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Old 12-03-2008, 03:31 PM #23
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Natalie8 Natalie8 is offline
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Natalie8 Natalie8 is offline
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Quote:
Originally Posted by 4boysmom View Post
Natalie,
I also find it hard to see others with MS and their struggles. I have a neighbor with MS, and she is pretty much in the same shape I am, not a lot of symptoms, just the overall fatigue much of the time.

We both work full-time and do all of our other motherly/church/ neighborly stuff. So when I see someone struggle to walk or show up in a wheelchair, it gets me thinking.

I start thinking of how I should remodel my house to accomodate wheelchairs and things like that. Maybe if I plan for it, it will never happen!

But life is good, and I'm glad I have insurance that will help me afford Ty, and I just do the best I can!
I'm like you 4boysmom. Not a lot of symptoms either. But I have 9 lesions and some black holes. So yes, I worry about the future sometimes. I did read a story about a woman who was diagnosed with MS after she had bought her dream home. It had 2 floors -- she sold it and bought a one story home because she thought she might be in a wheelchair and unable to use stairs. Well many many years later she was still walking and regretting she had sold the dream house. I think it is good to plan for the future but also probably good not to overplan so much that you don't live your life to the fullest.

General questions for everyone:
1. How often does your neuro do an MRI while you are on Tysabri? It's standard to have one at the 6th month mark, right? (I just had my 6th infusion). What about after that one?
2. At what point did you all get tested for the antibodies? I think I got panicky after Monday's infusion that I was having some kind of reaction that typically suggests antibodies (nausea, fever, dizziness--at least according to the Tysabri insert). Has anyone developed antibodies further down the line? I think I had the test at the 3 month mark -- never heard anything so I assume everything is ok.
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