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Old 10-18-2011, 05:41 PM #1
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Default What symptoms have you NOT had?

I noticed a couple of threads lately where I had nothing to offer, since they referenced symptoms I've not experienced. (Thank you, God)

I have never experienced optic neuritis, double vision, hearing loss or the infamous hug. I haven't had "leakage", or difficulty urinating. I've not had slurred speech. I haven't had tremor. Although I have balance issues, I haven't had vertigo. I haven't had pseudobulbar affect (laughing/weeping).

What symptoms have you never experienced?

Additionally, are there symptoms which you only experienced after many years without them? For example, were you diagnosed for ten years before you developed ON?

Just thinking about this from a different angle.
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Old 10-18-2011, 06:26 PM #2
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Unfortunately I've had everything mentioned......and probably more but I just can't think of more right now. My MS is like the weather in GA. If you don't like what's happening at the moment just wait a minute and it'll change!
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Old 10-18-2011, 09:16 PM #3
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Like Kel, I've had most of those MS symptoms, although, many of them, only once...As in..loss of hearing, ON, dbl vision, vertigo, shingles, that falling side of face and eye thingy (help me with the name of it).

I've had the tingly, numbness, dizzness, weakness and spasticity from the beginning and have slowly lost the ability to walk, but can still stand and tranfer (mostly).

I was DXed in 1976 and again in 1993. so yes, to your second question..., a lot of those symptoms didn't happen until the 1993 period and after.
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Old 10-18-2011, 10:35 PM #4
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Have had all the vision crap. In fact it was one of my symptoms 13 years ago long before I was diagnosed. Some screwup opthamologist said it was "migraine auras". NOT. It was classic ON and a text book MS presentation. I can't believe he fouled it so badly. I could have been diagnosed at least 10 years earlier than I was!

Haven't had leakage, but I think that prior to my CCSVI treatment my bladder wasn't emptying fully. I think it does now, but I still have some frequency issues.

I have had the hug. Not to the point of pain per se, but enough that I have problems catching breath and discomfort.

Have had all the speech stuff - slurring, stuttering, inability to talk at all. This didn't show up until 10+ years in.

I did have an intention tremor that was resolved with my CCSVI treatment. The tremor had been there for as long as I could remember.

I have had severe vertigo and it is the WORST symptom other than the crushing fatigue. I can understand why people with long term vertigo kill themselves.

Have not had the pseudobulbar affect. I do think that I tear up easier than I used to though.

Have had Bells Palsy which didn't show up until 2008 and then again a year or so later.
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Old 10-18-2011, 10:58 PM #5
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That's it...Bells Palsy...thanks JM.

Oh yes, i forgot about the fatigue..
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Old 10-19-2011, 03:30 PM #6
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Haven't experienced ON, but just about everything else...poopy MS...
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Old 10-19-2011, 04:05 PM #7
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have not had ON, but vision blurring at times. Have had many sxs of MS... the spasms, the hug I think, the balance issues lots, the numbness tingling.. the weakness, the foot drag slightly.. PT noticed that.. more than I. The vertigo, the well lots of things..

oh wait the things I have not had, something show up on MRI and do not have diagnosis of anything... just told I present like a MS patient by physical therapist... and others ask.. but nope no dx....

hugss all, good idea on this.. hugs,sarah
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Old 10-20-2011, 06:47 AM #8
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I've had everything you listed above except vertigo. I've had vertigo but while riding a ferris wheel so I don't think it was MS related .
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Old 10-20-2011, 07:04 AM #9
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I guess with MS there's no such thing as saying "I've had it for 20 years and haven't had that symptom, so I guess I'm home free."
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Old 10-20-2011, 08:25 AM #10
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I got to thinking about this question and came up with this answer.......I don't know which symptoms I've never had because, well, I've never had them!
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