advertisement
Reply
 
Thread Tools Display Modes
Old 02-23-2008, 10:15 PM #1
Koala77's Avatar
Koala77 Koala77 is offline
Legendary
 
Join Date: Jan 2008
Location: Australia
Posts: 12,030
15 yr Member
Koala77 Koala77 is offline
Legendary
Koala77's Avatar
 
Join Date: Jan 2008
Location: Australia
Posts: 12,030
15 yr Member
Default Glossopharyngeal neuralgia

A fellow MSer has been diagnosed with this condition, but neither of us can find any information about it.

It's caused by inflammation of the 9th cranial nerve, and is characterised by severe neck pain.

Has anyone heard of it, and if so.....do you have any references for me so I can do a bit of research?
__________________
Eastern Australian Daylight Savings Time
and
my temperature


.

Koala77 is offline   Reply With QuoteReply With Quote

advertisement
Old 02-23-2008, 10:22 PM #2
MrsBackyard MrsBackyard is offline
Junior Member
 
Join Date: Feb 2008
Posts: 25
15 yr Member
MrsBackyard MrsBackyard is offline
Junior Member
 
Join Date: Feb 2008
Posts: 25
15 yr Member
Default

Hi Koala ..

I checked with the Yahoo search engine and there were quite a few references, this being one: http://www.ninds.nih.gov/disorders/g..._neuralgia.htm

You'd probably find it by googling as well.

It seems to be quite rare.

I was interested in your query because 20 years ago for about a week I experienced real difficulties speaking and swallowing and thought it was part of my MS. The neurologist seemed a bit lost but prescribed tegretol which I didn't take. It seemed to get better of its own accord. There was no pain, however.

Hope your friend is OK.
MrsBackyard is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Koala77 (02-23-2008), kristinleeda (06-15-2019)
Old 02-23-2008, 10:31 PM #3
CayoKay's Avatar
CayoKay CayoKay is offline
Fabulous Belizean Member
 
Join Date: Jan 2008
Location: Belize
Posts: 2,508
15 yr Member
CayoKay CayoKay is offline
Fabulous Belizean Member
CayoKay's Avatar
 
Join Date: Jan 2008
Location: Belize
Posts: 2,508
15 yr Member
Default

ahhhh, Koala, your poor friend!

sounds like this glossopharyngeal thang ALSO hits the tongue and throat, which I mercifully haven't had (yet)
__________________
And the trouble is... if you don't risk anything, you risk even more. - Erica Jong
CayoKay is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Debbie D (10-13-2010), Koala77 (02-23-2008)
Old 02-23-2008, 10:35 PM #4
Koala77's Avatar
Koala77 Koala77 is offline
Legendary
 
Join Date: Jan 2008
Location: Australia
Posts: 12,030
15 yr Member
Koala77 Koala77 is offline
Legendary
Koala77's Avatar
 
Join Date: Jan 2008
Location: Australia
Posts: 12,030
15 yr Member
Default

Thank you ladies.....and yes Mrs B....your referenced material is exactly what she's been suffering. She said it's been agonising stabbing pain.

I have a feeling I saw somewhere that you're an Ozzie Mrs B. Is this correct? I'm in Tasmania (recently moved from NSW).
__________________
Eastern Australian Daylight Savings Time
and
my temperature


.

Koala77 is offline   Reply With QuoteReply With Quote
Old 02-24-2008, 12:09 AM #5
lady_express_44's Avatar
lady_express_44 lady_express_44 is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
Default

There is a considerable amount of information if you go to "google" and type in:

Glossopharyngeal neuralgia, multiple sclerosis

I read most of the info on the first page of references that came up, and there was some interesting things to consider; differential dx, potential for it to be something else very similar (considering the person has MS), etc. It's worthwhile to look into this . . .

Sorry about your friend, whatever is causing it. I had a numb mouth, tongue, throat and lips for several weeks one time, and it was scary enough.

Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.
lady_express_44 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Koala77 (02-24-2008)
Old 02-24-2008, 01:02 AM #6
Koala77's Avatar
Koala77 Koala77 is offline
Legendary
 
Join Date: Jan 2008
Location: Australia
Posts: 12,030
15 yr Member
Koala77 Koala77 is offline
Legendary
Koala77's Avatar
 
Join Date: Jan 2008
Location: Australia
Posts: 12,030
15 yr Member
Default

Thank you Cherie. I feel for you if you've been through something similar.

Unfortunately this must be one of the nasty symptoms that we might get.

I do appreciate your input. Thank you.
__________________
Eastern Australian Daylight Savings Time
and
my temperature


.

Koala77 is offline   Reply With QuoteReply With Quote
Old 02-24-2008, 01:09 AM #7
MrsBackyard MrsBackyard is offline
Junior Member
 
Join Date: Feb 2008
Posts: 25
15 yr Member
MrsBackyard MrsBackyard is offline
Junior Member
 
Join Date: Feb 2008
Posts: 25
15 yr Member
Default

Quote:
Originally Posted by Koala77 View Post
I have a feeling I saw somewhere that you're an Ozzie Mrs B. Is this correct? I'm in Tasmania (recently moved from NSW).
Yes, I'm a Victorian. I saw that you participated in one of the first betaseron trials in the late 80's. I did too, at the Royal Melbourne Hospital here. I didn't finish the trial either.

It was a three tiered trial. Some people were getting betaseron, some were getting a placebo and some were getting something they called 'transfer factor'. I think I was getting the latter.

Tasmania is becoming the place to be in Australia. Hope you're happy there .
MrsBackyard is offline   Reply With QuoteReply With Quote
Old 02-24-2008, 03:20 AM #8
Koala77's Avatar
Koala77 Koala77 is offline
Legendary
 
Join Date: Jan 2008
Location: Australia
Posts: 12,030
15 yr Member
Koala77 Koala77 is offline
Legendary
Koala77's Avatar
 
Join Date: Jan 2008
Location: Australia
Posts: 12,030
15 yr Member
Default

Quote:
Originally Posted by MrsBackyard View Post
Yes, I'm a Victorian. I saw that you participated in one of the first betaseron trials in the late 80's. I did too, at the Royal Melbourne Hospital here. I didn't finish the trial either.

It was a three tiered trial. Some people were getting betaseron, some were getting a placebo and some were getting something they called 'transfer factor'. I think I was getting the latter.

Tasmania is becoming the place to be in Australia. Hope you're happy there .

Yes Mrs B. I was one of the lab rats for the early trials for Interferon way back in the late seventies/early eighties..

The trial I was on was 3 tiered one as well.....Interferon, Transfer Factor, and a placebo. At the end of the trial I got a letter telling me I'd been on the Interferons.

I was in Hobart at the time, so that would be one of the reasons we never met up.

Soon after I met my now DH, and we moved to Melbourne, where we were married.

I'm rather interested to know why you said Tassie is the place to be now, as I only moved back at the end of Nov, after 15 years away.
__________________
Eastern Australian Daylight Savings Time
and
my temperature


.

Koala77 is offline   Reply With QuoteReply With Quote
Old 02-24-2008, 03:27 AM #9
MrsBackyard MrsBackyard is offline
Junior Member
 
Join Date: Feb 2008
Posts: 25
15 yr Member
MrsBackyard MrsBackyard is offline
Junior Member
 
Join Date: Feb 2008
Posts: 25
15 yr Member
Default

We might have been in the same trial. I can't remember the exact date but it would have been after 1980 because that is when I was 'officially' diagnosed, although my first episodes were around 1971/72. I have a feeling it was probably around the mid-80's.

Tasmania? It is beautiful and not so spoiled by development as the other major states.

I believe that the cost of living is actually lower and that good employment opportunities exist. There was an article in the Melbourne 'Age' about this a few weeks ago.

The Western Ridges moved me almost as much as Uluru when I first saw them. Tasmania is one of the best parts of Australia .
MrsBackyard is offline   Reply With QuoteReply With Quote
Old 02-24-2008, 03:33 AM #10
Koala77's Avatar
Koala77 Koala77 is offline
Legendary
 
Join Date: Jan 2008
Location: Australia
Posts: 12,030
15 yr Member
Koala77 Koala77 is offline
Legendary
Koala77's Avatar
 
Join Date: Jan 2008
Location: Australia
Posts: 12,030
15 yr Member
Default

Quote:
Originally Posted by MrsBackyard View Post
..... Tasmania is one of the best parts of Australia .

. . .
__________________
Eastern Australian Daylight Savings Time
and
my temperature


.

Koala77 is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Trigeminal Neuralgia??? jowen214 Trigeminal Neuralgia 3 02-15-2008 01:50 AM
New to this. Have trigeminal Neuralgia 2mchpn New Member Introductions 3 02-06-2008 09:18 AM
So, Trigeminal Neuralgia.... jowen214 Multiple Sclerosis 12 01-26-2008 09:27 AM
Trigeminal Neuralgia maryln New Member Introductions 4 12-03-2007 07:23 PM
trigeminal neuralgia lexiathedragongirl Multiple Sclerosis 3 09-25-2006 12:01 AM


All times are GMT -5. The time now is 01:44 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.