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NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)
-   -   Tysabri Information & Check In (https://www.neurotalk.org/multiple-sclerosis/37891-tysabri-information-check.html)

Victor H 03-03-2009 11:34 AM
RW, glad you are doing OK.

I hope that eveyone is doing well with their Tysabri.

Quitting Rebif may have been one of the best things I could have done because of the incredible amount of dizziness that I experienced. Fortunately, I delayed taking my next Rebif shot for a few hours last week which meant that I was not dizzy when I got the call about my wife's bicycle accident. If I had taken the Rebif, there would have been no way that I could get to the hospital, let alone stay the night with her in the ER.

Now I regret stopping Tysabri.

-Vic

ewizabeth 03-03-2009 11:50 AM
Vic,

I'm so sorry about your wife's accident! I hope she's going to be ok! Darn medicines anyway. I wish there was a way you could be back on the Tysabri. :(

Natalie8 03-04-2009 01:47 AM
Hi Vic, Well that is frustrating...I was hoping you could tolerate the Rebif. Sorry it's not working. Is your wife okay??? That must have been scary. Please keep us posted on how she is doing.

Grammie 2 3 03-04-2009 04:46 PM
Quote:
Originally Posted by Victor H (Post 474131)
RW, glad you are doing OK.

I hope that eveyone is doing well with their Tysabri.

Quitting Rebif may have been one of the best things I could have done because of the incredible amount of dizziness that I experienced. Fortunately, I delayed taking my next Rebif shot for a few hours last week which meant that I was not dizzy when I got the call about my wife's bicycle accident. If I had taken the Rebif, there would have been no way that I could get to the hospital, let alone stay the night with her in the ER.

Now I regret stopping Tysabri.

-Vic
Vic, I am sorry to hear your wife had an accident-hope she is doing ok.
I wish your ms treatment was going well :hug: Maybe what's happening in the pipeline will become avail soon and will be right for you.

Wishing you my best,
Linda (lindaincolorado :))

Riverwild 03-07-2009 01:50 PM
I found a good "article" or CME/CEU from a doc about Tysabri. It gives you insight on the thought process your neuro should go through when something happens outside of norm while on Tysabri.

It's also reassuring to actually read in print about transient antibodies for those of you just starting out.

http://www.projectsinknowledge.com/c...856&sj=1858.04

Riverwild 03-07-2009 01:55 PM
Quote:
Originally Posted by Victor H (Post 474131)
RW, glad you are doing OK.

I hope that eveyone is doing well with their Tysabri.

Quitting Rebif may have been one of the best things I could have done because of the incredible amount of dizziness that I experienced. Fortunately, I delayed taking my next Rebif shot for a few hours last week which meant that I was not dizzy when I got the call about my wife's bicycle accident. If I had taken the Rebif, there would have been no way that I could get to the hospital, let alone stay the night with her in the ER.

Now I regret stopping Tysabri.

-Vic
Vic, I am so sorry to hear that your better half had a bike accident. I hope all is well and that she is back on her bike soon!

I missed the telling, what happened?

I'm also glad that you were in full posession of senses when it all happened.

I wish you still had Tysabri too.

Please give your wife our regards and best wishes.

ewizabeth 03-09-2009 04:23 PM
I had my infusion today. Everything went well. My mood is much better compared to three weeks ago. :)

Natalie8 03-09-2009 04:33 PM
Wiz, I'm glad you are feeling much better mood wise!! :)

Riverwild 03-09-2009 05:05 PM
Quote:
Originally Posted by ewizabeth (Post 477989)
I had my infusion today. Everything went well. My mood is much better compared to three weeks ago. :)
So what number was this one, Wiz???:D

I'm planning on getting #24 on schedule set before I missed it for the appendix, so only a month late.


Are we back together yet?

ewizabeth 03-09-2009 05:46 PM
Uh oh, I thought this was #25 (but I was afraid to say so.) :D I might be just a bit ahead of you now RW! :eek: I hope you'll be feeling recovered enough to have your next one soon! :hug:

Quote:
Originally Posted by ewizabeth (Post 468317)
I had infusion 23 yesterday.

Doh!!!! :icon_mrgreen: :Noooo:


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