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Old 02-28-2008, 09:24 PM #21
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This is really an interesting topic..I don't get headaches often, even though I had a few brain lesions, one rather large one. As I mentioned in another thread, however, I have a lot of problems with neck and upper back pain, and lately they've been pretty constant. I saw my PCP the other day, and she didn't think lesions, even spinal lesions, caused pain. She said if I wasn't experiencing muscle spasms, it was probably just bad posture or a need of exercise. Now, I KNOW I need more exercise after this long, cold winter, but the particular type of pain I've been having is something I've had before, when the cervical spine lesions first started showing up. Coincidence? I think not. Anyway, I had a cervical spine MRI today, so it will be interesting to see what, if anything, shows up. I'm starting physical therapy tomorrow, too, just to cover my..bases.
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Old 02-28-2008, 09:32 PM #22
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This is an interesting thread.

I do know that with my exacerbation from you know where there was a LOT of head pain in my left temple....the lession was in the cerebellum....a lot of my subsequent problems were on the left side.

And I like Tkrik have always had these strange zing pains that just bolt out of nowhere, but I am almost certain that not all of these would be relative to lessions, then again...

I'm going to have to put this on my ask my doc list! (He'll give us another answer!)
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Old 02-28-2008, 09:40 PM #23
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Zing pains - yes - have had those for quite a while - out of nowhere - used to think it was because I turned my head but no - that's not it -
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Old 02-28-2008, 10:07 PM #24
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I'm sure glad I posted this question it is very interesting indeed,very though provoking I'm glad it's gotten so many replys.
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Old 02-28-2008, 10:25 PM #25
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Quote:
Originally Posted by PolarExpress View Post
This is really an interesting topic..I don't get headaches often, even though I had a few brain lesions, one rather large one. As I mentioned in another thread, however, I have a lot of problems with neck and upper back pain, and lately they've been pretty constant. I saw my PCP the other day, and she didn't think lesions, even spinal lesions, caused pain. She said if I wasn't experiencing muscle spasms, it was probably just bad posture or a need of exercise. Now, I KNOW I need more exercise after this long, cold winter, but the particular type of pain I've been having is something I've had before, when the cervical spine lesions first started showing up. Coincidence? I think not. Anyway, I had a cervical spine MRI today, so it will be interesting to see what, if anything, shows up. I'm starting physical therapy tomorrow, too, just to cover my..bases.
Polar, I don't know why/if the c-spine would be any different but I can tell you that t-spine lesions can cause pain. I have one at t-10 and the radiologists impression read "multiple sclerosis, back pain".
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Old 02-28-2008, 10:33 PM #26
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Polar, I don't know why/if the c-spine would be any different but I can tell you that t-spine lesions can cause pain. I have one at t-10 and the radiologists impression read "multiple sclerosis, back pain".

I start out with a "spinal headache", similar to a LP headache. It begins in the C-spine where the lesion is (very, very bad pain ) and radiates to the neck shoulders. Eventually the pain goes up under the skull at the back, and as the day wears on it settles in my forehead. All I can do to get relief is lay down, for days to weeks on end.

. . . next comes the numbness . . .

Cherie
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Old 02-28-2008, 10:38 PM #27
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YES!! That's it, Cherie! I feel just a little vindicated here. I thought of doing the dance of joy, but than I realized this is really nothing to be joyful about.. Darn. Sometimes it would be good to be wrong.
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Old 02-28-2008, 10:44 PM #28
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good evening Kristi.

when I got "ice-pick" stabbing headache pains (behind my R. ear, by my R. temple, in back at the base of my skull, and worst of all, INSIDE my R. ear) my neuro said he thought it was Trigeminal Neuralgia.

In multiple sclerosis, the most likely cause of Trigeminal Neuralgia is lesion damage to the Pons region of the Brainstem where the 5th cranial nerve arises.

http://www.mult-sclerosis.org/trigeminalneuralgia.html

more info here:

http://www.mult-sclerosis.org/news/A...Neuralgia.html
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Old 02-28-2008, 10:45 PM #29
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YES!! That's it, Cherie! I feel just a little vindicated here. I thought of doing the dance of joy, but than I realized this is really nothing to be joyful about.. Darn. Sometimes it would be good to be wrong.

Cool! . . . I think.

I do not do any exercises what-so-ever when this is happening. It's up to you what you want to do ... but I wouldn't, personally.

It should let up on it's own in about 3 - 4 weeks. I use 1000 mg of Naproxen daily.

Cherie
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Old 02-28-2008, 11:08 PM #30
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I don't know about if the headaches mean lesions are forming but I have had so many headaches through the years on the right side. They always start at the base of my head and move up and over the top and right side coming down the front to above or behind my eye. These started when I was 17.

Now that I have developed sx of burning, the burning has started accompanying the headaches in the same location and at the same time, then follow it up with burning extending down the right side of my face and down my right arm and hand. Weakness has now developed during these flairs. When it is really bad, I just lose most control of my hand and arm. Sometimes it feels like it's going to float away.

This is probably not an answer to your question. But it is interesting on this site, when you start reading about others' experiences, it helps you put 2 and 2 together. Now I'm wondering if my headaches when I was a teenager could have been one of my first sx?????????????????????? Any ideas?
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