NeuroTalk Support Groups - My Wonderful Neice

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- - My Wonderful Neice (https://www.neurotalk.org/multiple-sclerosis/38060-wonderful-neice.html)

I'm so sorry to hear that your niece passed.

Thank you so much for allowing us a glimpse of your beautiful niece. :hug:

Thank you and your sister for sharing your beautiful niece with us all. Her words touched me, and her talent was undeniable.

May you both have peace in the knowing that she touched people again with your sharing.

What a beautiful tribute to a lovely young lady!:hug:

Thanks, Alffe, for sharing your niece with us.

Sorry she left so soon in life, but happy she kept a priceless journal of her private thoughts and feelings.

I can picture her mother turning to it time and time again, remembering Pam.

Thanks again. So sorry for your loss. She sounds just beautiful, inside and out.

dear alfee,
I am saddened to hear this... :hug::hug::hug:
my dear sister, has MS, but so far it has been not great but not so fast -
I would like to post this to purhaps help the MS patients research something -
I have found that my sister is very happy to see,
in honor of your lovely niece:

The Myelin Project -
www.myelin.org

I will post an article about lorenzo's oil in the vitamin forum...
luv and light, dear Alfee...

I'm very sorry for your loss.

What a lovely tribute. You have such a way with words... if you're not published, you're wasting your talents.

Thank you for sharing your nieces story with us, I was very touch by it. I'm so sorry she passed so young :hug:

A beautiful life..
Thanks so much for sharing this!

Quote:

Originally Posted by Alffe (Post 205161)

She lost her battle with MS in Aug. of 03...one of the unlucky 2 percent who don't survive this. Pam was a talented painter, and writer. Some of you may have known her...meet Pam.

"And you thought pMS was bad....

It's been a week and a day since I was told the preliminary diagnosis.
M.S.
It sounds like some ironic payback for radical feminist ideals
But it's Multiple Sclerosis.
A name which still appears to be spelled wrong, no matter how many time I write it.

It's a label laced with doomfilled images of wheelchairs and dependency.
A pair of words that conjurs up loss and grief and so many fears I am unable
to name them all.

And yet after having devoured two rather comprehensive books on the subject; turning 35 years of my personal life perspective around,
and weighing my words with the dozen or so friends I've shared the news with..
I find that despite an understandable case of shell shock,
I'm actually in pretty good shape. Whatever that may mean from moment to moment.

No one who loves me enough to be honest will tell you that I am anything other than a control freak.
So it cannot be anything less than a humbling experience to now find myself linked inexorably with a disease that, if nothing else , is known for its unpredictable nature.

Right now I am numb from my chest down.
Though I have regained some feeling in my thighs.
My feet and fingers burn with the simple exertions of walking, standing and
writing.
Tomorrow I may be fine.
Tomorrow I may not be able to walk.

This is a test. This is only a test of your central nervous system.
If this were an actual emergency you would be instructed to...
What? Panic?

The M.S. and I are partners now. It may, if I am lucky enough to go into a long remission, become a silent partner. But it's here with me.
I feel the need to be introduced.
I crave some opportunity for influence with this interloper.
But this is where my journey really begins.

This is where I meet myself in the loss of control.
This is where the mystical quality we call strength solidifies into something
positive and I get to built my character some more. Oh goodie.
Is this also where I get to throw dishes?

Pamela Ogden Sparks Novenber 28, 1997

http://www.peaceandenergy.org/

shared with permission from her mother...my sister.

No fair making me cry. Thank you.