Joelle - congrats on 2nd infusion.

Sheena - I am VERY happy for you!! That is great news - and I hope it all goes well.

Well - just want to report that I'm still being messed around with by infusion center AND TOUCH people.

As of Wednesday morn, I was told that my info was sent to another infusion center and that I should be able to get in within a week or so. So, I called this morning - told by TOUCH that it will be longer b/c now they need to re-apply for something at the infusion center re: my insurance. I asked if this was started and he said no!!

Called infusion center - they told me they had NOT received my information or paperwork from TOUCH - and that they hadn't started anything!!

At this point, I just started crying - that was at 11am - it is now 5:37pm and I've been crying most of the day. Unable to call TOUCH back b/c I'm afraid I might totally lose it with them. I nearly chewed off someone's head today. Had to cancel my work/clients because I just can't do this.

I can't deal with this.

Oh - and I had asked TOUCH would I need anything else - anything else I can work on, etc. They said NO. Infusion center said otherwise - that they needed all my medical records, etc...but they weren't even going to request them until they had my paperwork from TOUCH.

I called my neuro - and asked them to go ahead and send my records now instead of waiting. They said they would...but I guess we'll see.

I'm besides myself. I really don't know that I can do this. I don't have this fight in me. I cry every time I speak with TOUCH. Well, first I get aggravated and angry, then I just feel defeated.

What is amazing in - this isn't even b/c of insurance stuff!

Still can't get MY case manager on the phone at TOUCH.

I have a friend in my telephone support group who filled out her T paperwork two days before me and she had her first infusion last week!!

The stress of this is just putting me over the edge. Actually, it's more than stress - the upset and everything else. Like I said, I don't have this in me - I can't fight the MS and the drug company! I'm too tired - I'm stuck in this exacerbation - and rather praying it is an exacerbation and not just progression. I haven't felt half of my head since Dec 22. The other symptoms also stink - and I don't mean to complain but I don't know how to do this any longer - or if I even can.

I'm beginning to wonder if I'm imagining all of these calls that I'm making? Am I speaking English to these people? Do they understand a word I say? Maybe this whole MS thing really is a bad dream?

I just feel so done already.

keri