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02-15-2008, 04:18 PM | #11 | |||
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Sheila . "Go over, go under, go around, or go through, but never give up!" |
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02-15-2008, 04:31 PM | #12 | |||
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Senior Member
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Quote:
T/F = maybe Trace Found?
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Hi, I'm Julie and mommy to 7 little kids (ages 4 to 11). . DX with Fibromyalgia, 1998 DX with MCS (Multiple Chemical Sensitivity), June 2008 DX with Food Allergies, wheat, sesame, fresh pineapple . |
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"Thanks for this!" says: | braingonebad (02-15-2008) |
02-15-2008, 04:40 PM | #13 | ||
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Senior Member
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No, this is the final result....but I'll ask anyway
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. Wisdom to the soul is what health is to the body |
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02-15-2008, 04:43 PM | #14 | ||
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Thanks Sheila! I went thru the mammogram thing too....best of luck on that! My second one turned out okay, but retest in six months.... I think these are the results in full...but again, I will ask about that!!!
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. Wisdom to the soul is what health is to the body |
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"Thanks for this!" says: | SBrown45 (02-15-2008) |
02-15-2008, 04:50 PM | #15 | ||
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Senior Member
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1999: Attack of some kind on my eyes. Still have issues. Blurry, ect...Optho/Neuro suspected MS in 2001....when I finally found him after normal eye docs were no help at all.... 2004: Vertigo 2007: Vertigo, drop things, fall, miss stairs, dizzy, ears ring, exhaustion, anxiety, loss of normal cog functions and then the left side of body went numb for about two months...now just buzzing in hands and feet, anxiety and eyes still a problem.... I have time and a new lesion that was not present in 2001. Thanks for the links PS: Guess this could be me: Clinically probable multiple sclerosis: Two attacks and clinical evidence of one lesion. PSS: The second link? They didn't do any of those tests! SHAME!!!
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. Wisdom to the soul is what health is to the body |
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02-15-2008, 05:50 PM | #16 | |||
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Magnate
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It depends on the lab, which tests are run. On my paperwork, it says a lot of, *Test run, but not ordered* not charged or refunded. Something to that effect. Also says CFS savd? - Yes. I believe the other thing saved was blood taken at the same time (it was the only other thing taken). (Also, on my papers, it does not say *Tube one, tube two* like yours does. And he took 4 tubes of CSF. Were they all exactly the same? Maybe, or maybe they dumped them all in one vial and tested it that way. I wonder if that matters?) How long it was saved or where is anybody's guess. A little sluething and you might find some lab stuill has your samples. You MAY be able to get the CSF and blood sent to another lab for testing. That would rock, no? Just cuz you the other side of nowhere don't mean your stuff can't be sent anywhere on God's green Earth, see what I mean? It's a thought.
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Anybody who doesn't think a dog can smile has never dropped a piece of bacon. |
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02-15-2008, 05:53 PM | #17 | |||
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Magnate
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And then I read SBrown's post - wow, good call!
Where did you get that LP done, GJ? I'd call and tell them I want a copy of the results from them. (The one you have now is from your doc, isn't it? I bet the other one is more complete) Curiouser and curiouser..... Can I get you a nice hot cup of chamomille? Send a cabana boy over to give you a neck rub or something? This stress has gotta be killing you.
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Anybody who doesn't think a dog can smile has never dropped a piece of bacon. |
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"Thanks for this!" says: | SBrown45 (02-15-2008) |
02-15-2008, 06:59 PM | #18 | ||
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Senior Member
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LOL!
I acually got the results from the Hospital that preformed the test so I have everything, including all the stuff for my ER visit to get a blood patch. My BP was thru the roof!! LOL!!! I went shopping to get my DD her birthday gifts. Can't believe she is turning 19 on the 22nd!! How time has flown! I used this as an excuse to stop worrying about the LP....but can't wait to hear from my Optho/Neuro. He's the only one with brains in this city I swear! DH talked to a friend who's wife was having eye issues, had gone to many doc's here and got no answers. So she went to my doctor, and after an hour of testing, he finally told her it "Was in her head'....so I know he has no problem saying such...when he really believes it and the proof is there....He has told me on two occassions now that in his view, it IS MS. I remember years ago listening outside the door as he broke that news to a man and his wife....and they were stunned and in denial....but he knows what he's talking about. I'm convinced. My only other option is to go 'outside' (Seattle....) and I can't do that. Thats interesting about the samples being kept...I'll ask about that if there is a question regarding the results and lack of testing.... Thank you all so much, as usual!!! Jeannie
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. Wisdom to the soul is what health is to the body |
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02-15-2008, 07:32 PM | #19 | |||
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Legendary
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Oh Jeannie, you poor thing! Looks like you're back on that Limbo Roundabout with a vengeance!
I'm inclined to agree with the others when they said your results obviously aren't all through yet, and if you were being tested or MS....then those results are not on the list you gave! I'd have been expecting to see results for: Serum Alb - CFS Albumin - CFS IGG - CFS Index - IGG stnthesis Rate - IGG - Ogliclona Bands Myelin Basic Protien OG Bands, myelin based and other proteins (albumins) have been used for a long time now when diagnosing MS. I'm a bit bewildered as to why these wouldn't have been tested.
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02-15-2008, 07:37 PM | #20 | |||
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Senior Member
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Me too, I guess can't believe the Dr would do an LP and than NOT run the right test on the CSF to check for MS. I even feel bad that I have complained about my Dr not running more test on the CSF but I did get the MS profile.
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Hi, I'm Julie and mommy to 7 little kids (ages 4 to 11). . DX with Fibromyalgia, 1998 DX with MCS (Multiple Chemical Sensitivity), June 2008 DX with Food Allergies, wheat, sesame, fresh pineapple . |
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