Bring out yer dead!

Oops, wrong movie...




Hi everybody! * luring GJ in with donuts*

Coffee is on, and the goodies are on the bar. I hafta pass on that stuff or Green Peace will keep throwing me back into the bay. My name is NOT Willie!

How did you like that, 60 degrees Monday, ice and snow yesterday?

What do we get today, a volcano and tsumani?



so how are all of you?

Well I woke up this morning to an awful headache, toke 2 vicoprofens (yes the stuff I'm allergic to, this is how bad the headache is) and some benadryl to keep the itching from being really bad about 2 hours ago. Headache is still bad, I'm itching and now have the hiccups, the vicoprofen gives me hiccups.

The weather here, OMG. the weekend was nice, Sunday high of 79 than Monday night it snowed, Today high of 66 and chance of snow tonight. It's crazy right now.

Good Morning All. not to much new here except my legs are buzzing like mad.
1 more week until neuro appt. hope everyone has a good day
Until next week CHEERS

btw as you can see Brain the Guinness is on ME

Does it have chocolate this week? Okay, Okay, I'm in

It's been in the 40s the past few days, high winds and melting snow. It's real ugly out there (dirty snow)! Ice is everywhere. I think I need my ice skates to get around town!

My back has been just awful lately, and not been sleeping. Back on the drugs and I'm sick of being in pain. To think this is it for life just makes me want to end it all, ok not end it, but if I hadn't cried a zillion tears already, I'd be crying now.

The PT told me yesterday that one of my disc's is not working right, or at all. He is writing a letter to my Spine Doc. We also have a new spine expert in the city they have been advertising at my preferred hospital, and considering going to see him. He does disc replacement type surgeries. I don't WANT to do this, but I'm thinking I may truely be a candidate.

Most MS type sx are gone and who knows if and when they will return. I'm hoping never

See my Therepist again today. I told him I can't afford to see him every week, as my Ins only pays half But I'm continuing until I believe I'm done with this. I hate doing this and am now forceing myself. I don't feel depressed, angry or anxious.

My School (MT) is going well but it's very hard. I never knew how hard it was going to be. I worry that I'm too stupid to get it. I am not good at verbs, sentence structure ect....at least not reading about it. I can look at a sentence and "know" what needs to be done, but to call it what it is....I'm just not good at remembering these things. I figure there are people dumber than me that do this, so I keep plugging away

I hope things are going well for each of you and hope this week brings better things for all of us.

Hello and Oh Happy Daze~!!

I am going for my 2nd sleep study tonight, but this time will have the CPAP on in order to regulate how I will use it. Next I see this neuro to get my RX for it AND talk to him about what my Rheumy thinks it wrong.

The Rheumy does think these "episodes" I get are autonomic dysfunction, EXACTLY what I told my MS neuro's nurse last November when she called. She told the MS neuro called back and said he didnt think so.

Autonomic dysfuncton is a problem that can come from having lesions with MS. Hmmm...

BUT the other neuro thinks its Narcolepsy with cataplexy. I just dont buy it. My "episodes" aren't sudden nor do I ever sleep. I do get very weak but then my heart/bp and oxygen levels are going wild. I LOOK unconscious but can HEAR it all!! THATS why the Neuro thinks its cataplexy.

The diagnoistic train moves on... and on.... I am ok though. BUT I notice I stop breathing a lot during the day... so.. who knows?

Hope you all are improving, gettin relief or finding answeris..
Brain... how's your pain level?? relief yet?

luv you all ~!
Warmly Jan

ahh, McG, and Guiness, and I thought I'd have to come back later. Maybe I should leave it all for you and GJ anyway, buzzy legs and back pain could stand a dose.

I'm a bit afraid. No, I'm scared....I've been on oral prednisone for over 3 months now, and yes it tamps down the pain & inflammation and attacks...fact I've had one bout of ON per ophth while on it and other long periods of garbage and none were as bad as prior ones.

BUT, I don't have any of the things the prescribing Dr. thought I had, just CNS problems, and that Doc didn't plan on seeing me any more.

Of course she didn't arrange for someone else to do anything about the Prednisone either, nor.....bahh....
Anyway, I insisted on one last appt to find out how to taper off this stuff.

And I wish I didn't need to, I'm dreading it, but I need to get off.

Anyway, I'm taking advantage of the additional energy, and decreased (in comparison) pain/sx/flares to try and get a few extras done around here before it's out of my system.
Now for an early Guiness, fewer calories than that donut, hee hee.

Hope that Cathy shook that bug and MX7, that you're feeling some measure of relief by now, you've just had too much garbage to put up with; Jan that diagnostic train you speak of? Sounds More like an ole paddle wheel down the Chatahootchee during this drought. Stuck on a sand bar... Wish some gentle hugs could help.

GJ it probably wouldn't be enough by itself, but how about asking that cute l'il PT person about a TENs unit...my dh and I each have one and they help some, but not all problems...nice to have around if for nothing other than to take the edge off. Btw, I can really relate to looking at the written word and correcting it, but not being able name or lable the needed change.

to all of you

Hey, where is everyone today? Is everyone off of Limbo Island??

Been suffering from a cold since Sunday...hacking cough, no energy, and I look as bad as I feel. Hope it goes away before DH and I take off for Hawaii next week...

Not too many sxs lately...just the twitchy calves/feet/back. Also been experiencing spasming muscles in the same areas.

Eye exam turned out well...no problems, as far as Dr. could see. Relief!

I see the neuro next Wed. Until then, oil me up, cabana boy, I need to tan!

Until next week, take care!

hey where is the boat? I want off Limbo Island! I am in the process of being dx with SOMETHING don't have a clue (oh wait yes i do) it is something neurological in all likely hood b/c the symptoms are just too weird and too real to be all in my head. Can any body out there relate to this?

BOBcatsrule... sorry for your struggle. What are your symptoms?
What does your doc think?

Let us know how you are ok?

Warmly, Jan

ATTENTION PLEASE!!!!


Could you all please post in a larger font size than what is offered?
Size 3 or more?

I have blurry vision and its just too difficult to read.

Thanks Jan[/SIZE]