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Old 02-07-2008, 04:27 AM #7
Swampdoctor Swampdoctor is offline
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Join Date: Jan 2008
Location: Fairbanks, Alaska
Posts: 12
15 yr Member
Swampdoctor Swampdoctor is offline
Junior Member
 
Join Date: Jan 2008
Location: Fairbanks, Alaska
Posts: 12
15 yr Member
Default did you ever notice...? Lab rats??

Hello everybody,

I read back through the Tysabri thread posts and it appears to me that most of the improvements seen after staring Tysabri kind of crept up on us until we suddenly realized that this or that symptom was longer ruling our lives (me included)!

Although most of us know that Tysabri is about lessening the progress of the disease and not about lessening our symptoms, it does appear that a good many of us have had good MRI's since treatment began and a reduction in symptoms too.

We are the pioneers in Tysabri medical history. The manufacturers do not have any data beyond two years of use for any patients (if my data is correct). So this makes us the Tysabri lab rats!

As long as we Tysabri lab rats post at least once a month about any new symptoms appearing or old symptoms disappearing and updates on what MRI's show, then we can all be the best educated people about the use of Tysabri for people with MS.

pretty exciting,

Dave
Swampdoctor is offline  
"Thanks for this!" says:
Jodylee (02-07-2008), Riverwild (02-08-2008), SurvivingMSwithHOPE (02-07-2008)
 


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