[cat265]

Hello everyone.
I have been hovering around reading the post for a couple of months. I have posted once or twice. I do not have a dx, yet. But I do have a question about vision problems. I have blurry vision in spots only, that comes and goes. It may last 2 weeks and then disapear for 2 weeks. I see sparkles off the the sides and top and bottom of my line of vision. I sometimes have pain upon eye movement or touching my eye when it is closed. Sometime I see the color blue when Iam reading somthing, like a few lines down (I know that sounds strange) And somtimes I get flashes of light in my eyes in the middle of the night. Because Iam fearing MS, I went to see an opthomalogist. He checked my optic never and my feild of vision. He said although I had a lot of sx of an MS eye, my optci nerve and my eyes ingeneral are healthy, Thank God. I do have lesions but they are not sure why, could be lyme or migrains. My question is can I trust what the eye doc said? Do I have to see a different kind of eye doctor? I have to have one more MRI but I have not scheduled it yet.

Personaly Iam leaning towards lyme. The tests all came back neg. But someone has just suggested that I find a good lyme literate medical doctor before crossing off lyme.

Thanks for any responses

[Erin524]

Originally Posted by cat265

Hello everyone.
I have been hovering around reading the post for a couple of months. I have posted once or twice. I do not have a dx, yet. But I do have a question about vision problems. I have blurry vision in spots only, that comes and goes. It may last 2 weeks and then disapear for 2 weeks. I see sparkles off the the sides and top and bottom of my line of vision. I sometimes have pain upon eye movement or touching my eye when it is closed. Sometime I see the color blue when Iam reading somthing, like a few lines down (I know that sounds strange) And somtimes I get flashes of light in my eyes in the middle of the night. Because Iam fearing MS, I went to see an opthomalogist. He checked my optic never and my feild of vision. He said although I had a lot of sx of an MS eye, my optci nerve and my eyes ingeneral are healthy, Thank God. I do have lesions but they are not sure why, could be lyme or migrains. My question is can I trust what the eye doc said? Do I have to see a different kind of eye doctor? I have to have one more MRI but I have not scheduled it yet.

Personaly Iam leaning towards lyme. The tests all came back neg. But someone has just suggested that I find a good lyme literate medical doctor before crossing off lyme.

Thanks for any responses

If you can find a doctor that's not going to just blow you off the second you mention the words "lyme disease", see what kind of opinion you can get on that, but I think the first thing you need to do is go see a Neuro-Opthalmologist. If there is a neurological problem with your eyes, no matter what the cause, and you dont trust the regular opthalmologist, then you need to see the neuro-optho for a second opinion.

You never ever ever ever mess with your eyes. You only get two, and if you lose those, you dont get seconds. Get your eyes looked at first.

I've got my own suspicions about Lyme disease and my health...I've generally accepted my MS diagnosis, but still have the lingering questions about Lyme since I've got a history of tick bites, and least one of two of them associated with a rash, but I cant get any doctors to take me seriously, and my insurance wont pay for any more Lyme tests, so I have to pay for any further testing for that out of pocket. Most doctors have no clue about Lyme disease and will only follow what the CDC says to do...and the tests the CDC says they have to do are not very reliable at all.

Whatever you do, dont tell any doctors that you were told by someone who is not a doctor to go look for a LLMD (Lyme Literate Medical Doctor) because LLMD isnt an actual term for a doctor who knows about Lyme. It's an internet term...if you even mention that you've researched it on the internet, any infectious disease doctor will figure that you're a hypochondriac and will not take you very seriously.

Get an appointment with a Neuro-opthalmologist before you do anything, you need to make sure there's nothing wrong with your eyes first. A Neuro-opth has other tests that they'll do.

[cat265]

Originally Posted by Erin524

If you can find a doctor that's not going to just blow you off the second you mention the words "lyme disease", see what kind of opinion you can get on that, but I think the first thing you need to do is go see a Neuro-Opthalmologist. If there is a neurological problem with your eyes, no matter what the cause, and you dont trust the regular opthalmologist, then you need to see the neuro-optho for a second opinion.

You never ever ever ever mess with your eyes. You only get two, and if you lose those, you dont get seconds. Get your eyes looked at first.

I've got my own suspicions about Lyme disease and my health...I've generally accepted my MS diagnosis, but still have the lingering questions about Lyme since I've got a history of tick bites, and least one of two of them associated with a rash, but I cant get any doctors to take me seriously, and my insurance wont pay for any more Lyme tests, so I have to pay for any further testing for that out of pocket. Most doctors have no clue about Lyme disease and will only follow what the CDC says to do...and the tests the CDC says they have to do are not very reliable at all.

Whatever you do, dont tell any doctors that you were told by someone who is not a doctor to go look for a LLMD (Lyme Literate Medical Doctor) because LLMD isnt an actual term for a doctor who knows about Lyme. It's an internet term...if you even mention that you've researched it on the internet, any infectious disease doctor will figure that you're a hypochondriac and will not take you very seriously.

Get an appointment with a Neuro-opthalmologist before you do anything, you need to make sure there's nothing wrong with your eyes first. A Neuro-opth has other tests that they'll do.

Thanks, I guess the internet is a good thing but it can give you too much info. For what it is worth, I am not a person who complains and I have a very high threshold for pain. It seems that as soon as the test that all the experts order come back negative you are labled a hypocondriac. That is the reason I don't post much. I must confess sometimes it feels like it is all in my head. (I know what I feel is real).

[Erin524]

I think a lot of us have had the same problem. Mostly because some neurological symptoms are invisible. We can feel them, but we cant prove them to the doctors.

It was such a pain trying to convince doctors that there was something wrong with me and to please look at me. At least someone finally did and believed me that there was something wrong. I feel better now that I have some sort of explanation for what was going on.

[AfterMyNap]

Hi, Cat, how long has it been since you saw the ophthalmologist? If it has been awhile, I'd suggest that the next time your vision is troubling you enough to interfere with a normal day, go see him again for a second look. If something in your vision is askew, whatever it may be, this is your only set of eyes!

Personally, I never, ever walk into my doctors' offices and tell them anything but answers to their questions. When it's my turn to ask questions, I ask about different things but am careful not to appear as if I know something they don't.

Welcome to NeuroTalk!
I hope you'll find some answers soon.