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03-12-2008, 08:08 AM | #11 | |||
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Wise Elder
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Quote:
"...letting ya' lean on my knee."
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—Cindy For every day I choose to play, I set aside a day to pay. —AMN "Sometimes plastic wrap just won't cling, no matter how much money you put in the meter." —From the Book of True Wizdom |
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03-12-2008, 08:40 AM | #12 | |||
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Wisest Elder Ever
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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03-12-2008, 09:35 AM | #13 | |||
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Wise Elder
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Char, I am sorry and just sending hugs. Jim takes 90mgs of Baclofen a day and it seems to help him. I pray it will for you too. The "why me' stage is normal and important for you to go through. We've all asked that question sometime or another. But what your going to find is that a new woman will emerge. A stronger woman with determination to not let this monster take over. It's really the grieving process of losing a part of us but gaining a new sense of strength. There is nothing you can't do. You are inspiring to many of us here. Look at what you have accomplished. You work, go to school and raise a family. That is something to be proud of. You are stronger than you know Char.
Just know we are here for you.
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. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
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"Thanks for this!" says: | yeahbut (03-12-2008) |
03-12-2008, 10:25 AM | #14 | ||
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Guest
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i'm thinking of you today! i hope you get home soon to the darvs ~ i ran out of vicodin this week, so 'borrowed' my dh darvocet ~ wow, what a nice lil break! bummer tho that they make me loopee... that's probably why you can't take them til you get home... ...huh.... ugh.... i so hope your day goes by fast! |
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"Thanks for this!" says: | yeahbut (03-12-2008) |
03-12-2008, 11:36 AM | #15 | |||
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Member
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Dear YB,
I feel so bad that you're in this current situation but I'm pleased that the neuro's nurse took you seriously enough to work with your PCP to ramp up the dosage of Baclofen. I'm sure she wrote all of this in your chart for your neuro to review on his return. Great team work in her office. Be thankful! I'm glad to hear that you are feeling "somewhat" better today and got some sleep last night. Dealing with all of this and a lack of quality sleep really brings the house down. (No punn intended regarding the witch and the Wizard of Oz.) You will be in my thoughts today and I hope you're able to get through it and cope. Positive thoughts your way............
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Craig Mattice "Live Like You Mean It!" . Dx'd 12/00 w/RRMS Dx'd 05/01 w/SPMS 03/05 Rescinded MS Dx Neuro thinks something else 03/06 New Dx of Hereditary Spastic Paraplegia (HSP) Rare deteriorating motor neuron disease. No cure. No Treatments. Only 20,000 Dx'd patients in US |
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"Thanks for this!" says: | yeahbut (03-12-2008) |
03-12-2008, 12:30 PM | #16 | |||
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Wise Elder
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YB - I am glad you are doing better today.
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"Thanks for this!" says: | yeahbut (03-12-2008) |
03-12-2008, 02:47 PM | #17 | |||
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Member
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Char..........
You just need to come back to MO....... You would NOT belive the weather here this week......... Last 2 mornings I was sitting outside drinking coffee, eating blue berry bagels listening for turkey's.......... GOD is so good to give us SPRINGTIME........... Good medicine for the soul and the body........I suddenl feel 10 years younger (until the humidity kics in at least) Did the neuros nurse make you an appt for when the neuro gets back from vacation? Did she say she would make notes in your charts of these events? You know documentation is so important for you at this time. and I know what you said about not wanting a DX IF THIS IS HOW ITS IS GONNA BE....WELL HUN....I am afraid this is how its gonna be dx or not.....but let me tell ya...the peice of mind in Knowing for sure....and the help with the meds and the finally understanding what its all about....the dx "does" make a difference. Sure you will go through all the why me's and several other issues......but when yu get it all down in your mind......the peace of mind in knowing "its not just all in your head" wow....it makes a total difference. Dont know if that is true for everyone but it sure was for me...... I know we all keep saying "oh get some rest and blah blah....but I tell you what it is the defining factor in alot of the issues dealing with MS...... Hang in there my friend.....and come and let it out anytime ya need to.....whom better then those whom are in the same shoes..... YA KNOW!!!!!! Hugs SS!!!!!!!!!!!!!!!!!!!!!!!!!!! |
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03-12-2008, 04:44 PM | #18 | |||
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Legendary
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Sorry I didn't see this last night Char~ I wasn't online much... I'm sorry for all that you are going through. You have had such a rough time of it. Let's hope that tomorrow is even a little better, OK??
I'm sure thinking of you!!!
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"Thanks for this!" says: | yeahbut (03-12-2008) |
03-12-2008, 06:09 PM | #19 | |||
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Grand Magnate
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Glad to hear the neuro's nurse was on the ball. I hope that you had a better day today.
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Strength comes in all types of packages, even those you don't expect Dx'd MS 2007, Fibro 2009 |
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"Thanks for this!" says: | yeahbut (03-12-2008) |
03-12-2008, 07:11 PM | #20 | |||
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Magnate
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Quote:
Thank you everyone! Yes, my neuro's nurse documented everything in my chart and also sent him a page to let him know. She is so good! My PCP called today and wants me to also add 800 mg of Ibuprofin in the morning and around 2:00 and then the Darvocet at night time until I see the neuro.... this afternoon around 3 or so the pain was getting to the point it was really getting to me. I took the Ibuprofin and that did help a little but I am ready for the Darvocet now and really an hour or so ago..... Still stiff / spasms in legs but dealing with it. thanks again everyone! this is a good place!
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