD's now - all neuro offers to me now is Novantrone - the blue goo

OMG it's been a long time.
Ivy2 is offline   Reply With QuoteReply With Quote
Old 01-26-2008, 07:18 PM #4
NurseNancy's Avatar
NurseNancy NurseNancy is offline
Grand Magnate
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
NurseNancy NurseNancy is offline
Grand Magnate
NurseNancy's Avatar
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
Default

'03 RRMS
'07 SPMS

i've been on copaxone and started methotrexate a few months ago.
some days i think i'm a titch better but most days i think i'm the same.

same is good. i'm still mobile and holding my own.
__________________
Judy
trying to be New Skinny Butt
______________________
You are a child of the universe, no less than the trees and the stars; you have a right to be here.
And whether or not it is clear to you, no doubt the universe is unfolding as it should.
--------------------------------------
"DESIDERATA" by Max Ehrmann
NurseNancy is offline   Reply With QuoteReply With Quote
Old 01-26-2008, 07:21 PM #5
AfterMyNap's Avatar
AfterMyNap AfterMyNap is offline
Wise Elder
 
Join Date: May 2007
Location: Right here. Duh.
Posts: 9,213
15 yr Member
AfterMyNap AfterMyNap is offline
Wise Elder
AfterMyNap's Avatar
 
Join Date: May 2007
Location: Right here. Duh.
Posts: 9,213
15 yr Member
Default

1980
2007 SPMS
No DMDs now
Did Beta 2 years
Cop. for 6, quit it 7/07
No notable differences.
__________________
—Cindy

For every day I choose to play,
I set aside a day to pay.
—AMN


"Sometimes plastic wrap just won't cling, no matter how much money you put in the meter."

—From the Book of True Wizdom
AfterMyNap is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DVORA65 (08-26-2011)
Old 01-26-2008, 07:24 PM #6
Nevada Leftie's Avatar
Nevada Leftie Nevada Leftie is offline
Member
 
Join Date: Jan 2008
Location: Hudson, Florida
Posts: 145
15 yr Member
Nevada Leftie Nevada Leftie is offline
Member
Nevada Leftie's Avatar
 
Join Date: Jan 2008
Location: Hudson, Florida
Posts: 145
15 yr Member
Default

I was diagnosed with PPMS in February, 2003.
I don't take any medication for my MS.
I take Flexeril for my spasms, Neurontin for my pain, and sub-lingual B12 for my B12 deficiency.
I also have a peripheral neuropathy and consequently it is difficult for doctors to figure out what symptoms are attributed to MS and what symptoms are caused by my neuropathy.
__________________
Hugs, Rachael
.

It's not enough that we do our best; sometimes we have to do what is required.
Sir Winston Churchill (1874 - 1965)

Diagnosed PPMS - February, 2003
Peripheral neuropathy - B12 deficiency
Nevada Leftie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DVORA65 (08-26-2011)
Old 01-26-2008, 08:21 PM #7
ernhrtfan's Avatar
ernhrtfan ernhrtfan is offline
Junior Member
 
Join Date: Jan 2008
Location: oklahoma
Posts: 18
15 yr Member
ernhrtfan ernhrtfan is offline
Junior Member
ernhrtfan's Avatar
 
Join Date: Jan 2008
Location: oklahoma
Posts: 18
15 yr Member
Default

diag 2004 spms had ms problems for 20 years pc dr said depression
rebif 2 years no help,beta same.
feel better -w- no meds,just pt
scott
__________________
Life is too short to wake up with regrets.
So love the people who treat you right.
Forget about the one's who don't.
Believe everything happens for a reason.
If you get a chance, take it.
If it changes your life, let it.
Nobody said life would be easy;
they just promised it would most likely be worth it.'




"Drive it like ya stole it"
Dx spms 2004
ernhrtfan is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DVORA65 (08-26-2011)
Old 01-26-2008, 08:30 PM #8
TheSleeper's Avatar
TheSleeper TheSleeper is offline
Member
 
Join Date: Jan 2008
Location: About 35 miles southwest of Cleveland Ohio
Posts: 499
15 yr Member
TheSleeper TheSleeper is offline
Member
TheSleeper's Avatar
 
Join Date: Jan 2008
Location: About 35 miles southwest of Cleveland Ohio
Posts: 499
15 yr Member
Default

First sign of illness Feb. 2003(dx`ed with Mono April 2003)

Dx`ed with PPMS around March 2006. Said no to the limited treatment options offered.

Provigil to try and stay awake, Baclofen to stay limber!
__________________
ditched the witch
.
TheSleeper is offline   Reply With QuoteReply With Quote
Old 01-26-2008, 08:50 PM #9
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

DX in 1976...in remission until 1992..DX again RRMS. A few years later I tried Avonex for 7 months and Copaxone for 10 months....progressing right along. Reached SPMS around 2001/02. Progressed myself onto a walker, then scooter. In 2003 I started LDN and immediately stopped progressing. And here I is..

I'm doing Ok. I took Paxil and now Prozac for Anxiety and depression and LDN and that's it. I have a little spasticity and some weakness in legs and arms ( mostly on my left side), no chronic pain...just the usual aches and tingles.

My biggest complaint is that I grew old with this @#$#^ MS and that was not in my plans.

__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
Old 01-26-2008, 09:43 PM #10
janlici janlici is offline
Junior Member
 
Join Date: Jul 2007
Posts: 54
15 yr Member
janlici janlici is offline
Junior Member
 
Join Date: Jul 2007
Posts: 54
15 yr Member
Default

1979....dx'd with RRMS

1993.....2nd REPORTED exacerbation; still RRMS

1996.....Copaxone; stopped after 4 months due to lots of the immediate reactions. Avonex next for 3+ years with a Methotrexate chaser (I was actually on the MTX 6 mos. before starting the Avonex. Glutton for punishment that I am, I tried the Copax AGAIN in 1999 and lasted 11 mos. + 2 more weeks (almost a year) before telling my neuro that I'd rather be dead then take one more shot of that stuff!

Took a rest, but in between resting I tried Novantrone and a couple of Tysabri infusions. I progressed right through it all. Now I'm on Betaseron, but it's making me feel like **** even WITH meds to combat reactions.

I'll see my neuro in about 10 days. We're gonna be having another one of "our talks"

He still writes me as RRMS so I can get meds if I want to try them, but we've discussed it privately and he admitted that I am now progressive. Big surprise, huh?
janlici is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
hello out there -- new with PPMS bbarbick New Member Introductions 7 01-27-2008 11:29 PM
Nov.3/Roll Call~ Fancylady_2006 Weight Loss & Healthy Living 6 11-04-2006 12:08 AM
Roll Call Sat. Oct. 14~ Fancylady_2006 Weight Loss & Healthy Living 24 10-18-2006 12:40 PM
Roll Call!!!!! Kpryor35 Reflex Sympathetic Dystrophy (RSD and CRPS) 23 10-15-2006 07:44 PM
roll call coyote Alcoholism, Addiction and Recovery 1 10-12-2006 04:28 PM


All times are GMT -5. The time now is 06:34 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.