[mimiRN]

Hello everyone
I was just curious if anyone has experienced tongue numbness...mainly near the tip? I have noticed this off and on the past month or so. This morning I noticed a small area I must had cut or bit on the tip. So I'm not sure if I'm biting it because its numb or vice versa if that makes sense?? This is the second time I've had this (with a cut) but have felt tingling other times.

I have my follow up appt with my neuro tomorrow for my results. Should I bring this up to him? I feel kind if silly but wasn't sure if this was related to my other numb issues or just a weird coincidence? Thank you

[Erika]

Yes, by all means bring it up to your neuro.

The right side of my throat and back of the tongue is numb and has been for some time; so the normal gag reflex is impaired on that side. I've also lost the innervation to some muscles of mastication on the right, so there is now a hollow where those chewing muscles should be. Apparently it is due to a lesion in the brain stem on me; that may or may not be MS related.

With love, Erika

[ANNagain]

I also have Right sided tongue numbness at times.
ANN

[SallyC]

Yes, Ive had tongue numbness and yes, do tell your Doc. The more he knows,
the more s/he may help you.

Let us know how it goes.

[Mariel]

I posted just today about upper lip paralysis (brief duration) and that included possible tongue impairment, not total paralysis. Maybe similar? There are so many different nerve pathways.

[mimiRN]

Well I had my appt with the neuro yesterday.

He stated that I have a Chiari malformation type I. He did not see any lesions in my MRIs so negative for MS. I had read a little about chiari before my appt. basically they can cause a lot of similar symptoms like MS does. I was a little disappointed that the doctor did not really explain a lot to me. He basically said there is no treatment except surgery ( which I would highly avoid brain surgery!). He said this causes my numbness and balance issues....just stinks I basically cannot do anything for it;( I am to go back in 6 months.

I'm thinking I getting a second opinion. Just to see if another Doctor can educate me better. My neuro never mentioned any restrictions and I feel he just rushed through my appt. its very scary sitting there by yourself hearing someone tell you you have a brain malformation. I left there a little in shock. Just not sure where to go with all of this?

Does anyone here know of anyone with a chiari? Thank you all so much for your help and time

[SallyC]

So sorry Mimi for your DX of Chari malformation. I have read about it and
knew of a few people with it. I also knew that there is an operation to
correct it. Any brain surgery is risky, of course.

If there was an operation to correct MS and I was younger, I think I'd jump
on it. However, the operation better have a 95% chance of being successful.

I think a 2nd opinion is a good idea. Your Neuro sounds like a loser.

Feel better..