I'm not sure what is going on and maybe this is just more of a vent than anything but if someone might have any input I'd sure appreciate it. I have been feeling so tired, not sleepy but my body feels weak and wore out. No matter how much I sleep I still want more sleep. I have been having trouble with keeping my balance as well as being dizzy some. Dh keeps saying he's worried about me and all I can say is I feel weird, it's hard to truly describe. Since I've been dx'd I haven't really felt like this. I feel like I've been dropped into wet cement and it's gradually drying.

Susan, I am so sorry. Fatigue just sucks.

You could be headed for an exacerbation, many of the meds we take cause us to be tired and MS can cause sleep disorders which can also cause fatigue.

http://www.nationalmssociety.org/sit...tlight_fatigue

It's probably time to see your doctor. There are meds that might help with the fatigue and a sleep study can rule out a sleep disorder.

I know exactly how you feel. This is the pre-cursor to an exacerbation for me! You might want to call your doc and see if you can get in for an office visit.

Are you on any anti-fatigue meds? Provigil, amantadine, ritalin, adderall?

You might want to make sure you don't have a bladder or yeast infection, or any other kind of infection as well. Any kind of infection can cause that fatigue feeling. I've just gone through over a month of a horrendous sinus infection and all I've wanted to do is sleep...but haven't been able to. I've had what the neuro called an infection triggered exacerbation. Not treatable by steroids, just high dose antibiotics. I am feeling a lot better, but still dealing with a lot of fatigue. I am taking 400mg of Provigil a day.

I hope you get better soon, but if it were me, I would call my doc.

Looks like Snoopy and I are on the same page and posting at the same time! Great minds think alike! LOL!

Thank you both. I do take Provigil, only 200mg. a day. If I am not feeling better tomorrow I will call the dr. Sometimes, even though you know there are others who understand exactly what you're talking about you still feel all alone...at least that's how I've been feeling.

Thanks again.
Susan

it really amazes me how creative, loving, giving, happy, cared for, lucky, gifted people can feel like this... you give so much to us with your kindness and photography, etc...

i don't know if i feel the same exactly, but i know what its like to lose a zest of somesort...

my mood is definitely affected by ms activity in me... and like others have said, can be a sign to rest and repair or see a doc, etc...

hugs to you suzy q

Fatigue is not fun. I agree about talking to the doc if it's gotten worse than usual.

I'm one of those unfortunate ones that can't take adamentine (sp?) or Provigil. Had to take a stress test, of which I'm waiting for the results, to see if we can move to the next options that might be available.

My wall of endurance keeps moving on me, so when I push - I hit the point that you're describing. Which of course makes the fatigue even worse since it takes so much strength just to move! Thanks to Zoloft, I have the motivation to do stuff now. Just wish my body had the power to do half the stuff I want.

Hang in there, and know you are not alone!

I was the same way as Cheryl for many years ... as soon as that level of fatigue hit, it was a relapse on the way. When I relapsed, I would sometimes sleep for 20 out of 24 hrs.

It seems you also have some new sensations/symptoms, and this fits the definition of an attack: "New . . . or worsening of existing symptoms . . . lasting longer then 24 hrs."

I know it is hard when you are working or have small children, but I sleep whenever my body 'craves' it. My MS specialist agrees this is the best approach; "listen to your body and go with the flow".

Cherie

I'm so sorry, Susan and no matter how you feel, you are not alone.. I hope you're Doc can give you something to help you through this bad time.

Feel Better Soon..

I called the dr. earlier and the nurse just called back. She said for me to increase the Provigil by one dose (another 200mg.) and to just take it easy and get all the rest I can. Also for me to be sure to keep a detailed journal of what I am feeling etc. If I don't feel better in a few days call back to make an appointment. She explained that it may be a flare coming on or simply may be that I've done too much and my body needs to catch up. I slept late and so far I am feeling okay except for a stupid site reaction to the Copaxone last night. I have a huge raised red place on my belly that itches like crazy.

I really appreciate all the replies. You all are wonderful!
Susan