I hope the MS specialist appointment is not far away. It seems very clear that you have MS and will be dx as soon as you see a specialist (unless the lesions are another "type").

Take this time to read up, and make some decisions.

Good luck,

Cherie

Thanks Cherie. They said they'd be calling in the next 10 days but I'm going to call myself and get this ball rolling. Are you in BC or Washington State? I live in Vancouver but here in the states.

Good plan.

I am in Canada, just over the border from you. I love shopping down there and always pick up some Mountain Dew with caffeine (ours doesn't have it). :)

Cherie

The good news is
 

you are getting into see an MS Specialist. Can I ask why they haven't sent you to one before especially with the number of lesions you have?

An MS Specialist will be much more sensitive to viewing your sx in relation to your test results. I do want to share one thing with you though: Most MS doc's don't use Evoked Potential (unless it is Visual EVP) to diagnose MS. You may want to discuss this with him or her. My personal rule of thumb on tests have become: If you (the doc) cannot give me a GOOD reason for why I need it then I don't want to spend the money on it. Just my humble opinion.

To tell you the truth I'm not sure why they haven't sent me to the MS DR. before now. I do have Kaiser,not sure if that has anything to do with anything.Although I'm hoping they will run all the tests they are going to before I make the switch to the Trust insurance. Kaiser tests for me including MRI's etc.. are only $10 right now. Once I switch over to the other insurance I will have to pay 20%.I only have 3 months left with Kaiser so I hope they really get this rolling before it runs out. Thank goodness DH has the new company picking up our Cobra or there would be a 2 month lapse between insurance. The other blessing is that it is the same union but different locals,so there will be no pre existing condition wait time. That's the bright side here.
I'm soooooo very glad that I can come here for the support with my husband living so far away right now. I have to believe that the heavenly father is in charge,this house isn't selling because I need to be here where Kaiser is,(no Kaiser where we are moving). It is so tough without my DH.My wonderful daughter has moved home and is taking wonderful care of mommy. Thank you Jesus for daughters and my new friends at NT :grouphug:!

Ahhh.Beautiful BC ! I just love the Northwest , born and raised. The Columbia River Gorge here is so breath taking and I don't care how many times I drive down I-84 it just amazes me.

Good luck!! I wouldn't walk out of there without a solid answer on "what caused those lesions then?", IF they try to give you the run-around. I really don't think they will though. ;)

Cherie

Here's wishing you the best of luck with your appt. Make a list of your ???s so that you have them all answered. Let us know how it goes.:Good-Luck:

that's great that your appt is so quick.

i hope you get the answers you need. better to know for sure.
when i was being dx'd i knew about possible MS.
and when i found out i was still shocked. it was a blow.

i hope your appt goes well.
please keep us posted.