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I just wanted to mention that I was approved for tysabri through the TOUCH program and insurance in three days. I was kind of shocked at how quickly it went. My tysabri is sent through a speciality drug company. I have only been contacted once by the TOUCH program so they do not seem to follow up very much compared to Shared Solutions and Lifelines. Although I must admit that sometimes the other companies called too much and were a little annoying. Shared Solutions still will occasionally call me to see how I am doing. I did like the fact that the other two companies would hold teleconferences and publicize them. I have never received any literature from the TOUCH program -- just an on line survey.
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Thank you again!!
Thank you again everyone! River - are you currently taking Tysabri? I went back and read the first few pages of the Tys board...I think I remembered reading it all thru in the beginning - when I found this place...just needing to refresh my overly hole-y brain! How's the tys going for you? what # are you on? When you said that you went in front of the FDA to testify - it was to have Tys re-released, right? Av8r - from what I read on another thread - you are in the study for Tovaxin/TERMS? How is that going? I was looking into that - and think I might try it *if* Tysabri doesn't work for me. My big fear with a study is that I'd only get the placebo - and that just seems risky to me. But I figure it is just a 6month period where I wouldn't know for sure...then a year of open-label. Anyhow - how long have you been participating in TERMS? Is it once a month? Does it involve more than a day? Closest center to me isn't so close - but I have a good friend who lives in Berkely - and it's only an hour flight for me - so if this all looks promising - I might strongly consider it. I just requested info about it. Can you share with us your experience so far? How many treatments have you had so far? Thinking of that post about worms. Would I do it? If the results were promising, yeah, I'd have trouble actually getting it into my mouth (bad gag reflex here)....but...well....I would do it. Have already made the vow that until I know there is no hope (for me in my situation), I will travel the world and try anything. This MS crap isn't going to take me down. nothing I have experienced in my albeit too long yet short life has taken me down - and as of now until I have further proof that it is hopeless for me - I am not letting MS take me down. That doesn't mean I don't often feel like waving a white flag - it just means that the flag is there - it is always an option but one that doesn't need to be activated yet. Worms don't sound do bad. Besides - it isn't even a needle!! Besides - couldnt we dope ourselves up before chugging them down? ;) Then throw it in a fruit smoothie and suck it up! I'm feeling goofy. Should really be prepping myself to deal with infusion centers and neuro tomorrow (re: authorization from BS). fun fun! ~Keri |
Wow! I've just spent the afternoon reading this entire thread--all 17 pages--because I've just been approved for TY. I am 99 and three-quarters percent absolutely as gung-ho on it as both of my doctors are---but I just have that nagging concern, which is a good thing, because it's making me read everything I can find about it!
I have Crohn's as well as MS--which was just DX'd last week--and both my doctors are very enthusiastic about my being on TY. I'm not expecting a silver bullet, but if it will just stem the progression, then any alleviation of symptoms would be icing on the cake! :p I'm supposed to get that magic phone call this week with all the insurance info...then my neuro wants to do another brain MRI before we start, so we can do a "before-and-after" comparison. My PCP is all ready to order the first infusion, so now it's up to me to make the final decision....and you guys are really helping with all this great information!:Thanx: |
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So Upset!
thank you - RW and Cheryl.... Well - another day - another piece of crap for me... I called the infusion place yesterday. Left message for office manager - that was 10am. By 2pm, no response - so I called back - and then I get told that she isn't even in that day. Fine. I wait to hear from her this morning - and nothing. So I call at 11am and leave another message. Nothing. Call at 2 - was told she was in meeting - and I asked why she hadn't called me back yet - that this just wasn't right, ya know. 4:45 rolls around and still NO word. I call back - trying not to be a pain - but is it me - or is this just absurd?! I'm told she is on another call - I say I will wait - it was 4:50 at this point - and I had a 5pm client coming in (I'm actually a therapist!)....she finally picks up the phone and was sorta rude to me - but okay, fine, maybe I deserve it. She proceeds to tell me that I'm not going to get the tysabri any time soon - that is a long process. :confused::eek: I take a deep breath and ask her to explain that to me. First she says that she hasn't received my medical records and she needs those before she can even order the meds. Um - doesn't TOUCH do this? She told me that my doctor should have known - and I was like what the heck are you talking about?! She tells me I have to have an appt/consult with the doctor there....that is when I realize this isn't an infusion center, but a doctor's office - and this doctor thinks I'm becoming his patient or something?! I don't get this at all. I do know that some people have their infusions at a doc's office and I'm fine with that....but why does it seem like everything is wonky in my case and no one is on the same page - or even in the same book - as each other?! Then she says she can first order the meds AFTER that - AND that is takes 2-3 weeks for the meds to arrive!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! :mfr_wha: She also tells me that in the past - she'd have appts set up with people but would have to cancel b/c the meds didn't arrive or whatever. :confused: At this point, I'm trying to breathe - but I'm becoming more and more upset by the millisecond. I say - okay - fine (thinking in my head that I will check in with you guys to see if that is a reasonable thing - or is it absurd - and if it is unusual for it to take that long - I can get on the phone with the pharmacy and get the meds there sooner. So I agree to make appt for consult - she offers me a Monday or Tuesday - and I say it has to be a Friday...then she tells me - but btw, we only do Tysabri on Monday and Tuesdays. By now - I can barely breathe - am looking at clock - thinking there is no way that I can see a client in this position and I'm about to break into tears - :Sob: all the oxygen has been sucked out of my office. I ended up telling the woman I'd have to call her back - I think I'm going to have to go to another center. BTW - the center near my house said if I needed to go there, I wouldn't be able to get an appt for several weeks....they are pretty busy. That I understand - so I get the "full" thing a little better now. Is this normal? TOUCH people knew I needed to have my infusion on Fridays. They said no problem - and they knew I was expecting to start the end of this week - and they told me a few weeks ago when all the crap was happening that it wouldn't be a problem - once they had the info from the doc it would be easy once I had infusion center, etc. etc. does anyone know what is going on? I don't know if I want to scream or cry or slit my wrists or what.... but the stress this is causing me is just putting me over the top when I already feel so awful. No amount of anti-depressants is going to make this okay for me. Here I am - practically fighting and begging to get on a med that may kill me or make me yellow or who-even-knows-what.....don't these people get that I'm SICK - and that is why I want treatment?! It's not like I'm dying to be hooked up to an i/v....it's not like I am looking forward to my horrid 20% copay....it's not like I want to be sick with side effects.....This isn't a choice for me....do they not get that??? Because it was already 5pm, I didn't have the chance to call TOUCH - which is probably for the better - b/c in the place I was at - well - it wouldn't have been pretty. Maybe tomorrow morning I will be calmer - but doubtful - I do terrible at nights - between the physical pain and headaches...I get little sleep - and now with this stress and upset.....I know I'm in for a long night....and I just don't know what to do. At a certain point - tears don't do anything, do they? I feel like typing, "Please, someone help" :Help: But there really isn't anything anyone can do. I'm sorry - I don't mean to be asking for pity or wanting to be in a pity party...I don't think that is what it is :nopity: and I don't mean to babble and yap :Talkative:. Please forgive. :sorry: ~keri |
I am sorry you are having such a tough time getting everything set up. I do think you need to take a deep breath. It sounds to me as if your neuro's office who first ordered the tysabri is really disorganized or in other words screwed up. They should have scheduled the first appointment for you at an infusion center and followed up on everything. It sounds to me as if they have not dealt with prescribing tysabri very much. I imagaine it probably does take 2 to 3 weeks after you are approved for the first infusion to be set up. I know I was approved very quickly, but there was a 4 week period between my last copaxone injection and the first infusion. During that time, the nurse had to contact the speciality drug company a few times, etc.
I know that my infusion nurse still has to call my speciality drug company every month to remind them to send the ty and she insists they deliver it on the Friday before my Wednesday infusion. I don't have a whole lot of choice on my infusion days or times. So far I have had an infusion every 28 days exactly. My neuro now says he must be in the office (due to my problems) when I have my infusions so I may be limited even more if he is on vacation. Plus he only seems to be in the office on Tuesdays and Wednesdays. I am a professor so I esentially miss my classes and meetings on the days of my infusions and take a sick day. I don't really have a problem with that but I understand others may not have the same benefits or flexibility in their schedules. But I do think you need to understand that they are going to have to schedule you around everyone else who is already receiving tysabri and that many centers may only offer tysabri on specific days. |
You are getting the royal run around Keri. I just sent you a PM with some information.
Let me know if there is anything else that I can do to assist you. |
i was approved for TY a while ago just had to get my "before" MRI.. done with that now.. getting my first infusion on the 31st of this month.. id be lying if i said i wasn't just a little worried about the 1st infusion.. guess its just the "unknown" and all that stuff.. oh well.
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You will find it very simplistic. -Vic |
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Here is my Tysabri update after infusion #9. My graphs show that I have had 10 infusions, but that is because I made a mistake in selecting "0" as a start point rather than 1.
-Vic |
Good Luck Punk, I hope all goes smoothly for you..:hug:
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I hope your first infusion goes well, along with the ones that follow! Please let us know how it goes for you!:) |
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I don't think that it is an exacerbation, since it has been taking a while to get to the point where degradation is more pronounced. It may be the development of antibodies, the monthly UTI's, or stress-related (over-worked)...or a combination of all of them. My neurologist and I agree to stick with it until N=25, at which time I can draw some statistical conclusions. Prior to that, it may just be speculation about what is going on with me and Tysabri. I am more than happy to give it more time. -Vic |
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i was on rebif but stopped it on the 3rd of Jan... i was approved pretty quick for the TY it was just the testing my neuro wanted before my first infusion (blood work,MRI) that took forever.. i don't know how much blood they took but just when i thought i was done.. i would get a call saying "hey lets test you for this also just to be safe" better safe then sorry i guess.. but it did get old pretty quick.. |
I had my second Ty infusion yesterday. No reactions, but for some reason my neuro is now having everyone takeTylenol and Claritin before their infusions. I'm wondering if more of his patients are having reactions. Before my first dose, I asked him if I should premedicate and he said no. He also said then that too few of his Ty users had reactions to merit premedication. I'll ask him about this at my next visit. It seems a bit odd to me.
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Glad to hear that it went smoothly for you. Also I just wanted to know that I have been thinking about you and your family. You have been missed. :hug:
I would also be interested in hearing your neur's response since I am one of those having reactions. Hopefully, premedicating with benadryl iv will work for me. |
Just an FYI for those of you who were not around for the initial release of Ty, premedicating with tylenol and benadryl was part of the original protocol. I am wondering since it was on the market for such a short time (3 months), they didn't see any reactions. Now that's it been on the market for a longer period, they've seen these reactions and are going back to the original protocol. Just my thoughts on this...
Glad you are doing better Joelle and have had your second infusion. |
I'm in with my infusion appointment set at last. I go in 3-18 at 10am for my first. I thought it would be another 2-3 weeks b4 infusion, but my main nuero had a fit at the infusion neuro center and I'm in Tues. Now, I just pray nothing goes wrong and that ty works for me. I'll keep you updated on how things go. :hug: ~Sheena~ :hug:
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Still nowhere
Joelle - congrats on 2nd infusion.
Sheena - I am VERY happy for you!! That is great news - and I hope it all goes well. Well - just want to report that I'm still being messed around with by infusion center AND TOUCH people. As of Wednesday morn, I was told that my info was sent to another infusion center and that I should be able to get in within a week or so. So, I called this morning - told by TOUCH that it will be longer b/c now they need to re-apply for something at the infusion center re: my insurance. I asked if this was started and he said no!! Called infusion center - they told me they had NOT received my information or paperwork from TOUCH - and that they hadn't started anything!! At this point, I just started crying - that was at 11am - it is now 5:37pm and I've been crying most of the day. Unable to call TOUCH back b/c I'm afraid I might totally lose it with them. I nearly chewed off someone's head today. Had to cancel my work/clients because I just can't do this. I can't deal with this. Oh - and I had asked TOUCH would I need anything else - anything else I can work on, etc. They said NO. Infusion center said otherwise - that they needed all my medical records, etc...but they weren't even going to request them until they had my paperwork from TOUCH. I called my neuro - and asked them to go ahead and send my records now instead of waiting. They said they would...but I guess we'll see. I'm besides myself. I really don't know that I can do this. I don't have this fight in me. I cry every time I speak with TOUCH. Well, first I get aggravated and angry, then I just feel defeated. What is amazing in - this isn't even b/c of insurance stuff! Still can't get MY case manager on the phone at TOUCH. I have a friend in my telephone support group who filled out her T paperwork two days before me and she had her first infusion last week!! The stress of this is just putting me over the edge. Actually, it's more than stress - the upset and everything else. Like I said, I don't have this in me - I can't fight the MS and the drug company! I'm too tired - I'm stuck in this exacerbation - and rather praying it is an exacerbation and not just progression. I haven't felt half of my head since Dec 22. The other symptoms also stink - and I don't mean to complain :nopity: but I don't know how to do this any longer - or if I even can. I'm beginning to wonder if I'm imagining all of these calls that I'm making? Am I speaking English to these people? Do they understand a word I say? Maybe this whole MS thing really is a bad dream? I just feel so done already. keri |
Keri
Oh for cripes sakes. I still cannot believe what they are doing to you....use those email addresses I gave you and shoot off an email. This has gone beyond ridiculous. Don't be messing around with your case manager...ask for a supervisor. And don't take NO for an answer. Your case manager is obviously NOT doing his job. He should be fired. I have a partial list of authorized infusion sites and Biogen Reps. I need to know what region you are in ... |
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Keri!, This has gone beyond anything I could take. I would be screaming at everyone on the phone too! I hope you know we did what we could to bring you to the attention to the proper people. As Av8rgirl said- USE THOSE NUMBERS! I did get a reply saying your info was being forwarded to someone who could help you, but obviously it hasn't worked if you haven't heard from them! |
tysabri
hi, i was just wondering how the tysabri is working for you. like with changes and with side effects.
i am suppose to make a decision between tysabri and copaxon and i dont know what to do so i am looking for info. I have to say that the pml really scares me. did you feel this? Thanks |
Okay, I filled out my TOUCH papers today. I just had an MRI and bloodwork, so that shouldn't hold me up. My nurse said she'd fax off the stuff on Monday, and hopefully be approved sometime next week by TOUCH. Then they'll work on my insurance.
I just hope this is the right move! After a year on Avonex, more lesions. After the next year on Rebif, no new lesions, but I itch all the time, am tired all the time, and get frequent head-aches. Not a lot of MS symptoms. Never had steroids. Just a tingly left hand, weird left side flutters (that have since passed) and lesions on my brain! |
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If you go back to page 1 and read through this thread from the beginning, you can read how people are doing on Tysabri. Everyone's different and there's a lot there from each side of the coin. As for PML, over 24,000 people are on Tysabri now and no cases of PML have been seen in Tysabri given alone. Only you can decide what your risk tolerance is. Read the thread and then ask specific questions, there's a lot of folks who can help answer them!:) |
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Good luck! Let us know when you start!:hug: |
Keri
I called Biogen today. No return phone call. Guess they all went home early today/Friday. I hope you don't have to wait much longer or continue to get the run around. 4boysmom - Keep us posted on your progress! Cjohnston - I can only reiterate what Riverwild posted. No PML has been reported since Tysabri has been released. And there is only one MS case in all...and he's still alive....and that was in the combination trials. Ask questions, that's how you gain knowledge! Knowledge is power. ;) |
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You know I always love your charts are you posting them on the other site as well? Hope your lines go back up again. Keep us posted please. Chris had #4 and although I don't see much improvement we are blessed that things have stablized somewhat |
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The other site will not let us postattachments anymore, so I have resorted to written descriptions of my Tysabri performance. I hope that you and Chris are doing well. -Vic |
My 1st tysabri infusion on Tuesday
Ok, I'll tell the truth. I almost backed out; I have no idea why but I just got in a big panic this morning. I called the center and cancelled. I was crying and just a total mess. A few min later the nice lady who gives the infusions called. We talked for a while and the panic went away. I guess I just needed to vent. On to the infusion.
My appointment was resechuled to 2pm. I took 2 benadryl and 2 tylenol at 1:30 before I went in. I went in at 1:45 and got called back at 1:50. They got it on the 1st stick but it kept hurting so they tried another spot. Yep, a rolling vein. We decided not to dig and went to a 3rd spot. Great all was well. The sticks are nothing compaired to MS, so no problem. The tysabri infusion took 1 hour and then they gave saline. It took 1 hour. I was in and out in exactly 2 hours. I really had no problems at all. I did get a tiny headache so I'm glad I took the tylenol. I was a tiny bit sleepy afterwards, but nothing big. We went out to eat then I can home and slept for 4 hours. I don't think I'll panic next time and I'm so happy I'm on this drug! It's now been 12 hours since the infusion so I'm fine. Oh, I heard some great news while getting the infusion. They have a man who was in a wheelchair that now can walk with a walker all due to tysabri! The good news about this Ty just keeps coming! I love this drug! |
Long overdue update!
Long lost update
I had my second infusion on March 6th. This time I had to go to the infusion center at the hospital. I seem to be in the 5% of people, who have adverse reactions, but I saw my Neuro today and he wants me to stay on the Tysabri. He said that sometimes it’s takes 6 months to see results and last time I was on, (which seems like forever) I read all your great posts. I’m still hoping! I have just felt really bad, fatigue is killing me. The headache wasn’t as bad the second time. They gave me 25mg of Benedryl thru the IV and started the infusion 10 minutes later. Sure enough, I start coughing and itching so badly they said they were going to put a seat belt on me. So they stop and call my doctor and he said 25mg more of Benedryl. He told them to keep me there and let me sleep it off. LOL, I must have been wired up, I just couldn’t fall asleep although my eyes felt like they had weights on them. I really hope my body gets used to the Tysabri. He put me on Zanaflex today, increased my Dexedrine and Lorcet. Every time I ask him a question or anything, he says oh you’re just progressing or gives me another pill. Sometimes I really feel I need to check out another Neuro. I’m almost scared to say anything. I’ve not been on the site in quite a while. Does anyone feel if they stay away from “MS Stuff”, that MS will go away! Go ahead feel free to tell me I’m nuts. Or maybe not think about it all the time. I still have very high hopes for Tysabri. I am so thankful this isn’t weekly like Avonex!!! My skin would fall off from scratching!! I hope everyone is doing great and look forward to reading all the updates. I saw the trouble someone was having with MSActiveSource, or TOUCH. I called them right after my first infusion with a question. Never heard a word back, then I get a letter from them Saturday, welcoming me to the program?!?!?!? :confused:And the Avonex people called me the other day checking on me. I used to complain about them calling me constantly when on Avonex, I will never complain again! Sorry sooooo long! |
Congrats Sheena
Hi Sheena- I'm so proud of you for going thru with it!! Congrats. Glad it went smoothly. I'm also jealous at how fast your process to get the Tysabri went for you! Macia - it might be me you read about who was having trouble. I'm hating the TOUCH people. Actually, I'm hating everyone and everything right now. However - I'm sad to hear you have such problems with the Ty - and I admire your willingness to keep going with it. Also - why don't you go for a second opinion - it sounds like doc isn't always listening to you? Well, everyone - I'm still struggling to get the Tysabri. I haven't been around here b/c I have been SO depressed and upset since last Wednesday. The runaround from my doc's office and the infusion centers and TOUCH just made it all so unbearable for me. I finally just let go and didn't do anything b/c I couldn't handle it. I don't have the energy or fight in me - and really, I planned on calling it "quits" permanently, so to speak. Thursday I was so close to just ending it all. I'm still struggling with this - but made an agreement on Friday night with my two close friends (basically they are my family and all I have in this world) - that I would wait and try the Tysabri once and see how it goes before making any "decision" about my life. Well, on Friday it semeed that TOUCH had found me an infusion center that would be able to take me this century ;) and paperwork supposedly sent off to my insurance company. I was still totally depressed and a wreck - but just kept hanging on. Had a lousy weekend - and Monday rolled around and it all started again - got a letter from my insurance company - who said they wanted further explanation of why I haven't tried the interferon treatments - and if it was contraindicated, they wanted to know why. Well - this should all have been in the stuff my doctor sent over. I called the doc - and they were unhelpful as usual :( I made it clear that the doctor needed to have a letter written to the insurance company ASAP. Called on Tuesday - he hadn't done it yet - but they actually put me on the phone with him. He said, "Oh, i thought i did that all when I sent it in?!" - I told him the insurance company wanted further information. The interferons are contraindicated for me b/c I have a history of VERY severe depression and none of my docs think we should even risk it right now. So, the neuro said he'd write the letter. Fast forward to this morning (Wednesday) - and I get a call from someone in his office who says, "Dr. W has written the letter, where do you want me to send it?" And I'm like WTF?!?! You got the same letter from Blue Shield that I did - you're supposed to fax it to them! She said she would. Thirty minutes later, I get a call from someone else in the office who says that Blue Shield just called to tell them I wasnt approved. So I asked her if they sent in the letter via fax to them - and she had no idea what I was talking about - even though it was she that I spoke to on Monday and yesterday about this!! I refreshed her memory and she said she'd check. she told me that BS said I'd have to appeal - so I asked her if they would help me with the appeal, etc. and she didn't have anything to say! I couldn't believe it. In the meantime, I called Blue Shield (aka BS) - and they said they didn't get a fax today - but that they received the additional information on Monday!! and that they based decision on that. I was thoroughly confused. I said, no, my doc's office said they just faxed it to you. I should've known better b/c when I asked them to fax BS I also asked them to fax to me - and I didn't receive it either!! Grrr. I remained calm and called doc's office again. I said please re-fax it to me and BS. I also asked if somehow our lines got crossed - and did they send something else to BS on Monday after they received that letter. She said no, they didnt. I called BS again - and they had gotten the fax now - and they said they would put it back to be reviewed again. At this point, I'm not anywhere near optimistic. I read the letter the doctor sent and it was one sentence and very bland. He could've been a little more aggressive/assertive - and pled my case. As a backup, I left a message for my shrink, hoping he would write a more impassioned letter. He called back tonight and said he would, but he wanted me to come in and write it with him - and he can't do that until Friday. I'm so exasperated. BS was going to re-evaluate my stuff tomorrow - but now I need to call them and tell them not to do it until Friday or Monday when they have other letter. In the meantime, like I said, I'm not the least bit hopeful right now. None of this has gone remotely well for me for the last 5 or so weeks. I've never had problems with BS approving stuff for me - so this is a first. Until now I have barely taken the pain meds the doctors have given me - b/c I don't like pain pills...but now - I'm taking them. They aren't killing the pain....but they're making me "numb" emotionally - somewhat. I'm so tired of the pain...I'm tired of crying. I'm just tired. Sorry this was so long - I don't know what to do - and I guess just getting it out helps a little. :( ~Keri ps/all of this aggravation - fighting to get on a drug that might kill me or destroy my liver or give me cancer.... lovely, huh? |
Red - you have a PM.
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Awwwww, Keri, I am so sorry for all of this pain and agravation you are going through..:( I hope it all gets straighted out and, IF HE wants you to have it, you get your first Tysabri infusion soon.
Depression Sucks, please hold on.:hug: We are all here for you...:grouphug: |
I Can't Believe It!!
Okay-I can't believe it!!
As I mentioned above - have been so depressed and beside myself. Last night I was looking at betaseron, rebif, and avonex - deciding which one I would pretend to try so that Blue Shield would let me have tysabri when it "failed". (FYI - was leaning toward Rebif, just so I could carry around my Rebiject! what a name!) Laying in bed this morning - preparing my day - going to shrink to have him write a letter to BS... Then off to neuro b/c I was certain the letter wouldn't be enough for BS - so i'd start the process of the interferons. Well - my phone rings - - - - Who the heck is calling from North Carolina?! Hmm. Wasn't going to answer...but I did. One of my lease favorite people - - or should I say formerly least favorite... It is my case manager from TOUCH! I figure he's calling to "gloat" in a way that BS denied me. Well - he tells me that he just got off the phone with BS - and that I was approved!!!!!!!!!!:eek::holysheep::Speechless::Tra peze 2::Excited::Head-Spin::Thats-Funneh::icon_question::partytime2::Dancing-Chilli: I was in total shock - and said - "but but but - I wasn't approved" - and he spoken with them just now - and had it taken care of. I hadn't even thought to call TOUCH to help with this - b/c we've seen how good they are at picking their noses - but they haven't done much to help me before! Dealing with them is like :Bang-Head::mf_argue: - so I didn't bother. Couldn't/can't handle any more aggravation. I'm still in shock. I called the infusion center - it's actually a main office that handles 3 locations. Gave them the auth # - and they will call me back within 2 hrs to get me scheduled. First I have to have a consult...then I can get my poison - uh, I mean my tysabri :p tee hee. Hopefully it won't be weeks waiting for an appt! I'd say I was keeping my fingers crossed - but I can't - - my fingers hurt from being crossed so much (okay, reality - my fingers hurt from the MS) OMG - the infusion place JUST called (as i'm typing this) and said I wasn't approved!!! WTF?! But she told me she was getting this info from the doc's office -NOT Blue Shield. The doc's office doesn't know yet - b/c BS didn't send them stuff. Okay - let's hope that is the case - b/c if TOUCH Fuc%ed up again - I can't handle it - I can't. I want to say thank you to everyone who has helped - even just by being by my side, so to speak, throughout this. :You-Rock: But now I need to go sit and freak out that hopefully this woman got her info wrong at the center. Oh, and they have no idea when they can even fit me in, etc. and she won't even look into it until she knows for sure! I hate them now. Oh, "full" according to this center is they have 40 people who take Ty and that's all they will do! Be back - when I know more..... wish me luck. ~Keri |
Scheduled!?!
So, as of now, I'm scheduled for APRIL 1st at 8:30am - AT THE LOCATION DOWN THE BLOCK FROM MY HOUSE!!
However, they told me that they weren't sure it would just be consult or consult and meds. So I have to wait to see if I can get both - though the TOUCH people seemed sure I would get the meds the same day. OMG - can't breathe - can't believe it! ~Keri |
Congratulations! I'm trying to get my infusions at my PCP, who is just a mile away, but he's not in network for my financial aid ...:mad::mad::mad:
So I'll probably have to go down the mountain to Denver. Keep us posted, this is exciting news for you! :Dancing-Chilli::Dancing-Chilli::Dancing-Chilli: |
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