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02-23-2008, 10:35 PM | #1 | |||
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Legendary
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Thank you ladies.....and yes Mrs B....your referenced material is exactly what she's been suffering. She said it's been agonising stabbing pain.
I have a feeling I saw somewhere that you're an Ozzie Mrs B. Is this correct? I'm in Tasmania (recently moved from NSW).
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Eastern Australian Daylight Savings Time and my temperature . |
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02-24-2008, 12:09 AM | #2 | |||
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Grand Magnate
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There is a considerable amount of information if you go to "google" and type in:
Glossopharyngeal neuralgia, multiple sclerosis I read most of the info on the first page of references that came up, and there was some interesting things to consider; differential dx, potential for it to be something else very similar (considering the person has MS), etc. It's worthwhile to look into this . . . Sorry about your friend, whatever is causing it. I had a numb mouth, tongue, throat and lips for several weeks one time, and it was scary enough. Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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"Thanks for this!" says: | Koala77 (02-24-2008) |
02-24-2008, 01:02 AM | #3 | |||
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Legendary
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Thank you Cherie. I feel for you if you've been through something similar.
Unfortunately this must be one of the nasty symptoms that we might get. I do appreciate your input. Thank you.
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Eastern Australian Daylight Savings Time and my temperature . |
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02-24-2008, 04:03 PM | #4 | |||
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Senior Member
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Quote:
I think I would have been bleeding all the time from bitting the inside of my cheek, I do this a lot as it is and I've never been numb there.
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Hi, I'm Julie and mommy to 7 little kids (ages 4 to 11). . DX with Fibromyalgia, 1998 DX with MCS (Multiple Chemical Sensitivity), June 2008 DX with Food Allergies, wheat, sesame, fresh pineapple . |
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"Thanks for this!" says: | Erika (09-03-2013) |
02-24-2008, 01:09 AM | #5 | ||
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Junior Member
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It was a three tiered trial. Some people were getting betaseron, some were getting a placebo and some were getting something they called 'transfer factor'. I think I was getting the latter. Tasmania is becoming the place to be in Australia. Hope you're happy there . |
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02-24-2008, 03:20 AM | #6 | |||
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Legendary
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Yes Mrs B. I was one of the lab rats for the early trials for Interferon way back in the late seventies/early eighties.. The trial I was on was 3 tiered one as well.....Interferon, Transfer Factor, and a placebo. At the end of the trial I got a letter telling me I'd been on the Interferons. I was in Hobart at the time, so that would be one of the reasons we never met up. Soon after I met my now DH, and we moved to Melbourne, where we were married. I'm rather interested to know why you said Tassie is the place to be now, as I only moved back at the end of Nov, after 15 years away.
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Eastern Australian Daylight Savings Time and my temperature . |
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02-24-2008, 03:27 AM | #7 | ||
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Junior Member
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We might have been in the same trial. I can't remember the exact date but it would have been after 1980 because that is when I was 'officially' diagnosed, although my first episodes were around 1971/72. I have a feeling it was probably around the mid-80's.
Tasmania? It is beautiful and not so spoiled by development as the other major states. I believe that the cost of living is actually lower and that good employment opportunities exist. There was an article in the Melbourne 'Age' about this a few weeks ago. The Western Ridges moved me almost as much as Uluru when I first saw them. Tasmania is one of the best parts of Australia . |
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02-24-2008, 03:33 AM | #8 | |||
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Legendary
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. . .
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Eastern Australian Daylight Savings Time and my temperature . |
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10-15-2010, 07:01 AM | #9 | |||
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Hi there
I am a Tassie girl, born and bred and now living in NSW - we go back regularly, I always feel like I am coming home. It truly is the most beautiful place. I still miss it terribly. Luck you - are you living in Hobart? Lyn |
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"Thanks for this!" says: | Erika (09-03-2013) |
02-24-2008, 03:37 AM | #10 | |||
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Legendary
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I do think we must have been on the same trial MrsB, seeing the dates match up, and there was only the one trial in Oz at that time! I know the trial started before 1983, but I can't remember just how long before 1983. How uncanny is that.... that two of us on this borad were on the same trial? . Good to meet you MrsB. Labrats together.....and all that!
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Eastern Australian Daylight Savings Time and my temperature . |
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"Thanks for this!" says: | Erika (09-03-2013) |
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