Hey Vic:

Good luck with the Rebif.

And thanks again for all your feedback and advice on this board.
Don't be stranger now.

JJ & LL

Infusion # 19 today!

Everything went well, no problems, no concerns. It was so smooth I was out of there in 2.5 hours!

The nurse had everything waiting for me when I got there. The pharmacist came in right after the Q&A. I talked to the nurse about the pinpoint itchies and my quest to find out what is causing them. We did the rotation of the bag several times during the infusion. I didn't do the benadry or the tylenol since they didn't do anything last time.

NO ITCHIES TODAY!

We are going to try it again next month, just to make sure that is what it was (the drug and the sodium becoming separated during the hour infusion) but it all went well today.

No relapses since I started, nothing but gravy since May 25, 2007!:)

Maybe you're allergic to the Benadryl? :confused:

Anyway, I'm glad it went well this time! :) :hug:

Lauren,

I sent the information that you asked about via e-mail.

Thanks,

-Vic

Lauren,

Thanks again for the help.

MS Active Source is taking a very close look at my insurance policy and what I have paid thus far for both Tysabri and infusions.

It appears that I have been overcharged thousands and already met my deductable (months ago, regardless of what my insurance company has said).

Your help is appreciated greatly

-Vic

I learned a new phrase relative to insurance billing: "balance billing". There are a bunch of sites on the web that describe it, and it seems that it has played a significant roll in the billing that I have received. Today there will be a conference call between the folks on my side (Biogen, Anthem Blue Cross, and my attorney) to nail down this problem and determine how many thousands we have paid because of this issue.

We shall see...

-Vic

Good Luck and please let us know how it goes, Vic!

Maybe you can educate us so others in the same situation can learn about it and be pro-active if and when it happens to them!

Balance Billing:

http://www.businessweek.com/magazine...8040915634.htm

Pay close attention to what you are billed, and NEVER believe those in the Billing Department of any institution/company. They will always say that you are wrong and that your credit will be damaged if you do not pay the bill.

-Vic

You mean, like when a hospital Doc billed me for Psych counsols for my DH, who was in a coma, at the time? :mad: Needless to say, I did not pay them and after a phone call from me, was never billed again. :p