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-   -   Tysabri Information & Check In (https://www.neurotalk.org/multiple-sclerosis/37891-tysabri-information-check.html)

ewizabeth 09-12-2008 01:37 PM

Hi Vic,

Once I had a UTI but no symptoms other than I could hardly walk. By the time I had some symptoms, they tested me and told me it was a "raging" UTI. I don't envy you having to deal with those, but at least you have a good way to manage them. I hope you'll be feeling better soon!

Victor H 09-12-2008 02:11 PM

If this UTI fits my typical pattern, all will be well with my gait within a week.:)

This is just another one of those MS adventures we all have to deal with at one time or another.

At this very moment, while I type this and watch the streaming CNN newscast...I have made a CRITICAL decision.......
I am going to get a double scoop of Rocky Road!:D

-Vic

Riverwild 09-12-2008 04:10 PM

Quote:

Originally Posted by Victor H (Post 367044)
RW,

Have you considered taking Benedryl in advance (just in case it is an allergic reaction)?

-Vic

Yes Vic, last month I did the benadryl and tylenol per doctor's orders. I still had the pinpoint itching.

It wouldn't even bother me if it wasn't in places that I CANNOT scratch in public! :p I've had it since I started, never enough to really bother me since it always goes away and there is no rash, swelling, S.O.B, or any other signs of problems.

I am one of those disgusting people who literally almost never gets sick or has any reaction to anything.

I am allergic to no-see-ums and that's it. I used to take benadryl when I was in the woods overnight and ran a chance of being bitten, and I always kept an epi kit in my major med kit, but never had to use it. With those bites, I used to swell and could feel the heat running from the bite to my head, my lips and eyelids would swell and I would look like I was of Asian descent, but it didn't ever get any worse. I never had an anaphylactic reaction to even those bites.

This is not even like that. It's almost like being bitten by a flea in different places, one bite for each place and if I don't scratch, the itch goes away. It just bugs me enough to occupy my mind while I am wriggling around, trying not to scratch. :D

ewizabeth 09-12-2008 05:06 PM

RW,

Could it just be a case of the fidgets that brings on the little itchies? I get those so bad when I'm trying to keep my arm steady for the IV. It's sort of like having to scratch your nose when you're in the MRI machine. ;)

Riverwild 09-12-2008 05:14 PM

Quote:

Originally Posted by ewizabeth (Post 367195)
RW,

Could it just be a case of the fidgets that brings on the little itchies? I get those so bad when I'm trying to keep my arm steady for the IV. It's sort of like having to scratch your nose when you're in the MRI machine. ;)

LOL Wiz!

I'll investigate that after I try shaking the infusion bag a few times. :D

I'd be concerned if there was a bump or something when it itches, but there's nothing there. I get it even if I am fully occupied doing something else. I don't think it's the fidgets, but who knows! :rolleyes:

sheena 09-13-2008 08:38 PM

Just an update: I had my 7th infusion on 9-9-08. Again, I did not pre-med. No sides - nothing. I was tired, but I was tired driving in. I just did not sleep the night before. I remain loving Ty but always looking for better.

SallyC 09-13-2008 09:46 PM

Quote:

Originally Posted by sheena (Post 368028)
Just an update: I had my 7th infusion on 9-9-08. Again, I did not pre-med. No sides - nothing. I was tired, but I was tired driving in. I just did not sleep the night before. I remain loving Ty but always looking for better.

What happened with HiCy?????

lady_express_44 09-14-2008 10:50 AM

Quote:

Originally Posted by Riverwild (Post 367018)
Infusion # 18 down.

No problems, no concerns, except for that pinpoint itching!!!

I get that too, RW (and I am not on Tysabri). It can make you crazy, eh? :eek:

Apparently it is a "misfired pain signal", but I have found that Benadryl does usually work very well for me. So far, no other antihistimine I've tried has done the trick though.

The other option, if it's only in a few places, is to put one of those little dollar store ice packs on it. I think it confuses our brain or something, cause applying it for just a minute or two will take the itching away, sometimes for many, many hours.

Cherie

lady_express_44 09-14-2008 10:55 AM

Quote:

Originally Posted by ewizabeth (Post 367069)
Once I had a UTI but no symptoms other than I could hardly walk. By the time I had some symptoms, they tested me and told me it was a "raging" UTI.

I've had that happen too, Ewizabeth . . . hardly any UTI symptoms what-so-ever ~ just the MS ones.

In the past few years, I've learned to check first for infections when symptoms flare up (even teeth, or other obscure bacterial infections that people/doctors don't consider relevant).

Glad you recognized what's going on, and hope antibiotics can take care of this infection quickly, Vic.

Cherie

sheena 09-14-2008 12:38 PM

Sally,

HiCy is still a ago. That is what I meant by looking for better. I'm acepted for HiCy, but am on a long waiting list. I have no idea when I will even get in to see the Drs yet. I will stop ty 30 days prior to HiCy. I do believe Ty works, but I am looking for a cure or as close as I can get to one. HiCy seems to be as close as I can get.


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