NeuroTalk Support Groups - most scary MS symptom yet

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- - most scary MS symptom yet (https://www.neurotalk.org/multiple-sclerosis/39924-scary-ms-symptom.html)

Definitely call the doc...what did he/she say?

I have a friend whose MS does this to her...she teaches and some days uses the wheelchair because of it and others doesn't....it's part of her MS sx ...

Tell us what your doc says....

Guess what? I still have not called her. I don't know why. I think I'm scared to.

BUT THANKS TO ALL, I WILL. I AM GOING TOMORROW. one does not fool around with mother MS. LOL.

I will let you know what she says.

Love to all. sorry to hear that lots of you are going through the same or have gone through the same.

CITH

CITH - I go through that a lot. It is most annoying when I am driving and have to keep looking at my left arm to make sure of "where it is at." It's there and functioning just fine. LOL. I used to get this in my legs but not lately.

Let us know how it goes with the neuro.

Quote:

Originally Posted by Cat_In_The_Hat_ (Post 224366)

I have been really tired lately and have been doing not much more than taking my meds and falling back asleep for the past week or so.

- my legs from the knee down to the toes and my right arm from the elbow to the fingers felt numb and not a part of my body.

- My legs could hardly hold me, knees felt like jelly, lower part of legs (from knees to toes) just felt like they were not there, and I sat down right away again. WTF? is that all about?

- feeling of weakness and tingling and I have no words to describe the feeling or lack of in my legs.

- Is this the beginning of the end of my legs? Needless to say I had a majour pitty party on sat and sun.

- Toes and balls of feet feel as if there is cotton inside of them, loose socks are too tight.

- Right arm is also still weak and does not feel like it is part of my body ( I guess that is the best way to describe the feelings in those parts of the body).

All of what you've described are "Sensory Symptoms" (see following link, under that sub-title), and often occurs as a result of spinal lesions.

The feeling like "is not part of my body" is called "Proprioceptive Dysfunction; Loss of awareness of location of body parts":

http://www.mult-sclerosis.org/mssymptoms.html

Since this is a new (or worsening of old) symptom, and has lasted longer then 24 hrs, it is an attack.

What should you do? That is really up to you and whether you would normally try steroids for a flare-up such as this. I just ride it out, and it normally takes from 4 - 12 weeks clear up. Sometimes it gets much worse (including more parts of the body, stronger sensations, etc.), and sometimes it just stays where it is for several weeks.

If it gets worse or you get scared about something, don't be shy to ask. I know this experience all too well. :(

Cherie

Cherie's post was insightful...and correct but not necessarily for all....I too have have had this happen and it doesn't last for weeks at a time..I have had it happen for only short periods of time we're talking minutes here, as well,scared the crap out of me the first time....I had been feeling kind of cruddy numb spots here and there some tingling when all of a sudden I was totally unaware of the entire right side of my body,it was as if I had gone completely paralyzed, I have since had this happen on multiple occasions somtimes just an arm or a leg but it usually goes away fairly quickly, I thought I was having mini strokes! I DID however go to my neuro young lady! Alas in the end it was only the MonSter but you should always be sure!

Quote:

Originally Posted by afwifeRM (Post 227017)

THANK YOU for clarifying that, afwife . . . you are absolutely right.

What I meant was the numbness part might last that long, if it is an attack, NOT the Proprioceptive Dysfunction. The Proprioceptive Dysfunction is very fleeting for me and usually only lasts seconds to moments.

Cherie

Unnerving though either way! HATE when it happens while driving!

I had proprioceptive dysfunction for a couple of weeks--mainly in my toes on my right foot. But it happened to my right leg too for hours. It's unnerving.

CITH, that totally sucks that it's making you feel this way. I so hope you're feeling a bit better now. And yes, no one messes with mom, so kick MonSter butt!!

PT, as HollyM said, can be beneficial. It may just be that it'll help you strengthen limbs, but any extra strengthening we can get helps. ;)

:hug:

Let us know what the neuro said. I know it's scary, but it's better to KNOW than not to know and let your mind run wild. K?