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Hi all,
This is my first time posting here. I started Tysabri 2 weeks ago. I've been dizzy for 2 days now. Can anyone reate? |
YAY for # 10, Natalie!! :yahoo:
I'm SO glad that slowing the infusion helped, and that the aftereffects were reduced! I envy everyone who gets to share with others who are going through the same disease/treatment while infusing. I'm still alone at my infusion center. They tell me there are others who come in for their infusions, but I only met one patient (#2) and he didn't do well on Tysabri and left after a few infusions...:( Let us know how you feel, and if it helps to shorten the recovery time you need. :) |
Hi Stacer, and welcome to NT and to the Tysabri thread! :welcome_sign:
I haven't had any dizzinesss related to taking Tysabri but it cleared up the dizziness I suffered for almost three years before I started Tysabri. Have you spoken to your neuro about it? There may be others here who have experienced what you are going through and I am sure they will chime in! :) |
Hey Wiz!!
You remembered the #!!! (ROFL here!) It feels funny following you! There's times now when I have to look over at the "Wall of Triumph" to remember how many I have had. (I still keep every box and vial) |
Thanks for your reply, Riverwild. Dizziness went away for now. Seemed to only last a while in the morning. I didn't call my neuro. Do you think I should?
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M'kay..Hope you're all sitting down. I go for my first infusion (finally) next Monday. My (ex) MIL wants to come along, which is probably a good idea since if I end up having to take Benedryl I'll be out for the count. I'm one of those freaks on nature who get sleepy from almost any kind of medicine (even the "non-drowsy"), so if I want to get back from Minneapolis, I need someone to ride shotgun on the way up..I'm excited more than nervous. Hope it works well!
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Glad to hear it has let up for now! Let us know how it comes out for you. :hug: |
Oh YAY Polar!!! :grouphug:
It's sort of like waiting for blast-off, isn't it? :D I'll be thinking about you! What time do you go? Try not to be nervous. Be aware of how you feel, but don't stress out. Drink lots of liquids in the previous 24 hours and plump up those veins. Have something to eat before you go for the infusion to combat any nausea that might happen because of nerves or stress. Get a good night's sleep the night before. Bring something to do for the time you are infusing. Last piece of advice?--- Let us know how it goes!! We'll be waiting to hear! :) |
Thanks, my dear!..I go in 1pm Monday. Wanted to make it as late as I could to make sure I have plenty of time to flip off offending motorists on the way up :D..Funny, but I'm not nervous at all, just excited. It's taken so long to get to this point, I was ready to give up..I'll be sure to drink fluids (I don't suppose Rum & Coke counts, eh?), and eat before I go. Thanks for the advise. You know, better living through chemistry used to mean something very different.
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Oh, and before I completely forget, RW I was SO happy to see your post about Ty clearing up your dizziness. I'm hoping it does the same for me as no other meds have helped. Being a dizzy blond is one thing, but this dizzy gave me two sprained (sp?) ankles and one injured wrist..
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