NeuroTalk Support Groups - Describing Symptoms

Quote:

Originally Posted by AZjanie (Post 221206)

This is a really interesting thread to me.

I have been diagnosed CIS (Clinically Isolated Syndrome) because I show every sign of MS but have had only one band in spinal fluid out of seven LP's which is not enough for a definite diagnosis.

I have spent about 10 years, lots of repeated tests, several neuros, a closet full of MRI films (five brain lesions), and money spent on co-pays seeking a diagnosis.

I understand those in "limbo" because they just want an answer. I was at the point of obsession and going to different web sites...yep I got that and that so it has to be this!!

Okay; it's MS; no wait it's more like ALS!!!

Finally I asked my Neuro; am I ever going to get an answer to what this is and she said "some people have all the symptoms of a disease but can't be diagnosed as definite". That is when she said I had CIS.

I have my answer; no more tests, no meds and I see the Neuro in a year.

It sounds as if you have come to accept things. That is not only a huge step but good for "healing" so to speak.

My parents had a good friend who spend a good portion of his adult life seeking and answer to an unknown neurological condition. No one could figure it out. He became physically disabled. He eventually passed away without any answers to what was causing all the neurological issues he was having. Very sad as he was such a kind and loving man as was his wife.