I'm asking because I've had head pain( pain sometimes like by my ear or on the other side of my head or top of my head) off and on for awhile. I'm scaried that this could mean more lesions which I don't want or need. All opinions welcomed. Thanks Kristi

That is a very good question. I don't know the answer, but hopefully someone else will. My prayers are with you.

all i know is my neuro said no brain pain isnt part of MS, yet when they finally discovered my MS it was because i had extreme brain pain, and as to any neuro knowing all the answers I doubt they do, they dont even know exactly what causes MS, so i am not sure and am pretty sure this answer didnt help you, wanted to let you know i get more headaches now i never got headaches, ever before, see what doc says i see way too many folks on here complain about headaches, are your eyes bothering u, could be an occular magrain

I've never heard that lesions cause head/brain pain. I can't see how they could, but I've been known to be wrong before.

Cherie.........where are you when we need you? . .

I don't think I know the answer . . . imagine that?!

I know when my spinal lesions are acting up, but I don't really have too many brain lesions to know from experience. For me, the spinal ones cause pain, directly where they are. My doctors don't even have to do a MRI on me any more . . . I just tell them which lesion it is . . . and then we all wait for the fall-out.

A number of people have major headaches with MS. Maybe there's something to that. I wouldn't be surprised.

Cherie

That explains the neck pain and the pain in my back (two spinal lesions)

I dont think the lesions would be causing pain, but I do think that people with MS have more headaches and migraines than the general population does. It's possible that the migraines and headaches could be caused by the MS doing something to a nerve that's felt as a pain in the head somewhere.

Kristi -

I know when at least some of my lesions formed. This has been confirmed over the years and MRI's. It's a subtle painless change. I'd like to say dizzyness but it's really not. Kinda like maybe vertigo. It's hard to describe.

It happens once or twice a year. This is consistent with the number of lesions I have. The first one I "felt" was in 1993. I've had MS since 1988.

Oh, by the way, one of my initial symptoms was a very sharp pain in the lower left back quadrant of my neck. This stayed with me for 16 years.

What part of Detroit? I grew up in Northville.

Tom

I wouldn't think it could be possible, but then again, I get these stabbing ice pick pains sometimes and I wonder....

Kristi, I don't think it makes sense that it would be detectable but I must say that having had some odd fleeting head pain, I've thought about this myself!

Lesions on the spine can definitely cause pain. I have one on my t-spine and the radiologist's impression said "back pain, multiple sclerosis".

As with everything else with this nutty disease, nothing seems to be absolute. I've had flares with no pain proceeding it, and I've had others where I've had ice pick headaches in the same area as the new leisons.

My neuro just goes "hmmm" and jots it down. My own theory (and it's just mine, I'm no doc ) is that because my new leisons flare and go inactive so quickly it causes some pain. During my DX process, I slowly increased from 4 to 9 leisons in my brain over the course of a year. Never active under contrast.