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Old 01-30-2008, 12:57 PM #21
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Dump him quick and find another!
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Old 01-30-2008, 01:14 PM #22
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Dump him quick and find another!
LOL, This was my thinking.
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Old 01-30-2008, 01:39 PM #23
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Hey Julie - I've been following this thread, and I want you to know that I am so sorry that you have been "blessed" with such a neuro! I agree that you should find a new neuro (prob an MS specialist) pronto. And I do think that you should not take ANY notes at all from this guy you're seeing now...nothing to indicate anything from another doc. You might just want to take MRI films, LP results, bloodwork results, and a brief and detailed symptom list.

When I got dx'd it was quick, but since my dx'ing doc didn't prescribe DMD's (he felt they didn't work) I got some other opinions. Your doc sounds a heck of a lot like my second opinion (yes, I fired him).

I'm not any type of medical professional, but as I remember, if your LP shows RBC's it usually means that the doc nicked a blood vessel so there was some blood in the sample - not the best thing, but it does happen. Also, the myelin basic protein and IgG tests are two factors some docs use to dx MS...the specialist that I used to see relied mostly on MRI, IgG index and IgG synthesis rate.

OK, writing a book here, but I want to stress that an MS specialist is probably the way to go here...please hang in there, and keep us posted, OK?
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Old 01-30-2008, 01:43 PM #24
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Originally Posted by siualum View Post
Hey Julie - I've been following this thread, and I want you to know that I am so sorry that you have been "blessed" with such a neuro! I agree that you should find a new neuro (prob an MS specialist) pronto. And I do think that you should not take ANY notes at all from this guy you're seeing now...nothing to indicate anything from another doc. You might just want to take MRI films, LP results, bloodwork results, and a brief and detailed symptom list.

When I got dx'd it was quick, but since my dx'ing doc didn't prescribe DMD's (he felt they didn't work) I got some other opinions. Your doc sounds a heck of a lot like my second opinion (yes, I fired him).

I'm not any type of medical professional, but as I remember, if your LP shows RBC's it usually means that the doc nicked a blood vessel so there was some blood in the sample - not the best thing, but it does happen. Also, the myelin basic protein and IgG tests are two factors some docs use to dx MS...the specialist that I used to see relied mostly on MRI, IgG index and IgG synthesis rate.

OK, writing a book here, but I want to stress that an MS specialist is probably the way to go here...please hang in there, and keep us posted, OK?
Thank you, I was pretty sure the RBC was just blood in the sample, after all he stick me 6 times before he got fluid.
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Hi, I'm Julie and mommy to 7 little kids (ages 4 to 11).
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DX with MCS (Multiple Chemical Sensitivity), June 2008
DX with Food Allergies, wheat, sesame, fresh pineapple


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Old 01-30-2008, 01:52 PM #25
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If you are in the US, you have a right to your medical records. You will have to sign a release and then they have to give them to you. They might fuss that you need to get them from your doc, but in the end they have to give them to you.

I would call the lab and say that you are assembling records to take to a new doc and you need the lab reports. Then ask them to fax or mail you a release form. Even better is if there is an office you can go to in person to get the form filled out and signed. Was this done at a hospital? If so, there is a central medical records office you can go to.
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Old 01-30-2008, 02:06 PM #26
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Originally Posted by hollym View Post
If you are in the US, you have a right to your medical records. You will have to sign a release and then they have to give them to you. They might fuss that you need to get them from your doc, but in the end they have to give them to you.

I would call the lab and say that you are assembling records to take to a new doc and you need the lab reports. Then ask them to fax or mail you a release form. Even better is if there is an office you can go to in person to get the form filled out and signed. Was this done at a hospital? If so, there is a central medical records office you can go to.
Thank you, yes I am in the US (Texas). The LP was done at the Dr's office, still doesn't the Dr's office send file to a central medical records office of some kind? I was just thinking this is how we got most of our kids shot records after we moved. Maybe the immunization records are different.
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Hi, I'm Julie and mommy to 7 little kids (ages 4 to 11).
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DX with Fibromyalgia, 1998
DX with MCS (Multiple Chemical Sensitivity), June 2008
DX with Food Allergies, wheat, sesame, fresh pineapple


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