NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)
-   -   Help please..... (https://www.neurotalk.org/multiple-sclerosis/41303-help-please.html)

SallyC 03-14-2008 09:42 PM

Yep, Snoopy's right on with the DX..:) . I've been having it, especially at night. Guess what, I just take a couple of Bayer asprin. If you don't take it too often, Bayer works like a charm. It doesn't take all the pain away, but enough so you can fall asleep.

Feel Better Kellijo...:hug:

MooseasaurusRex 03-14-2008 10:42 PM

20% payraise for Snoopy.

kellijo 03-17-2008 10:49 AM

Yes, heard from neuro. He said to try baclofen. I had already tried the bayer by the way.(it was the only pain reliever left in my house:D)

I actually had a weekend mostly without pain. Cause I was comatose. My sinuses decided to act up and had to take meds for that, which knock me right out.

On a good note I got my new street bike boots last week and I finally can get them on by myself. Now we need the weather to cooperate here.

hollym 03-18-2008 07:57 AM

Quote:

Originally Posted by kellijo (Post 238861)
Yes, heard from neuro. He said to try baclofen. I had already tried the bayer by the way.(it was the only pain reliever left in my house:D)

I actually had a weekend mostly without pain. Cause I was comatose. My sinuses decided to act up and had to take meds for that, which knock me right out.

On a good note I got my new street bike boots last week and I finally can get them on by myself. Now we need the weather to cooperate here.


I hope you have as good of a response to Baclofen as I have. Keep in mind that it will probably make you dopey and sleepy at first. I took it in small increments until I got used to it (about a week or so). My neuro had me start at 5mg three times a day and work up to 10 mg three times a day at first.

Over the last couple of years, we have increased it to a total of 80 mg per day and I haven't had any trouble upping the dose once I adjusted to the med initially.

kellijo 03-18-2008 12:25 PM

I hope it works too. The dopey and sleepy part is what I'm worried about. Still have to work.

That is unless the lottery pans out this time.:wink:

braingonebad 03-18-2008 08:37 PM

Quote:

Originally Posted by shelley (Post 236897)
Hi Kellijo,

Just a thought because its top of mind since I read it this morning.

But one of the other MS members posted about a Vit D deficiency in the Vitamin forum.

Vit D deficiency can have symptoms of weak muscles and aching bones.

I am sure others may come along with some suggestions, I just read your post and remembered the other one.

I'm not sure if I replied here on that - on the other forum I mentioned it.

I have vitamin D and calcium deficiency. I had a lot of bone pain - I could tell though that it was my bones and not muscles that hurt. Caltrate is enough for now to deal with this.

My condition was dx'd at age 2 as Rickett's. My dad had it too, my case is genetic. It's not uncommon in Irish people.

The main diff between Rickett's and just being deficient is that with Rickett's the liver can't make vitamin D or store it properly and that causes the bones to lose calcium.

hollym 03-19-2008 08:14 AM

Quote:

Originally Posted by kellijo (Post 239618)
I hope it works too. The dopey and sleepy part is what I'm worried about. Still have to work.

That is unless the lottery pans out this time.:wink:

I worked through the adjustment, but it was hard. Just titrate up slowly and use more when you are home. At the time, I didn't know how much I could play with the dosage. My current neuro gave me a lot more leeway and explained how short acting it is, so it is better to take less more frequently.

For instance, if your neuro rx's 10 mg three times a day, try taking it in 5 mg increments and work up to taking 10 mg at a time during the day. You could take 5 mg before work and while you are at work and then take 10 when you get home.

I generally take a lot more at night (anywhere from 20 - 40 mg) because I was waking up so stiff that I was actually stuck in a position.

I figure that I know a lot of people who work stoned and that is what it felt like to me. I wasn't at my best that week, but it was worth it in the long run.


All times are GMT -5. The time now is 02:37 PM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.