NeuroTalk Support Groups - Glossopharyngeal neuralgia

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NeuroTalk Support Groups (https://www.neurotalk.org/)

- Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)

- - Glossopharyngeal neuralgia (https://www.neurotalk.org/multiple-sclerosis/39756-glossopharyngeal-neuralgia.html)

Koala77

02-24-2008 03:37 AM

Quote:

Originally Posted by MrsBackyard (Post 222811)

...We might have been in the same trial. I can't remember the exact date but it would have been after 1980 because that is when I was 'officially' diagnosed, although my first episodes were around 1971/72.

I do think we must have been on the same trial MrsB, seeing the dates match up, and there was only the one trial in Oz at that time! I know the trial started before 1983, but I can't remember just how long before 1983.

How uncanny is that.... that two of us on this borad were on the same trial? . :confused:

Good to meet you MrsB.

Labrats together.....and all that! :D

DM	02-24-2008 01:26 PM

:hug:Hi Anne~ Sorry to hear about your friend' condition. You are a good friend to see info for her. Tell her that your NT friends' are thinking of her.
You take care too, Anne~:hug:

sugarboo

02-24-2008 02:22 PM

I wanna know what's wrong with this world that so many people get such crummy things happening to them. Hugs to your friend Anne, and very cool we have another Aussie!!!

OH! I mean Ozzie..........What do I know? Learn correct spelling every day! LOL!

Annelee

02-24-2008 02:34 PM

Hey, Koala77,

Sorry to hear about your friend's dx.

Seems like people did a bit of research for you and your friend with good intell.

Best wishes for your friend from one Anne to another...

...All together now...Tie me kangaroo down....:hug:

momXseven

02-24-2008 04:03 PM

Quote:

Originally Posted by lady_express_44 (Post 222756)

I had a numb mouth, tongue, throat and lips for several weeks one time, and it was scary enough. :eek:

Cherie

OMG, :eek: That had to have been scary. Were the Dr.'s able to help at all with that?
I think I would have been bleeding all the time from bitting the inside of my cheek, I do this a lot as it is and I've never been numb there. :D

momXseven

02-24-2008 04:06 PM

Quote:

Originally Posted by daisymay (Post 223030)

:hug:Hi Anne~ Sorry to hear about your friend' condition. You are a good friend to see info for her. Tell her that your NT friends' are thinking of her.
You take care too, Anne~:hug:

I agree Anna, you are a good friend to help like this.
I'm also sorry to her your friend has this, it sounds just awful and than for her to have MS also. Life just isn't fair sometimes. :hug:

elantra2006

10-13-2010 08:37 AM

Glossopharngeal neuralgia

I just joined this forum and would like to give my input on this ailment. I had suffered with this condition for two years on medication until I decided to have surgery.
In June of 2008 I underwent micro vascular decompression and have been pain free for 2.5 years.
There is hope beyond medication for this situation. Please feel free to contact me for further information or just to talk!

pud's friend

10-14-2010 04:25 AM

hi Koala. Nothing to add from my neck of the woods. sorry.

If someone can come tie down my kangaroo, i'd be a happy gal ;) I've got a nuisance mob across the paddock. I'll supply the rope :)

Lynn	10-15-2010 07:01 AM

Hi there

I am a Tassie girl, born and bred and now living in NSW - we go back regularly, I always feel like I am coming home. It truly is the most beautiful place. I still miss it terribly.

Luck you - are you living in Hobart?

Lyn

scallaway

08-28-2013 06:36 PM

Question

I'm considering surgery because of a painful relapse of glosso after 5 yrs of being pain free and am trying to locate surgeons. Would you consider giving me your surgeon's name? sharonc

Quote:

Originally Posted by elantra2006 (Post 704159)

All times are GMT -5. The time now is 08:03 AM.

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