Very disturbing.

Go to your PCP and ask them to retrieve your file then. Then go in and talk it all over with him/her and get a referral to a MS Specialist if there are any in your area. I have to fly to Seattle if I want that....so good luck finding one in your area!!!

Hay how would you know if the LP was positive or negative? Just because to Dr says so?

Sorry I can't get off this. I just really feel there is more to my report and I can't find any answers.

When I get my results today, I'll see if I'm able to answer this question for you....at the moment, I'm clueless

I would demand in writing that the lab provide you with a full report of findings. That is what worked for me (lab had kept telling me to ask my doc, but they responded pretty darn quick after they got that letter form me.

Could your insurance company help you wth this? Or perhaps the nice nurse you spoke of? Just a thought.

You currently have three threads going, with pieces of information about your history, test results, etc. in each thread. I'm having a hard time keeping track of all the bits to the puzzle, so I thought I'd bring this posting over here:


I'm perplexed as to the reason that any doctor would even want to hold this information back, if he is. What purpose would this serve him (and you) to try to deceive you? If the results did come back indicative of MS (or something else), why do you think he would say otherwise, and hold back this piece of information from you?

The results that you have gotten back, about your MBP levels, etc. would not be diagnostic criteria for MS. Only O-bands and MRI lesions (of a certain type), plus neurological/clinical testing . . . and he is saying they are all fine.

My neuro (and doc) do not spend much time testing me in their offices either (5 -10 min, max), when I go in for my annual visit. They KNOW what to look for in a split second.

You are in limbo, and as I said in a prior posting, they will NOT give you a dx without the tell-tale test results for MS. It is frustrating, no doubt . . . but NOTHING you do will change that.

I have a good friend who I've known for 4 yrs (who's an occasional member here too) who has virtually the same results and symptoms as you. I told her then what I've said to you too. . . you will cause yourself considerable grief if you continue to pursue this right now. There is no evidence of MS, and until there is, there is nothing any doctor can do. Unfortunately, even WHEN there is evidence, there is often very little that doctors (and medication) can do for us.

I do think it is worthwhile to get a second opinion, if only to put your mind at ease. However, as I understand your history, this may be a second opinion (had one 4 yrs ago...?), so it seems you are just going to stay in limbo for somewhat longer.

I think you are stressing way too much about something that nothing can be done about. I understand why you would, TOTALLY, but worrying is not going to change anything.

Cherie

A thought:

send an email to the doctor and ask him to break down all the results. Ask him what the 'norm' is for each of the tests performed, and how it compares to yours....and if yours are not within the norm...then to explain what that means in laymans terms...so you understand.

I did, he didn't answer that email (I have to send it to the nurse and the nurse sends it to him and sends the answer back to her to send to me ) instead he called my DH and told him my LP was OK.
I came right out and asked him to tell me why the Lymphs were at 100% (should be 40-80), why the Monocytes was 0% (should be 15-45), why the RBC were at 12 (should be None Seen), why the MBP was high at 4.2 (should be 0.0-1.0) and if the -2.1 of the IgG rate really did indicate I could have just had a flair (it was in the normal rang of -9.9 - +3.3, but I had read that in a - range could indicate just having a flair).

Sounds like you've done all you can...and why did he call DH? Isn't that illegal to divulge a patients history/results to anyone but the patient? Unless you agreed to this.....

Guess it just goes right back to the PCP....or a new Neuro. I'd say you are still in limbo and have to get a second opinion. Maybe when you reach my age you'll have more showing up? Not that mine are giving me answers....but I have more showing now than I did then

I'm about out of here for my (drumroll) results.....

EDIT: If you asked him directly about thos results....he must have had an answer?

Good Luck on your results, hope you get real answers.

He didn't answer me, just called DH and told him my LP was OK.