Do you have numbness or any odd nerve pain like I do?

Some numbness- my calf, arm and partial face, on and off. Also some numbness in the privates- I just didn't think it extended so far up internally. My first MS symptom several years ago was a strange parathesia thing on my stomache that went away after a course of prednisone, so I've definitely had some odd sensations.

The only time I have experienced this is when I am in a anxiety producing situation. For example, I am extremely claustrophobic and have been for as far back as I can remember. While I have gotten better over the years (elevators don't freak me as much.), MRI's are not my friend. My last MRI was a couple of weeks ago. I did have this exact feeling until the sedative took effect. Then the feeling went away. For me it is that fight or flight feeling.

However, I do have permanent nerve damage in my stomach. The MS hug is a constant companion for me; everyday at varying degrees. It's nice to know that MS loves me so much it wants to "hug" me all the time. LOL.

Anyhow, my stomach does not function properly (don't feel hunger, I feel full all the time, and a lot of times I don't digest my food all the way which kind of hurts when it's going through the digestive tract). This does create problems other problems for me.

One of my friends and her sisters have IBS. I know that during discussions each of them have said something about a feeling that they get right before they need to "go" (and quickly). I just can't remember how they described it. I'll ask her when I talk to her.

I would definitely bring it up with your doctor though. Sometimes the littlest thing is actually very important. Giving a doctor the whole picture can be helpful when trying to diagnose a symptom.

Wishing you the best.

I have Ulcerative Colitis (similar to IBS) plus MS, and have only recently figured out which disease is causing which problem.

What you are describing sounds like some kind of surface nerve sensation (don't know how to describe it better ), whereas the "numbness" associated to MS causes me to feel nothing what-so-ever. I can't tell if I have to go; I have no muscle control to make it happen; there is no sensation when/if it does.

For those who've had an epidural before, it is similar, but without the ability to sense the pressure and/or participate in the push, ie. even if you can't feel the push with an epidural, there is instinct to know "what" to do. With (my) MS-numbness though, there is NO sensation, and NO muscle control (things just don't work!) so I often have to rely heavily on BM stimulators.

Cherie

Oh goodness that must be hard to deal with. I have had 7 epidurals so I understand what you mean by being "that" numb.
Yes, my numbness in my legs have been like a "surface" numbness, it might be better if I use the term "loss of sensation" than numbness right now. I have feeling in my legs but I don't feel pain like I should (or did just a few months ago).

Did you know a person can actually last (at least) 5 weeks without a BM?

THIS IS NOT ADVISED!!! . . . and I have learned lots of tricks to not let that happen again.

Cherie

LOL, Oh my 5 weeks, really I wouldn't have guessed. (my 10 year old had to come running in here to see why I was laughing so hard).