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02-09-2008, 08:43 AM | #1 | |||
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Magnate
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I'm guessing the med the doc gave you was neurontin? You may want to rethink trying that. *** and ADs like elavil are the only thing that usually touch nerve pain.
The side effects may not effect you, and may not be bad enough to bother you. Never know unless you try. A lot of others report good results with neurontin. I did fine with elavil. Did okay with lyrica, but it made me feel too *under the influence* to drive, didn't like that. Plus it stopped helping my pain so I stopped taking it. I have pain like yours at times (it has not been dx'd as TN though, but then, I don't think I ever mentioned it to my neuro) but I get similar pain in other areas, so who knows? I get it in my arms from a spinal disorder. People who have mentioned TN, I have not seen them say they have it in the ear. Let's see what responses you get. Hopefully they can help.
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02-09-2008, 10:27 AM | #2 | |||
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Grand Magnate
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I thought (assumed) I had TN too (because of my great internet researching skills, combined with having MS ), but it turned out to be TMJ:
http://www.entnet.org/healthinfo/topics/tmj.cfm Cherie
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02-09-2008, 11:48 AM | #3 | |||
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Fabulous Belizean Member
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Quote:
very sharp, sudden stabbing pain that makes me gasp aloud, and grip the chair arms until it lessens. maybe lasts a minute, and the fading lasts another 10 minutes. it comes in waves, sometimes a dozen "stabs" in a span of three hours. last flare involving TN was last summer, lasted about 3 weeks. have had maybe 15 or so isolated "stabs" since that time... possibly "pseudo-exacerbations" (I dunno, MS can be tough to figure out) I'd say 85% occurs in my right ear, 10% in my right cheekbone and right temple, and 5% in my LEFT ear. doc called it bilateral MS-associated trigeminal neuralgia hope that helped.
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02-09-2008, 12:11 PM | #4 | ||
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Member
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Yes, you did help. And that is exactly what I am talking about!! Same for me. It feels like torture!! it is enough to make you drop to your knees and say I GIVE UP!!
I know for sure ear pain is part of TN because my mom and my sister both have TN not associated with MS or anything else. It is called primary TN. My mom is especially affected by ear pain. Her TN and mine seem to run in a simular path. My sisters TN is located in the upper branch of the nerve pathway. Mine is in the lower pathway. I have had my teeth checked out. Checked for TMJ, a bad tooth, ear infection.....nothing. I've had MRI's and there is nothing there that would be causing pain in the Trigeminal nerve area. I have optic neuritis for the second time in less than 9 months and will be going to an MS clinic on Wednesday. So, maybe I will get an answer soon, who knows. I know some people have Ms for sure, but do not have ON, some do not have TN,,,, I have both ON and TN, and now even some double vision,,,,, but not enough evidence on my brain MRI to get a diagnosis so far. But I have not been to an MS specialist yet. So that is where I am going this week. Which means more doctor visits and tests. LA Quote:
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02-09-2008, 01:12 PM | #5 | ||
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02-09-2008, 06:42 PM | #6 | ||
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Member
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That is interesting and has to be so painful. Mine is a low roar right now. I hope it stays that way. I think I may have to call my PCP on Monday though. I want to make sure I can make that 6 hour drive to and back from the MS clinic on Wednesday.
My husband is taking me but even if someone else is driving full blowen TN is incapasitating and I want to make sure I get some medication before I go if I need it. LA |
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