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Old 03-20-2009, 05:30 PM #11
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Natalie8 Natalie8 is offline
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Natalie8 Natalie8 is offline
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Join Date: Apr 2008
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Thanks laurasari. I talked to my neuro and I may even have the infusion slowed down to 90 minutes. 45 minutes has been leaving me feeling really awful for days. They follow the infusion with saline and I wait. They don't draw blood before each infusion -- just every 3 months for the JC virus test and liver test.

Quote:
Originally Posted by laurasari View Post
natalie

Hope you are feeeling better. I always have mine infused at least 1 hour and then the saline and wait at least another 30 min. I am generally there between 2 1/2 and 3 hours. do they draw blood from u before each infusion?

I also have been getting sleepy after the infusion but after that I feel good.

Be well
laurie f
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