I did not mean to imply that MS neuropathic pain can’t be intermittent, because it is for me too. It was the TOTAL picture, as described, that doesn’t add up to a definition of neuropathy to me.

MX7’s clothing issue occurs for only a few days at a time + has been ongoing for many months. It effects her (itchy, tingling) where her clothes are more snug + severe pain is not the primary descriptive.

Is this the way you would describe neuropathic pain . . . because it definitely does not match my experience/definition in any way?

As you implied, there is no rhyme or reason to neuropathy. It most often lasts for several days to weeks, and doesn’t normally repeat in neatly defined areas (as was described by MX7). In your case, as an amputee, it may make sense that at least some of your particular neuropathy (phantom pain) might be more constant (experienced in one distinct area). This area of damage for you is very stable, but that is not normally the case with damage that occurs from our MS.

The most obvious reason that this is not likely to be neuropathy is that the “hurt” feeling was not adequately described or emphasized. We might all have different ways of describing it, but the overriding theme (if our “clothes issue” is from neuropathy), would be the severity of pain and burning sensations.

Even if a person had MS, I would not at all presume that this particular symptom, as described by MX7, is related to the disease. It just doesn’t add up to neuropathy, at least as I know it, and hence should not be ignored as “another symptom that nothing can be done about”. I agree she should mention it and try to find an alternate cause through her GP.

Cherie