Tysabri tidbit
 

The price of Tysabri is going up.

As of June 28, 2008:

The new price is $2295.16 per vial for a yearly price of $29,837.08. This is the wholesale price. Previous wholesale price was $2228.31 per vial.

Tysabri in the news
 

Tysabri in the news in Vail, CO.

http://www.vaildaily.com/article/200...rentprofile=-1

Dr. Weiss is my neurologist!!!! And the Vail Daily is the sister paper to the one I write regularly for up here in Summit CO!!!!!

Actually, I also write sometimes for the Vail Daily too...

And yes, if all goes well with my new insurance I'm to start Tysabri with Dr. Weiss this summer. He and my PCP up here are both big advocates of the drug and both offices give the infusions, which is very helpful to those of us up here in the Colorado High Country who have MS.

Dr. Weiss is a wonderful, wonderful doctor. I truly believe he saved my life when he diagnosed me back in March, after I had had 20 years of illness with Lupus and Crohn's--and then, increased and worsening central nervous system involvement...

Great article about a great doc. don't know how I missed this one, seeing that it's from our sister paper. I'll have to mention this "cog fog" to my editor when I call in!

Thanks for sharing! :hug:

I am sure that it will go well for you!

Keep us posted.

-Vic

Hi Vic, Thanks for remembering my upcoming date with Tysabri! I will let you know how it goes after the infusion tomorrow. Surprisingly, I'm not too nervous. We shall see how I feel, though, once I am sitting in the waiting room tomorrow at 2:30 pm. :wink:

Good luck, Natalie...:hug:

Natalie,

Hope all went well today! Looking forward to your report!:)

oh darn! I wrote something and it got erased. So let me try again.

I made it through the infusion with very few problems. Whoohoo! :yahoo:
I celebrated with some Texas barbecue.

The nurse was rough and made the IV hurt. A young girl sitting next to me getting Tysabri gave him a lecture on not forgetting to let the alcohol dry before he stuck me (she says it hurts) and not helping the "new patient" to relax. :)

I'm feeling tired, a bit dizzy, and spacey like I'm on heavy drugs (not sure if this is the Tysbabri or the benadryl??) But other than that no obvious side effects.

I will be going to bed early...glad the day is almost over.

Just wanted to share some information I discovered for anyone who is nervous about starting Ty and worrying about PML. (I posted this on another thread on Stumble Inn). I had my first infusion a few days ago. I am still worrying about the risk of being on this drug but what I have come to discover is that for those who cannot tolerate interferons or copaxone a lot of the alternatives have risks too. For example, I just found out that 17 people have gotten PML on the drug Cellcept. That drug is being prescribed off label for MS. It is being used in a drug study at my MS clinic too!! So Ty. isn't looking so bad compared to Cellcept. :) Rituxan (a chemo drug) that is prescribed for MS off label has had a few cases of PML too (people who had lupus). So the fear mongering about Ty. could easily be directed at these other drugs too. My sense is that because the PML reports came out when Ty. was SO new that it got a lot of press. And the best thing about Ty. is that the side effects are WAY more tolerable than something like Cellcept or Rituxan. In fact, a lot of people don't even have any side effects. I am super sensitive to meds. and I noticed nothing during or after the first infusion except for some mild fatigue.

About cellcept see http://www.medscape.com/viewarticle/576907

Tysabri Progress So Far: