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Old 03-16-2008, 09:25 AM #21
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(((hugs))) and prayers, i feel your pain

Please keep us updated
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Old 03-16-2008, 10:17 AM #22
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A lot of us have kids and fear this exact type of comment, I know I do, hopefully it is just plain old fatigue, tell him to ease up on the red bulls

just razzing ya,

keeping a mental note and or journal is a good idea for him.
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Old 03-16-2008, 10:36 AM #23
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I know the fear . . .

My daughter gets a numb/sunburned sensation in her torso every time she gets sick. She had a migraine, numbness and loss of control of her face when she was 11; they said it was hormones. She still gets lots of headaches. She needs far more sleep then most kids her age, and will fall asleep where-ever she is. Her knee gives out unexpectantly, which was my first sign of MS.

Scary stuff.

I hope the test turn out ok, sassy.

(BTW Sally . . . I don't know of any doctor that would rx LDN without a dx. Even with a dx, they can be fairly unaccommodating.)

Cherie
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Old 03-16-2008, 10:44 AM #24
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Quote:
Originally Posted by Victorya View Post
IT'S MY FAULT!!! I gave my baby MS!!

That is my biggest concern. If he does have something neurological I'm going to beat myself up over it.

I wouldn't even drink a carbonated drink while I was pregnant - no caffeine, no sugar. I did everything I could to remain healthy and give my babies every chance at being born healthy - and they both were. Big babies, too. 9 and 10.5 pounds.

Logically, I know this could happen even if I didn't have MS. But I'm a Mom - logical thinking is out the window!!
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Old 03-16-2008, 11:36 AM #25
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As a mom, yes we do worry about the possibility. One thing I have to tell Jim when he starts to worry if one of our boys acquires ms is this: HE IS NOT AT FAULT. It's not like we went out and picked up ms because we did too many drugs or drank too much or whatever. It's not like we could have did any genetic testing at the time to tell us their chances if one of us got sick. It will never be anyone's fault if our children get sick. I would never blame Jim if one of our boys got ms. It's a mystery.

Let's all try to remember that and pray for the best in our children. Beating ourselves up does no good in the end. We don't even know 100% sure if ms is genetic or if it's environmental or what the dang thing is. Cancer runs in my family and I would say half of them are convinced we will die from cancer. No one knows but the big guy in the sky right? Right?
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Old 03-16-2008, 02:48 PM #26
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Quote:
Originally Posted by lady_express_44 View Post
(BTW Sally . . . I don't know of any doctor that would rx LDN without a dx. Even with a dx, they can be fairly unaccommodating.)

Cherie
True, but Dr. Bahari prescribed LDN to himself and his wife as a cancer preventative, so, if MS is in the family, a Doc my precribe it to a child who is having some possible MS SX??

And, of course, I think you can still order the Rivia 50mg naltrexone tablets from Mexico and make your own. I did that for awhile, just for kicks.
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Old 03-16-2008, 07:42 PM #27
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well said sandy,

when i was confirmed with MS the guilt of having it and was it in my kids was riding me bad, then this wise person told me it wasnt like I was in some basement sharing a needle and getter aids or hepatitis,

something of which i could control and prevent, then she said be glad it is not something worse like an inoperable brain tumor,

this did help, it sort of shook the cobwebs from my mind, scary how something like this and the burden and or fear of burdening your loved ones, what it can do to your mental wellness
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Old 03-16-2008, 08:24 PM #28
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I wonder if that wise person was your wife? ;-)
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Old 03-17-2008, 07:58 PM #29
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Seriously, ALL of us with kids understand this....

especially if we KNOW it was in our family before us or THINK it was....

my son, 11, told me that his hand went to sleep one day last week, when he was asleep home sick from school. Now you KNOW what went through my head. But out of my mouth, some wiser woman than me said, "Honey, you are probably pinching something in your shoulder, lay on your back a while and see if it gets better!" Thankfully it did....

But we have our whole lives to worry about them, don't we ?
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Old 03-18-2008, 10:55 AM #30
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Yes we worry - and so far I have had 40 years of worrying - when I was dx'd it was not genetic and/or hereditary - now I see it is - one son knows it's a possibility - the other I doubt has ever thought about it - the thing that I'm seeing is that MS symptoms are a lot like those of Lyme disease and here in the Northeast there's a lot of Lyme which is as hard to dx as is MS - I wonder how many that have Lyme are really MS and vice versa - I always thought my younger son had Lyme from the symptoms he describes - now I'm not so sure -
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