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-   -   Tysabri Information & Check In (https://www.neurotalk.org/multiple-sclerosis/37891-tysabri-information-check.html)

Riverwild 06-05-2008 08:15 PM

Quote:

Originally Posted by joellelee2000 (Post 293378)
I've had my 4th infusion and haven't noticed any real improvement in my symptoms, which is fine by me (I guess :)).

BUT I truly believe with all of the carp I've been going through lately, Ty is the reason I haven't had another full-blown relapse :D!

Joelle, if anyone would have had a relapse due to stress, you would have had TEN by now! I don't know how you have held it together these past few months. I hope things have eased a bit for you!!!:hug:

Jodylee 06-06-2008 04:25 PM

Quote:

Originally Posted by Riverwild (Post 293794)
Joelle, if anyone would have had a relapse due to stress, you would have had TEN by now! I don't know how you have held it together these past few months. I hope things have eased a bit for you!!!:hug:

Thanks RW :). My mom raised me to be 'one tough broad' LOL. I'm getting my sense of humor back and that is helping a lot :D.

Victor H 06-11-2008 12:42 PM

A short update:

Left leg is much weaker, and "wall-walking" is a common practice now.

Why?
It could be because I am starting another UTI, which make the most sense.

Solution:
Pounds and pounds of Cipro may do the trick! It usually does.:)

I am going to see my neuro-team next Thursday to keep them informed.

I bet by then the UTI will be over, my left leg will be better, and "wall-walking" will have decrease significantly. It usualy does.


-Vic

Jodylee 06-11-2008 01:59 PM

So sorry about your legs Vic. I haven't had a uti (lucky me :) ). I've heard how nasty they can be. Keep us updated when you see your docs!

Riverwild 06-11-2008 06:11 PM

No UTIs here either, Vic.

I've never had a UTI, but it sounds VERY unpleasant! I hope your take on things is correct ( as it usually is!) and that things resolve after the Cipro!

Let us know how it goes! We're pulling for you! :)

ewizabeth 06-11-2008 08:33 PM

Sorry about the UTI Vic. I've had them a few times in the past and they sure aren't any fun. The last time I had one was when I was tapering off of high dose steroids with prednisone pills. When I get an infection, walking is very difficult for me as well. I thank God I don't get them more often.

hotfoot 06-12-2008 05:53 PM

Vic,

I have appreciated reading your posts, so even though I don't know you, I hope you're doing better soon.

4boysmom 06-15-2008 04:49 PM

I have a question for you long-term Ty users. I never missed one of my interferon shots, and set that as a goal for my Ty use.

My next infusion is July 2, which would put my one after that on July 30. I won't be around that day. It is my extended family's big yearly vacation, and I will be camping starting on the 30th through Aug. 5th.

It is not an option to leave for the trip later. That is not my question.

If you were me, would you postpone the July 2nd shot until July 7th (next time clinic is open) and then just be a couple days long for the next shot (Aug. 6th) or just have the July 2nd shot, and then do the next one 5 weeks later, rather than 4?

Any input would be helpful!!

Victor H 06-15-2008 09:13 PM

Quote:

Originally Posted by 4boysmom (Post 301906)
If you were me, would you postpone the July 2nd shot until July 7th (next time clinic is open) and then just be a couple days long for the next shot (Aug. 6th) or just have the July 2nd shot, and then do the next one 5 weeks later, rather than 4?

Any input would be helpful!!


I don't think that missing the infusion date by a short period will be a problem, but I suspect that your following infusions will be scheduled from that point onward (i.e. every 28 days from the infusion date).

-Vic

4boysmom 06-16-2008 10:04 AM

So, just putting it off for a week and having 5 weeks between rather than 4 will be okay?

I guess I should probably just ask my neuro what he'd prefer. And chances are good I might not be able to reschedule the Jul 2nd one until the 7th anyway. So I'd just have a five week between infusion 4 and 5. Hopefully that won't make me dead the whole week of vacation!


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