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Old 07-11-2008, 10:33 AM #11
Victor H Victor H is offline
Senior Member
  
Join Date: Jan 2008
Posts: 1,090
15 yr Member
Victor H Victor H is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,090
15 yr Member
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TYSABRI PROGRESS SO FAR:

Here are my updated graphs regarding some of my Tysabri data.
(1) Walking Endurnace: Improved slightly since the start of Tysabri.
(2) Vertigo: Reduced markedly.
(3) Hours Before Fatigue: Vast improvement.
(4) Ankle Movement: Improved slightly since the start of Tysabri.

Limiting Data Factors:
(a) Excessive heat in So Cal.
(b) Limited exercise
(c) Periodic UTI's

Conclusion:
(1) No exacerbations while using Tysabri.
(2) Periodic UTI's
(3) Has not stopped overall MS progression, but rather delayed it.

Clinical Observations:
While the data thus far indicate that I am stable, and I do feel great, the reality is that I have progressed to SPMS based on over two decades of medical observation by my medical team. That is not as bad as it may sound since I have had MS for a long time.

HERE IS THE "KICKER":
Although I have progressed to SPMS, I do not notice it per se as I have habituated to it and feel (and function) much as I did when I had RRMS.

Would Tysabri have prevented this if I could have used it ten years ago? Probably not. This is just the natural, biological course of human entropy.

What has medication done for me? I think that other than draining my wallet (six figures soon), it may have made the progression much less of an issue, as I am fully functional and productive. It is like having a chronic cold, with just a few coughing episodes...wherein you know it will eventually lead to pneumonia but there is a delay in the time that you get there...and you know it.

Thus far, I have concluded a few things about my MS:
A - My MS is a tolerable condition.
B - MS just IS, like so many other things in life...
C - MS has made me appreciate the most simplistic of things!

-Vic
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Victor H is offline  
"Thanks for this!" says:
barb02 (07-13-2008), ewizabeth (07-11-2008), Jodylee (08-04-2008), Keely (07-14-2008), Natalie8 (07-11-2008), SallyC (07-11-2008)
 

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