I agree. It took me a long time though to learn to stop saying I'm fine when I'm not. If I need a nap I take one, if I'm feeling crappy I deal with it in whatever way I have to. I do my best not to complain, I don't want to sound like a whiner, but I'm not afraid of letting someone know that I don't feel good.

And just what did that prove? Why not let your sister know? What the big deal about hiding what is reality? I just don't understand it.

Bless your heart! Few people other than a fellow MSer would understand what you REALLY MEAN when you say you are "tired." Here is a . Try to get some rest, okay? Thanks for sharing!

I'm working on getting where you are! Why are things never as easy as they sound??? It's probably that "attitude adjustment" I seem to recall having ordered... must be in the mail!

Thanks!

Wow, does that sound familiar. The catch is, I've discovered they know more than you realize. Not long ago, before dx, when I got to work, my 17 year old daughter was in my office. She knew how horrible I felt even though I said I was "just fine". Someone came in and I put on my "just fine" smile and carried on a pretty good conversation. Even gave the positive "I'm just wonderful" type reply to "How are you really doing today?" When the person left my daughter said. "WOW, YOU ARE SO GOOD, MOM!" I said "Good at what?" to which she replied "Lying!"

This just confirmed what I had suspected all along....she wasn't stupid afterall! Since then, I've been pretty honest with her. She is old enough to hear it and really wants to know the truth. Her age has a lot to do with it, but given that hindsight is 20/20, I probably should have been "somewhat" more honest all along...

Would not try to claim I have the answer to this... but hope it helps a little bit!

Maybe it would be okay for us to be a little more up front with how we feel, like with your sister... It's hard enough for us to understand and we are the ones going through it. I guess it's no wonder other people just don't get it.


I don't know..... good luck! Thanks so much for sharing!

I was really tired and exhausted last night.

Wanna guess when I fell asleep last night? During Criminal Minds? No... During the 10:00 news? Nope.

During Hannity & Colmes? Nope..not then either.

During Red Eye? (on FoxNews at 2am CST) Nope.

It was somewhere around 445am...and then I woke up at 530am because my dad dropped something on the floor upstairs.

I finally dropped off to sleep again about 630am.

only to be woken up again at 8am when Shared Solutions called to harrass me about getting a new box of C (I'm trying to catch up there, I've been 2 boxes behind since the beginning because my injection nurse waited 2 months to call me before I got trained) I told them to call me back in 2 or 3 weeks, and to please not call me before noon.

I kept waking up about every half hour to an hour.

I'm starting to wonder if insomnia can be caused by a brain lesion or something.

I. am. so. tired. tonight...and I STILL cant sleep!!!!

It's kind of according to who I am around. When I'm with my kids and husband I try to be very honest. They would know anyway. But my Mom is different. Sometimes I have to be overly peppy or she will drive me crazy with questions about how I'm doing. But then she'll call me and the minute she hears my voice she can tell how I'm feeling. Somehow she just knows. Now my Mother in law is the opposite. I don't think she has any clue what it wrong with me. She has a hx of paronoid schyxophrrnia but is well controlled. Way back in the 60's she had a good bit of shock therapy which I think took away some of her brain cells. But unless I really look or act like I'm not feeling well she thinks I can move the world to take care of her. So sometimes I over excagerate.

Oh the insomnia. I think it must be contagious. I din't sleep at all last night, finally got up at 6 AM. Did you know there is actually TV on at that time? But here it is 11:30 PM and I am in my usual wakeful state that is between 7 PM and 1 AM every day. It doens't matter if I didn't sleep any the night before or not.

For trying to explain the wall, I wish I could have a copy of a scene from "Charlie and the Chocolate Factory" with Johnny Depp. It's the one where Willy Wonka is talking to Charlie at his shoe shine job. Willy runs into the wonkavator that you didn't see was there.

It's been hard learning where that line is. It moves everyday, so sometimes I know it's coming - sometimes I don't. Definitely learning to listen to my body. It knows things better than my brain does, LOL.

That's awesome! I'm going to steal it if that's ok because it explains way better than I can and succinctly too.

si, si, Senora!

this morning, I felt my eyelids growing heavy... and my head starting to nod and droop.

looked at the clock, and it's only 9:30 am!

how can that BE?

oh yeah... it must be 'cause I woke UP at 3:30am.

so, I'd been up for the usual SIX hours already, and my BODY knew it!

usually, I get up around 6, and nappy at noonish.

some days, TWO naps... sometimes my body only needs an hour.

yesterday my nap was *four* hours... (which goes a long way toward explaining WHY I woke up before DAWN today, eh?)

oh, and Finny?

it's ALL completely and totally YOUR fault that I'm now singing Olivia Newton John!

'cause you mentioned listening to your body.



Kay wanders off, muttering under breath and singing:

Let me hear your body talk... your body talk... Let me hear your body talk.