I'm home! No ill effects from Tysabri! It's only been 3 hours since my infusion but I feel fine.

No rash, hives, headache, anything!


No news about my mom yet, though. The biopsy results aren't back yet. I guess one more day of ignorance isn't that bad.

Joellelee!

Thanks for checking in! I was thinking about you! I am so glad to hear everything went well with your infusion!!

I know how hard it is to wait for news about a parent. I sat through it all with my Dad, biopsy, diagnosis, surgery, etc.

Please take the time to rest and build up you. You've got a hard road ahead. I pray that her tests come out ok.

I am here celebrating YOUR good news today!

Let us know when you hear, ok?

Hooray for your infusion!!! I hope you'll get good news about your Mom. It's so hard to wait!

Wonderful News!!!!!!!!!!!

There was a message on our machine when I got home from work tonight that I've been approved to start Tysabri by our insurance company.

It was too late for me to schedule the appointment as the MS Centre where I go was already on their answering service. But, I'm going to schedule my first appointment tomorrow.

I do have a question. I was in the original Antegren studies, and when I went for my infusions, I was typically there for almost a half of a day. How long should I expect to be there for just a regular infusion? I've filled out all of the paperwork already, had all of the lab work, and my MRI, so all I need to do is register at the infusion centre and get the infusion. I'm looking for a rough estimate.

Thank you!
Chris

Yay Chrappy!

Glad your insurance company is coming through for you!

Three hours seems to be the average infusion time. About an hour for setup and questions, BP, temp, start IV with saline, call the pharmacist, they mix it and bring it down. Another hour to infuse, and an hour of observation after infusion to watch for reactions.

Let us know when you start!!

Thank you! I'm hoping to start sometime next week if they have time. I go to an MS Centre so they have their own infusion room. I'm hoping they will let me call them by cell when we're 10 minutes or so away so they can get everything mixed up rather than having to wait until I get there. They wouldn't mix it up until I was actually in the infusion centre the last time. I suppose they have to worry about people not showing up.

I'm so excited. I'm ready for a party!

The TOUCH protocol at my infusion center is that they don't mix until you answer the 4 questions.
If you don't answer them to their satisfaction or the infusion center has a problem, the drug doesn't get mixed until whatever their concern is gets resolved, because it has a short shelf life once mixed and it's pretty darned expensive yanno!

I hate that last hour! I am itching to GO and my nurse always laughs and tells me to settle down and let her do HER job.

I had a great experience at the infuson center. The Ty nurse was wonderful! That last hour really stinks, LOL. I am so impatient that even when I get a pedicure I can't stand to just sit there to let my nails dry! My Ty nurse brought my dh and I homemade chocolate chip cookies to eat while we waited!! (like my butt really needs nother cookie, tehe) I also met some other Ms'ers who were really nice . I did some networking for my son too! I met an author who works for Boca Raton magazine and he gave me a number for my son to call for a summer internship position with his recommendation!! Jesse, my oldest, really wants to be writer and he's very talented (I would say that even if I wasn't his MOM ).

WOOHOO!! I knew you would be fine! I'm so happy for you! And still have your family in my prayers, I know the waiting can be terrible.

I'm so happy your first infusion was free of side effects.

(I was feeling bad for posting what my Neuro said day before your first infusion)

Like he said I am one in less than 5%!!

Yippie!

Great news!