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Old 03-10-2008, 02:39 PM #1
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Default A question for those with SPMS

After having three very difficult years at the begining I have had mainly sensory symptons for decades. Three years ago my rt leg started to feel tired all the time and I developed a slight rt index finger tremor. They have both progressed alot.

Last Oct fatigue set in big time, along with balence issues. On Valentine's Day my left side became very week feeling and balence became wonkier.

Non of these things have gone away - darn!

I was in the hospital all weekend due to a flare and didn't think to ask if I am transitioning to spms or is this just a really long flare. I won't see the neuro for a month. What is your sp story?

I appreciate any info
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Old 03-10-2008, 03:59 PM #2
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While I have been diagnosed with RRMS, I've heard enough SPMSers talk about it to safely respond, I think...!

It sounds like it's just taking a long time to get over the flare, or maybe you've had two of them - one in October and one in February. When they come back to back like that, it takes a while to get over the symptoms.

Definitely a call to the neuro is in order!
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Old 03-11-2008, 12:10 PM #3
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Hi, PT, your best bet might be to wait it out a bit. My SP became official less than a year go, but I have been steadily and increasingly going downhill for six years. My neuro put it off as long as she felt she could, but 20-some years into it, the reality became too pressing.

My worst attack lasted 24 months and when I finally snapped out of it, I was almost entirely restored. It's such a crapshoot with this bloody disease, comparisons are practically a waste of energy. I hope you'll bounce right out of this one eventually and find nothing too terribly new came from it.
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Old 03-11-2008, 01:15 PM #4
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Thanks for the replys.

I feel crappy and I'm not being a good sport about it. Even though I've had ms for years ,it has been so mild for so long that I have felt somewhat in control of it. Now I'm in a panic.

I also found out I have low thyroid and my cholesterol is high. I'm a vegetarian and haven't eaten meat products in eons.


I have never spoken to my kids about ms. My sister is my best friend and I have talked to her either.

Please forgive my pity party. This is honestly not my normal nature.
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