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Quote:

Originally Posted by momXseven (Post 216545)

Mine toke 2 weeks to come back.

I'm at 2 weeks and holding...

Quote:

Originally Posted by braingonebad (Post 216493)

How weird. I found my folder and flipped right to the LP results!

:eek:

Normal across the board

Serum Alb - 4450
CFS Albumin - 17
CFS IGG - 1.3
CFS Index - .44
IGG stnthesis Rate - 0.0
IGG - 760
Ogliclona Bands Absent
Myelin Basic Protien T/F (What does that mean?)

Glucose - 63
Gamma globulin electropherosis T/F (again, who knows)

CFS total protien 32
Color - colorless
Clarity - clear
Supernatant - colorless
Rcb - 6 ( no range given, but it's in the *normal* column, so okay)
Nucleated cells - 0
SF diff - Nucleated cells <5/uL, Diff not tested. (And no idea what this means either. Is that normal? Should I ask?)

Note - they can find blood cells, because they just poked a needle in there. I was told that my doc was happy he got clear fluid and that was part of the reason, because he did not disturb enough to bloody up my samples. The other reasons for cloudiness could have been diseases.

Just saying what I was told, not like that's gospel.

I have 2 more pages of results, but that's all normal too. They cultured for fungus, organisms, all kinds of icky stuff. Mulder and Scully would have loved it.

:p

I'll go on if you want. Don't wanna bore you with stuff you can't use, you know?

I would ask about your protien though. See what they think that's from. Only thing I'm thinking is... are they going to want to repeat the LP? Do you want to open that can of worms?

Sorry... shutting my pie hole now.

T/F = maybe Trace Found? :confused:

Quote:

Originally Posted by shalynn (Post 216523)

Is it possible that you don't have all of the results just yet?

If I remember correctly, the MS type markers took longer to come in than the other tests on the fluid.

Good luck!

No, this is the final result....but I'll ask anyway :)

Quote:

Originally Posted by SBrown45 (Post 216544)

I just had one on the 31st (what joy!! :rolleyes:) and they ended up with 5 tubes of fluid. What you have listed looks to me like they have given you the partial results from only one of the tubes:

Cerebral Spinal Fluid Tube Number 3 - The volume in the tube could be 1.8 (whatever measurement they are using) and the appearance is clear, the white blood cell count is 0, the red blood cell count is 0, the glucose count is 64, and the protein count is 46. That is all just a guess on my part, but from all I've learned, it certainly seems like a reasonable one. It doesn't look like you've really been given the results at all. I don't think they would have done a spinal tap and not done the entire testing. That would be ludicrious and very unprofessional on their part.

I know how upsetting it is because I'm still waiting on the results of mine to come back, but try to stay calm until Monday when you can talk to someone else about it and find out for sure. Your results should have the same information everyone else here has listed.

Believe me, I know how stressful it can be waiting. I'm waiting on the results from that and I also just got called back because they saw something on my mammogram they don't like so I have to go through more extensive testing on that and I couldn't get in until next week for that either.

I'll say a prayer for you and hang in there. Do your best not to worry and let us know what you find out. I'm wishing the best for you!

:hug: :hug:

Thanks Sheila!

I went thru the mammogram thing too....best of luck on that! My second one turned out okay, but retest in six months....

I think these are the results in full...but again, I will ask about that!!!

Quote:

Originally Posted by lady_express_44 (Post 216535)

Here are some explanations:

http://www.neurohaven.com/ms1.htm

http://dpalm.med.uth.tmc.edu/clinica...ps/CSFint.html

Cherie

Just a quick history for me:

1999: Attack of some kind on my eyes. Still have issues. Blurry, ect...Optho/Neuro suspected MS in 2001....when I finally found him after normal eye docs were no help at all....

2004: Vertigo

2007: Vertigo, drop things, fall, miss stairs, dizzy, ears ring, exhaustion, anxiety, loss of normal cog functions and then the left side of body went numb for about two months...now just buzzing in hands and feet, anxiety and eyes still a problem....

I have time and a new lesion that was not present in 2001.

Thanks for the links :)

PS: Guess this could be me:

Clinically probable multiple sclerosis:

Two attacks and clinical evidence of one lesion.

PSS: The second link? They didn't do any of those tests! SHAME!!!

Quote:

Originally Posted by greenjeans (Post 216503)

Thanks Brain....I'm so upset!! How could he say no MS when they didn't do all the testing? I can't believe it (tears!)

Looks like everyone got a full set of tests but me!!

I'm waiting to hear from the radiologist...the only one working today...that did the LP. I told him that day that I was being tested for MS, and he did say something about not having a full order or something...but I dismissed it at the time...I figured once I said MS, he'd do the right thing!!!

Here I am running around seeing a therapist spilling my life story and ... OMG!!

DH called and said to calm down. My Optho/Neuro is top dog in this town and about the closest thing we have to an MS doc I know of (he will be my second opinion as soon as he gets back on Monday)....Now I think he is going to tell me that the test is incomplete and my protein is at least 6 points higher than normal...On the results, it says some stupid stuff that I googled, and it indicates that it could be high because of antibiotics....of which I've taken none in YEARS!

This is an outrage....No, I don't want to do it again...what did the Neuro think? That it was FUN? What an IDIOT!

I've not said anything, but I've been really tired, dizzy and the hands and feet thing has continued. How could they dismiss me?

It depends on the lab, which tests are run. On my paperwork, it says a lot of, *Test run, but not ordered* not charged or refunded. Something to that effect. Also says CFS savd? - Yes. I believe the other thing saved was blood taken at the same time (it was the only other thing taken).

(Also, on my papers, it does not say *Tube one, tube two* like yours does. And he took 4 tubes of CSF. Were they all exactly the same? Maybe, or maybe they dumped them all in one vial and tested it that way. I wonder if that matters?)

How long it was saved or where is anybody's guess. A little sluething and you might find some lab stuill has your samples. You MAY be able to get the CSF and blood sent to another lab for testing.

That would rock, no?

Just cuz you the other side of nowhere don't mean your stuff can't be sent anywhere on God's green Earth, see what I mean? It's a thought.

And then I read SBrown's post - wow, good call!

Where did you get that LP done, GJ? I'd call and tell them I want a copy of the results from them. (The one you have now is from your doc, isn't it? I bet the other one is more complete)

Curiouser and curiouser.....

:rolleyes:

Can I get you a nice hot cup of chamomille? Send a cabana boy over to give you a neck rub or something? This stress has gotta be killing you.

:(

LOL! :hug:

I acually got the results from the Hospital that preformed the test so I have everything, including all the stuff for my ER visit to get a blood patch. My BP was thru the roof!! LOL!!!

I went shopping to get my DD her birthday gifts. Can't believe she is turning 19 on the 22nd!! How time has flown! I used this as an excuse to stop worrying about the LP....but can't wait to hear from my Optho/Neuro. He's the only one with brains in this city I swear!

DH talked to a friend who's wife was having eye issues, had gone to many doc's here and got no answers. So she went to my doctor, and after an hour of testing, he finally told her it "Was in her head'....so I know he has no problem saying such...when he really believes it and the proof is there....He has told me on two occassions now that in his view, it IS MS.

I remember years ago listening outside the door as he broke that news to a man and his wife....and they were stunned and in denial....but he knows what he's talking about. I'm convinced.

My only other option is to go 'outside' (Seattle....) and I can't do that. Thats interesting about the samples being kept...I'll ask about that if there is a question regarding the results and lack of testing....

Thank you all so much, as usual!!!
Jeannie

Oh Jeannie, you poor thing! Looks like you're back on that Limbo Roundabout with a vengeance!

I'm inclined to agree with the others when they said your results obviously aren't all through yet, and if you were being tested or MS....then those results are not on the list you gave! I'd have been expecting to see results for:

Serum Alb -
CFS Albumin -
CFS IGG -
CFS Index -
IGG stnthesis Rate -
IGG -
Ogliclona Bands
Myelin Basic Protien

OG Bands, myelin based and other proteins (albumins) have been used for a long time now when diagnosing MS.

I'm a bit bewildered as to why these wouldn't have been tested.

Quote:

Originally Posted by Koala77 (Post 216703)

I'm a bit bewildered as to why these wouldn't have been tested.

Me too, I guess can't believe the Dr would do an LP and than NOT run the right test on the CSF to check for MS. I even feel bad that I have complained about my Dr not running more test on the CSF but I did get the MS profile.