I can't remember for sure when I last had full feeling in my legs. Dec. 27th was the last time I didn't have any numbness going on at all. My legs would go numb every day until around the 1st week of Feb. From than on they just stayed numb, not completely numb just to the point I can poke my legs with a needle and not feel pain.

Even if I don't have MS why would my neuro still not worry about this? I know, I know I need to find a new one. After I hear back from the eye Dr (hopefully that will be today) I getting a new neuro, if I have ON I'll see the new neuro right away, If it's not ON I'll see the new PCP 1st.

But am I right to think that a Dr would say this is not OK to be this numb this long for no reason?

Please, please don't read too much into this, that I'm worrying too much and casing too much stress on my self. I hadn't post this before now because I didn't even realize it's been this long. Trust me I haven't worried about at all.

come on girl....it is the anxiety that causes the legs to be numb....heheheheee

YOU know I am teasing...hehehee

HUGSSS and good luck with apt...I would think the dr should be concerned...
hoping it goes away soon..hugss,sarah

I've had numbness in my upper thighs since it appeared in April of 2006. Which was the first truly obvious symptom that I had MS (which the physician's assistant at my doctor's office said was a sprain and for me to put heat on it. That P.A. was a lazy moron who had misdiagnosed me years before as having a sinus infection instead of mononucleosis)

The numbness has moved around on my hips, down to my knees, and down to my feet and back up. I dont always have numbness in my feet or toes, but it seems like it's stayed constant in my left knee. When it's in my upper thighs, that's when it's at the most annoying...especially when it's a really deep numbness.

I'm trying to learn to ignore the numbness. I've noticed that if I think about it a lot, that that will make it worse, so I try to not think about it too much.

The leg numbness for some reason, isnt as annoying as it has been when my arms and upper body have been numb. Last year after I got diagnosed, I had L'hermitte's (electrical shock sensation going down my spine if I bent my head forward) Had that for two or three months, and while that was going on, my entire body had numbness all over. Even my scalp was numb. That was so much more annoying (and disturbing!) than the leg numbness, that I dont even complain about numbness in my legs anymore, but I will if the entire body goes numb again.

Can you describe the numbness "sensation" and how it evolves each day, MX7?

i.e.: you mention that you can't feel a pin poking you, but is that from first thing in the morning, or all day? Are there any other sensations that occur at the same time, or only the numbness. Etc. . . .

Cherie

The numbness now is 24/7, well I only have the numbness going on right now, I have had other things (slurred speech, dizziness, etc) that have come and gone over the past 8 weeks.

I really can't describe the sensation, it's just the skin doesn't have any feeling to pain, now if I hit my leg it's uncomfortable but doesn't hurt like it should. I don't have any tingling going on right now, I do still have a burning pain in my left hip and it still hurts to touch the skin (that's been going on since Dec. 27th).

Totally understand. My numbness is a decrease sensation of pain, pressure, and heat. It's there 24/7, but the intensity of it does change from time to time. Gets particularly worse if I've been stubborn and pushed too hard.

It causes my neuro some concern, but he has ruled out anything else that might be causing this. I'm waiting to here back on some more bloodwork I gave recently too. But I do have a leison on my spine that does explain my numbness issues, at least that is what he says.

Hope you get some answers soon.

It would be interesting to do a thread on "what does numbness feel like to you?", as I'm not sure we all have the same sensation (even those of us with a dx).

Part of the problem is probably communicating these sensations to our doctors. If it doesn't fit what "he/she" is expecting to hear (rightly or wrongly), or our bodies don't respond the way that "they" expect, they assume it's not really MS but something else.

For example, when I had my first attack, I didn't have a clue how to describe what I was feeling. I told the doctors that I was "numb", yet I had no problem feeling the pin prick test. How can a person be "numb", but still feel those sensations . . .? However, somehow they knew, from the vibration, reflex, sliding sharp object, etc. tests that I was, in fact, "MS numb".

There were also many other symptoms that I experienced WITH the numbness; banding, shocking, flushing, imaginary heat/cold sensations, etc. It was the combination of those sensations that lead them to their conclusions (even before they did the MS objective testing).

My numbness does not always feel the same, and doesn't come on the same way each time either. However, it is the precise description of the sensation that enables them to determine whether it is MS-related (and it's isn't always, even for me). That's why I asked you to describe it in detail.

Cherie

Jan. 1st I went to the ER with numbness in my legs and the numbness than was so numb that I had a hard time walking, I didn't feel anything other than hard pressure, if the Dr lightly touched me I couldn't feel it, I didn't feel the cold thing he used, the sharp object, didn't feel the thing he run across the bottom of my feet and didn't have much of a reflex at all. So this numbness What I have now isn't as bad as how it started. And when I had that 1st numbness (flare?) I had slurred speech, dizziness, shaking, both arms weakness, my left hand was numb, chest pressure/tighting (I thought it might have been MS hug), light headiness. The ER neuro even thought it was MS.

Momx7 - This is what your neuro should be doing for you. He should realize that you are really experiencing this, that no numbness is normal, and should test you to find some reason for you to have it.

After ruling out any causes he can come up with he could at least offer his best guess as to why you have it - does he think after all it could be ms or some other neuro disorder the tests did not show?

If HE does not get the idea to do this on his own, can you ask him to do this? If you ask and he gets his knockers in a knot, maybe you need another neuro

My neuro will normally just test me if any new sx pops up, or if old ones go crazy on me. If I went today and said my neck took a turn for the worse he'd have an order for a C spine MRI right out to me. If he didn't I could ask him and he wouldn't flinch. This is why I say good things about him.



And if he doesn't know the answer, he can say so, and we can talk about who might know. And I can go to that doc, and tell the neuro what the third party said. You don't get that every day.

You need to know about this though. And your neuro needs to look into it.

I am attempting to respond to the above question, and with regard to your numbness specifically. The other symptoms are "other symptoms", not related to the numbness per se'.

Have a look at the attacked link. Our numbness fits in a category of "sensory symptoms", which occur often as a result of spinal lesions. Sensory symptoms tend to cluster, so if you have numbness with MS, you will normally have at least some of the other "sensory" (see list) symptoms at the same time.

http://www.mult-sclerosis.org/mssymptoms.html

The "other" symptoms you describe fall in another category (motor, visual, cognitive), and those ones may or may not come on at the same time as the sensory symptoms.

They are looking for a well-orchestrated "package" of symptoms to appear as far as implicating MS.

Cherie