NeuroTalk Support Groups - LIMBO CHECK-IN Wed 03/19/08

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- - LIMBO CHECK-IN Wed 03/19/08 (https://www.neurotalk.org/multiple-sclerosis/41634-limbo-check-wed-03-19-08-a.html)

Jan - any updayes? How did the doc visit go?

GJ - no, don't feel bad about venting. I get it. It's like you have to work so hard - for what? To still feel like carp? Feels like it takes all day to get thru the day feeling lousy. It's frustrating.

You can say that - we understand.

I wonder if the human mind can ever really accept that the body is messed up.

I hope the PT starts doing some good, and not hurting. Give it a little while and see, okay?

And I guess we should have kept on with the bathing suit check ins, huh?

:rolleyes:

Tante - it's okay. You have enough to think about your own, then to have to think about anybody else's.

Very complicated, all of it. I hope they get it sorted out soon. I don't know if this makes any sense but I had a dream you were doing chelation?

Friend2U - good font size, thanks!

:)

Sorry about your dx, but glad you have an answer. Hope beta works out for you. Maybe your doc could give you something for your fatigue. I'd ask - call and let him know it's affecting your work.

Good luck with everything!

Sarah - must be in the air, I have some vertigo too. Always something huh? lol... Hug those yunguns for me.

Momx7 - I'll have to find your thread!

:hug:

McGimpy - soooo, what up with your neuro visit? Okay, went good, but no details? Too busy jammin are we?

:cool:

Thanks greenjeans.Yes Sept. 10th this year(it's my 4th neuro and the best)
Sx's since Oct 2005
Cheers Again :)

btw: Hi Brain,not to much to report right now,and how is your guitar doing :D

Well Mrgimpy, This is definately a disease about time for many of us! I do hope your sx are not interphering with daily life, mine tend to be annoyances that come and go, welllll...except for those whammies that make me wish I were dead :rolleyes:

Brain! My PT worked me over good yesterday :o:p

I slept all night, pain has decreased by about 50% and he gave me a real pep talk about hope and a good future. I was bawling like a baby...he told me that I was doing pretty good considering....LOL!!! I left with my mascara all over my face, evident in the rear view mirror....LOL!

I'm horrified about the bathing suit. It will definately be the ONE PEICE and NOT the bikini ;)

Hope you are well this fine spring day!!

Quote:

Originally Posted by McGimpy (Post 241843)

Thanks greenjeans.Yes Sept. 10th this year(it's my 4th neuro and the best)
Sx's since Oct 2005
Cheers Again :)

btw: Hi Brain,not to much to report right now,and how is your guitar doing :D

It's dusty and lonely, lol. I should try to play, my hands feel almost normal except for the tinglies.

Quote:

Originally Posted by greenjeans (Post 241851)

That's GOOD, about your pain level being down!!!! YAY!!!!

:Head-Spin:

I'm not bikini material right now either - and no way would I wear one for PT, no matter what!

;)

But come summer that's what I'm wearing if it kills me, LOL. If summer ever comes that is.

And hey, I lost my steroid fluffies already - woohoo!

:cool:

Hey Brain, I saw the 2nd neuro who gave me the RX for my CPAP. He will not DX narcolepsy/with cataplexy unless I continue those "episodes" after 6 months at least on the CPAP. Then he orders that daytime sleep study where you nap for them to see if you fall into REM sleep.

Oh, he wants to do an EMG test because I mentioned that my arms sometimes go numb when I am sleeping at times. HE wants to rule out Carpal tunnel.

I DONT WANT AN EMG!!! I had one mucho years ago and it showed nothing. SHould i have one? I have buzzing but what would it help by having one?

OK the RN finds the letter from the 2nd Rheumy that suggests it may be autonomic problems that cause those "episodes" I have had the last 16 years.
But the neuro didnt seem to address it. Well.. perhaps the fact its may be an autonomic problem is somewhere down the line as HE knows I need to BREATHE better first. Oxygen..rather a necessity, right? lol

He DID say he doesn't think its MS after I mentioned that I am in limbo with MS. BUT he never knew any of my symptoms or history. OK ok.. I'll go along with this program and stay with my nutritionist who I swear wil always find something to treat as I am always in the "Red zone" in his evals.

Stay tuned... thanks for asking
Jan

Hi Jan!
Wow, they just pull you this way and that don't they!! Poor thing! Can they schedule a nap? LOL!! Let us know what happens! Hope its a wonderful spring day for you...feels great around here...almost time to break out the shorts....errr...maybe go get a fake tan first :)

Hugs! :hug: